Many people don’t know what the word “eugenics” means, but parents of special education students will recognize the behavior associated with eugenicist thinking. Special education is not an isolated, siloed experience with no bearing on the rest of society, and history shows us that societies don’t just collapse because of a few bad actors or terrible ideas. They collapse because their systems stop evolving with the needs of their people.
I have spent the last 34 years upholding democracy at the local level through special education compliance, asserting all the while that special education is the “canary in the coalmine” for the rest of our civilization. The degree to which a society is civilized is revealed by the degree to which it takes care of its most vulnerable members.
When societies collapse, systems that once protected people can no longer fulfill their functions and start existing for their own benefit, causing constituent needs to become the means of perpetuating the system rather than the ends served by the system. These systems stop spiraling upward through stages of reflection, accountability, and self-correction and, instead, stagnate and drift into patterns we recognize all too well; patterns that include horrors like eugenics.
What Is Eugenics, and Why Should We Be Worried?
Eugenics is the scientifically discredited and morally indefensible idea that society can be “improved” by encouraging reproduction among people with “desirable” traits while suppressing or eliminating reproduction among those deemed “undesirable.” In the early 20th century this ideology fueled forced sterilizations, segregation, and systemic discrimination against the poor, disabled, mentally ill, and minority populations (NHGRI).
Even after the Holocaust exposed the full horror of where eugenic thinking leads, many of its assumptions remained embedded in law, policy, and cultural attitudes. Today we are seeing a resurgence of these ideas under new guises:
Erasure of tracking systems for disease, disaster, and civil-rights data, making vulnerable groups less visible and less protected
These actions aren’t accidents. They are systematic attempts to decide who deserves to survive and who doesn’t, without ever saying the real intent out loud. One of the things about my tendency to use Applied Behavioral Analysis (ABA) in any attempt to understand behavior is that it really helps identify when actions speak louder than words, which is why I recommend that everyone have a basic understanding of ABA. It’s hard to miss the function of a behavior when it’s this obvious.
Project 2025 Threatens Publicly Funded Special Education
Project 2025 is a published blueprint backed by major political operatives that calls for dismantling federal civil-rights enforcement, including abolishing the U.S. Department of Education. Key figures inside the current administration have publicly stated that their job is to “eliminate” the Department.
Shift authority to states without guaranteeing civil-rights compliance
Divert public funds to private schools that need not serve disabled students equitably
So, Project 2025 and Eugenics: Here’s the Link
At its core, eugenics builds systems that decide whose lives are worth protecting and whose are expendable. Project 2025 follows this template by removing protections for disabled, poor, and marginalized students, making survival and success conditional on wealth, ability, and conformity.
While supporters frame these moves in language about “freedom” and “efficiency,” the practical effect is to systematically privilege some groups while abandoning others. Selective protection of life, determined by productivity and conformity, is the operational definition of modern eugenics (ACLU analysis).
Understanding this connection matters because it shows that the fight for special education compliance is not merely bureaucratic; it is a defense of human dignity against an organized eugenics campaign. If the rights of a nonverbal child with autism don’t matter, why should anyone else’s? The eugenicists refer to our most severely impacted special education students as “useless eaters,” just as the Nazi’s did in WWII Germany as they tossed them into concentration camps, experimented on them, and later disposed of them in gas chambers.
This is How Special Education Compliance Fights Eugenics
Eugenics thrives where human dignity is rationed. Special education compliance, by contrast, mandates recognition of each individual’s inherent worth, no matter what it takes to give them equitable access to everything that everyone else can access. The IDEA requires schools to identify, assess, and individually support every eligible student, with continuous review through the IEP process.
Every compliance cycle, which includes assessment, planning, intervention, and progress review, is a deliberate act of justice scaffolding. It interrupts the slide toward selective harm by making it illegal to “write off” a student as unworthy of investment.
Developmental Science Shows Us the Right Way Forward
Jean Piaget taught that learning happens in stages. Lev Vygotsky emphasized guided support within a child’s zone of proximal development. Erik Erikson described psychosocial milestones that, if skipped, lead to lifelong instability: Trust ➢ Autonomy ➢ Initiative ➢ Competence ➢ Identity
When these stages are supported, society spirals upward toward resilience. When they are abandoned, societies fall into fear, shame, hatred, and authoritarianism, which collectively creates a breeding ground for eugenic thinking.
People who lack the problem-solving skills to overcome life’s hardships look for others to blame for their unhappiness while unscrupulous profiteers exploit their limitations for power and profit and provide them with convenient scapegoats to blame for all their problems. Very often, people targeted for extinction by eugenics will be unwittingly enlisted to facilitate their own demise, not realizing that they are among one of the groups being targeted for extinction when they are being pitted against another.
Spiraling Is an Instructional Strategy that Can Improve Our Chances
In education, the term “spiraling” refers to referring back to previously taught material or concepts and relating it to new material being instructed. For example, a refresher on basic addition before launching into new instruction about subtraction would be an instance of spiraling the addition instruction into the subtraction instruction to help the learner make the mental connection between what is already known and what is being presented as new.
In day-to-day human discourse, spiraling can be used to inform what we understand about the world around us based on what we’ve learned from past experiences relative to new information being presented to us in the news and from the people we know. By weaving in what we’ve already learned and mastered and connecting it to the new information being presented, we can create better outcomes for ourselves.
Compliance Is Not Pointless Red Tape
Sound compliance structures create a lifeline, not just for individual students but for all of us. They remind us that justice is a habit, growth is a cycle, and survival is collective.
Every IEP, every audit, every procedural safeguard is a step upward, away from the abyss. Without spiraling structures of accountability and care, the risk of falling backward into destructive hierarchies grows exponentially.
The measure of a civilization has always been how it treats its most vulnerable. When we protect the rights of students with disabilities, we protect the soul of our nation.
Special education law isn’t about pointless obedience. It’s intended to be a bulwark against eugenics in American society, which is why it is currently being targeted by the Project 2025 eugenicists. Regardless of whether you’re a parent of a child with special education needs, a concerned taxpayer who didn’t volunteer to bankroll eugenics as a function of our government, or both, you have a beef here with how things are currently being operated at the federal level.
The only way to preserve our democracy is to participate in it, including at the local level. Every IEP meeting is an opportunity to uphold the rule of law and facilitate the government serving the needs of the public accordingly. And to make sure our society attends to its most vulnerable members like a civilized society should.
The school year hasn’t even started yet and Los Angeles Unified School District (LAUSD), the second-largest school district in the country, has already hit the ground running with illegalities left and right, not the least of which is the systemic policy issue that I’m focusing on in today’s post. It’s hardly the only violation, but its a systemic one that stands to continue hurting a lot of children with disabilities, particularly our kiddos on the autism spectrum.
What I’m about to tell you would sound far-fetched if it was not for the fact that the United States is currently engaged in a soft civil war in which right-wing extremists are attempting to change us from a democratic republic to a ethno-religious dictatorship. The evidence indicates these decades-long plans were started at the local level in city councils, school districts, and various county agencies, then percolated upward into our federal agencies before culminating in the January 6, 2021 insurrection against our democratic republic.
The reality is that I’ve been dealing with these kinds of behaviors from local education agencies for the last 31 years, and there is no end in sight for many families in local education agencies as large as LAUSD. It’s the Titanic, it’s been on a direct course for an iceberg for decades, and it will collapse and sink under its own weight before too much longer at the rate it’s currently going.
This is particularly the case as the pro-democracy backlash to recent fascist efforts to overthrow our system of government is gaining momentum as more and more high-ranking fascist individuals at the federal level face the consequences of their actions with the J6 Hearings and related Department of Justice (DOJ) investigations. When the example is finally set at the national level and all of those responsible for J6 are either behind bars or being pursued by the feds and Interpol after fleeing the country, the trickle-down of legal consequences to State and local government agencies that have been engaging in fascist practices all this time will be severe.
But, we’re not there, yet. The only way to really get there is to make public what the heck is really going on so that taxpaying registered voters in Los Angeles can make informed decisions about the people they entrust with the responsibility of educating their children, particularly their children with disabilities. So, let me get into the actual issue to which I want to call immediate attention, that being LAUSD’s unlawful and unethical method of conducting Functional Behavioral Assessments (FBAs), which it has implemented as a policy, district-wide, according to District personnel.
Title 34, Code of the Federal Regulations (34 CFR) Section 300.304 describes the parameters for how special education assessments are supposed to be conducted. 34 CFR Sec. 300.320(a)(4) mandates the application of the peer-reviewed research to the design and delivery of special education, which includes the assessment process. Taken together, these laws require that competent assessors acting within the scope of their qualifications conduct assessments according to the professional standards that apply to each of the various types of assessments being conducted, in conformity with the peer-reviewed research.
There is no standardized measure, like an IQ test, when conducting an FBA, though there are assessment tools and instruments that can help inform the process. Instead, the applicable science describes the types of critical thinking and lines of inquiry a properly trained behaviorist must apply when determining the function of a maladaptive behavior and the most appropriate ways of responding to it. The science used is referred to as Applied Behavioral Analysis (ABA).
ABA is not a special education service, per se. ABA is the science behind effective behavioral interventions. ABA services requires scientists to think independently in applying the known science to the unique facts of each individual person assessed. It’s not a paint-by-numbers, one-size-fits-all measure. It’s not psychometrics in the sense that norm-referenced standardized tests will be administered to the student. It requires more thought and higher-level critical thinking skills than that, and the people who are certified to do it must prove their abilities to function that way.
There are no formal criteria for FBAs, specifically, but they are based off the Functional Analysis (FA) procedures developed by Dr. Brian Iwata and his colleagues in their published research. While being certified as a Board Certified Behavior Analyst (BCBA) is supposed to confirm that a behavioral scientist is adequately qualified to analyze behavior, BCBA certification is not required in California for conducting FBAs in the special education context. Anyone who has gone to graduate school for a school psychologist credential should have theoretically been trained on ABA just as a part of their grad school education.
My master’s degree is in educational psychology and I had to study ABA more than once during my higher education. It is not typically part of a special education teaching credential program, other than to mention that other professionals are available in the special education context to conduct FBAs and provide ABA-based behavioral interventions.
That is, except, in LAUSD, which is using special education teachers to conduct its FBAs. It will hire Non-Public Agencies (NPAs) that specialize in providing ABA services through and under the supervision of BCBAs, but it will not allow the BCBAs to actually conduct their own FBAs to inform their own Behavior Intervention Design (BID) services, which then compromises the quality of the Behavior Intervention Implementation (BII) services. This is a district policy, according to various LAUSD employees with whom I’ve been speaking about this since April, and they don’t seem to understand why I have such an issue with it.
First, the 8th grade LAUSD student I’m currently representing in which this issue has come up has been “assessed” under this model since the 1st grade and he still has the same behavioral challenges today that he had in 1st grade. He’s made no improvements and now he’s over 6 feet tall. His toddler-like tantrums result in significant property destruction, which has only gotten worse as he’s gotten smarter and bigger over time, and he puts himself and others at risk of injury when he throws them. Not only does LAUSD’s method of conducting FBAs fail to comply with the applicable science and law, it does not work!
LAUSD’s solution is to offer yet another illegal FBA conducted by an inexpert special education teacher who must then hand off their “data” to a BCBA who is then supposed to somehow magically engage in scientifically valid BID and supervise a Registered Behavior Technician (RBT) who is supposed to provide the BII in conformity with the plan designed by the BCBA. When I point out the epic failure of logic behind this practice to LAUSD personnel, I’m met with the Orwellian Doublespeak of corrupt District administrators and the blank stares of ineptitude and rote recitations of District policy from school-site personnel.
One school site administrator actually tried to get me to lie to the parent and trick him into doing something he otherwise was not inclined to do. I analyzed her behavior according to ABA standards based on what information I could gather and ultimately concluded that she’s as stupid as she is corrupt; her behaviors were automatically reinforcing and externally reinforced by her employer, which appears to employ the dumbest people it can find in positions of authority well beyond their critical thinking abilities and professional skills so that they can be the clueless, easily manipulated henchmen of the mafiosos at the main office on Beaudry.
Basically, what we are dealing with here is science denialism and unconstitutional conduct on the part of public officials to the tune of hundreds of millions of taxpayer dollars. LAUSD is the government, regulated by the rule of law and answerable to its local constituency, but the people generally have no voice against this behemoth of a self-serving institution, which is why I’m talking about it, here.
LAUSD is long overdue for a reckoning regarding its systemic illegal conduct across all aspects of special education, and it’s probably safe to say that if the District is willing to compromise its most vulnerable constituents, that being children with disabilities, it’s likely equally comfortable violating everybody else’s rights, as well. I can’t speak to the other social justice issues in which the District might be in the wrong, but it has historically failed on the special education front ever since special education and related civil rights laws were first passed in the 1970s.
Disability-related civil rights law is truly the canary in the coal mine for American democracy. The measure of how civilized a society is can be determined by how well it takes care of its most vulnerable members, and children with disabilities are among the most vulnerable humans on Earth. If LAUSD is willing to treat children with disabilities this way, it’s top administrators should probably swap out their dress suits for animal pelts so that their lack of civility is adequately conveyed. Otherwise, they’re just wolves in sheep’s clothing, preying our our most vulnerable children.
The Chanda Smith Consent Decree came after decades of unlawful special education conduct and was in place for decades thereafter in an effort to end the District’s unlawful conduct, which it failed to do. The courts attempted to pull LAUSD out of the gutter with the consent decree, but LAUSD just pulled the courts into the gutter with it. An Independent Monitor was hired to oversee the consent decree until such time that LAUSD came into compliance with special education law, but that day never came.
Apparently, presuming that compliance would never happen, the Independent Monitor began engaging in equally corrupt behavior, assuming lifelong job security for so long as LAUSD continued to violate special education law and grifting the system by overpaying consultants who failed to make any kind of perceptible difference with respect to LAUSD’s compliance. The Office of the Independent Monitor was shut down and the consent degree was closed out following an audit that revealed excessive unnecessary spending by the Independent Monitor that could not be related to the District’s conformity with the consent decree.
Further, while it may be true that the District legitimately improved some of its special education programming, by no means had to come close to a reasonable degree of compliance, as evidenced by the number of families who have still had to file lawsuits to get services, and even that doesn’t guarantee they’ll get all of the right services for their children. Many get only some of the services their children need, making their IEPs as effective as watered-down penicillin in the face of a raging bacterial infection. For all the services they may actually get that they need, the absence of the other services they also need undermines any successes they may have in the areas in which they’ve actually received help.
Which circles back around to the question that serves as the title to today’s post/podcast, which is, “Is LAUSD Run by a Fascist Mafia?” From the outside looking in, this seems to be a legitimate question.
Let’s start with the fact that LAUSD hired computer coders to work with its in-house counsel decades ago to bastardize a piece of insurance software known as Welligent into its IEP software. As a result, LAUSD has basically bureaucratically obligated its school site personnel to break the law because of the software limitations of Welligent, or at least how it has been coded by the District, that fail to even offer compliant options to its users in many areas of special education.
For example, let’s look at the assessment plan, redacted for privacy, that was offered to my current LAUSD student, which was generated from Welligent, and compare it to another redacted assessment plan for another student on my caseload in a different school district who also needed an FBA.
Example 1, below, is the assessment plan offered to my LAUSD student, and shows the FBA as an “alternative assessment” to be conducted by a special education teacher. “Alternative assessments” usually refer to non-traditional assessment measures or methods from those typically used in the place of standardized testing.
For example, using curriculum-based assessments in the classroom to gather informal data on actual classroom performance can be a more reliable method of assessing academic achievement than a standardized measure like the WJ-IV or the WIAT-4. None of this assessment plan makes sense with respect to the FBA.
Example 1 – page 1
Looking at the table of “standardized” testing from page 2 of this assessment plan, which is referenced by page 1, FBAs are not listed. Item 7 targets “Adaptive Behavior,” but that goes more to independent living skills and self-care, like dressing, toileting, and navigating the school setting. FBAs do not fit that category and the LAUSD assessment plan has no category that FBAs would logically fit. This was a deliberate coding decision made in Welligent by the District that has absolutely nothing to do with adequately assessing children with special needs and offering them appropriate behavioral supports at school.
Example 1 – page 2
Example 2, below, shows a different student’s assessment plan from a different school district. This assessment plan offers the student involved an FBA to be performed by the school psychologist in collaboration with a district behaviorist. This actually makes sense.
In this student’s case, it turns out the special education teacher was the problem and she got reassigned to a different classroom. This student had gone without behavioral challenges until she was placed in this teacher’s class, and the FBA made clear that the teacher was the one provoking the behaviors. Objectivity is one of the most critical aspects of science that must apply to special education assessments. Can you imagine if she had been trusted to conduct the FBA?
I can assure you the quality of the outcomes using appropriately qualified people who actually care makes all the difference in the world. Whereas our LAUSD student has historically been assessed according to plans virtually similar to Example 1, above, and has now gone for over six years with next to no improvements in his behaviors, our student from whose case Example 2 was taken is now thriving in school with no serious behavioral challenges of any kind.
To be clear, it’s not like the student in Example 2 has never had issues with this school district. There were problems years ago when she was little that I had to deal with, but it had been smooth sailing until she ended up in that whacko teacher’s classroom, last school year.
Because the student’s behaviors were interfering with her learning, even though we suspected the teacher was likely the problem, we didn’t go in accusing the teacher of anything. We simply asked for an FBA to get to the bottom of the behaviors and the next thing we knew the teacher was gone. The FBA report we got back was very well-written and explained the facts without demeaning the teacher or doing anything else unprofessional.
We hit a huge bump in the road that had the potential to go really badly, but the District in that student’s case handled it professionally, compassionately, and responsibly. I’ve yet to see any of those qualities from anyone I’ve dealt with from LAUSD regarding my LAUSD student. The difference in handling is night and day, and I’ve caught both districts messing up before. The difference is that my other student was met with professionalism, while my LAUSD student is being met with science denialism and an utter abandonment of the rule of law.
It is this refusal to abide by science and law on the part of the second largest school district in the nation that raises the specter of fascism. It’s all very “Marjorie Taylor Green-ish.”
Consider that California has adopted the Common Core as its State Standards. The purpose of these standards is for our public schools in California to teach students how to use academic knowledge and skills to solve real-world problems, yet LAUSD doesn’t use academic knowledge and skills to solve problems. It denies science and breaks the law.
How can people who deny science teach our kids to use science to solve problems? How can people who have abandoned the rule of law credibly teach social studies, particularly civics, and educate our kids to become knowledgeable participants in American democracy? How is this anything other than fascism and when are the feds going to do something about it?
I tried filing a complaint with the U.S. Department of Education, Office for Civil Rights (OCR), but it twisted my words into a narrower complaint than what I alleged and then declined to investigate its twisted version of my allegations, which is a first for OCR with me, I have to admit, and it makes me fear for our democracy even more, now.
If OCR is too intimidated by LAUSD to investigate such that it makes up lame excuses as to why it shouldn’t have to, how does that not also suggest the presence of organized crime within LAUSD so large and expansive that even the feds won’t touch it? DOJ is a little busy with the J6 investigations, but I suspect all of this stuff in inter-related as multiple spokes of a wheel-and-spoke conspiracy to overturn democracy in America.
Remember that Betsy DeVos tried to shut down OCR after she was appointed Secretary of Education by the 45th President until she had the snot sued out of her and subsequently reinstated it. She also admitted that her goal was to abolish USDOE as the Secretary of Education; she took the job with the specific intent of shutting down the entire agency from within.
How many people from the last administration continue to poison the well at USDOE? It’s the same question Americans have to ask about every single federal agency, but as pointed out in the above linked-to article from The Root describing DeVos’ desire to abolish USDOE altogether also describes the conference at which she recently shared her continued desire to shut down USDOE as teaching far-right parents how to build conservative-dominated school boards in their local communities, ban books, and a host of other undemocratic activities intended to deny the civil rights of children with disabilities, LGBTQ+ students, students of color, and students from other protected classes.
It’s an anti-science, anti-democracy approach that includes anti-vax, anti-masking nut-jobs who are too dumb to know how dumb they are and/or are profoundly mentally ill, being manipulated by grifters like DeVos to vote against their own interests in favor of the interests of the grifters. It’s the “have-nots” falling for the tricks of the “haves” who know the only way they can have way more than what they actually need is to make sure others don’t have enough.
Today’s post isn’t about documenting how I’ve figured out a way to overcome whatever fascist mafia might control LAUSD. It’s about exposing what I’ve witnessed and adding my voice and the voices of the LAUSD students who aren’t getting what they need to the conversation in the hopes that it will spark others to also help hold LAUSD to account for its egregious violations of special education law.
I’m hoping that voters in LA will learn more about these issues, understand that special education social justice issues cuts across all other demographic groups, and no segment of society is safe for so long as our government is allowed to conduct itself in this way. If you are involved in any type of social justice issue in which LAUSD has engaged in discrimination and withheld services it is legally required to provide, consider getting involved with our Meetup Group, Social Justice Series – Everyday Local Democracy for All.
Our Meetup Group is not limited to people living within the LAUSD attendance area, but we certainly have Angeleños already in the Group. You can comment/DM us directly on Meetup or on our social media, or use our Contact Us form on our site with any questions/feedback. We don’t have all the answers, but awareness is the first step to solving a problem, so we’re starting there.
On January 13, 2022, after staying up late to finish my last post/podcast, I woke up to find a message in my inbox from the CAPCAA listserv that included a very comprehensive-looking report published by a group referring to itself as “The Office of Administrative Hearings Special Education Task Force,” with the email address of oahspecialedreport@gmail.com. The members of this task force are not identified in the report. The report identifies its authors as follows:
Authors/Contributors: This accountability report is provided by the Office for Administrative Hearings Special Education Task Force, a coalition of concerned attorneys, advocates and parents. Many of these contributors conducted research, collected and organized the information, and assisted in the writing of this report.
Bias, Noncompliance and Misconduct In Special Education Due Process: An Accountability Report on the California Office of Administrative Hearings Special Education Division, January 2022
Given the degree of retaliation that anybody calling out the California Office of Administrative Hearings (OAH) could easily face in the current anti-democratic climate of American politics, these days, I can’t say I’m entirely surprised that the individuals responsible for this report have not named themselves in it. That could be really a good way to find some “good ol’ boys” burning crosses in their yards and planting pipe bombs in their hedges on behalf of some tax-fattened, suit-wearing carpetbaggers.
So, I can’t discount the report for lack of identified authors. That leaves nothing but the content of the report with which to judge its legitimacy, but that’s almost better. It’s like a blind audition on The Voice; it doesn’t matter what you look like if you have a good voice. What you have to say and how you say it matters more than what your name is or what you look like. So, that’s how I’m looking at this report.
In these troubling times, I’m willing to accept verifiable facts from anonymous authors truly fearing for their own safety if they dare to speak the truth. I will not accept unverifiable assertions being openly spewed by people saying whatever will get them attention. So, let’s examine the assertions being made by this report.
This Task Force’s report follows a professional format for organization and presentation of its information, but it’s not a legal brief or scientific paper. Not every assertion is supported by black-and-white evidence, but the assertions not supported by evidence are nonetheless consistent with those assertions that are supported by evidence.
Additionally, because I work extensively in the very areas of concern targeted by this report, all of it rings true with the experiences that I’ve lived as a professional over the period of time discussed in this report. That which is not outright supported by evidence in this report is nonetheless credible to me given the evidence that is presented and what I already know to be true from real-life experience.
While anecdotal accounts were added to the report to bolster the authors’ positions, the identity of those offering these accounts are unknown, so verifying them is impossible. Again, concerns about retaliation and privacy are legitimate, so I don’t want to discount the privacy concerns of the authors, but one of the first rules of proving the veracity of a document is authenticating its content with its authors. That’s just a basic rule of evidence. At some point, for this document to be taken seriously by regulators and/or legislators, its authors will have to reveal themselves.
Putting aside the authorship issues for the moment and delving into the actual content of this report, what this report is basically asserting is that OAH, which is a division of the California Department of General Services (DGS), is organizationally compromised relative to its obligations to try special education cases pursuant to the Individuals with Disabilities Education Act (IDEA). The report supports these arguments with references to a collection of publicly available documents.
The Task Force’s assertions in its report are also consistent with my experiences dealing with OAH since it took over the hearings in 2005. In fact, I first became a paralegal in 2005 and witnessed the very shenanigans reported by the Task Force with the change-over from the Special Education Hearing Office (SEHO) to OAH that same year. It was a dumpster fire inside of a clown car that had crashed into a train wreck, to put it mildly.
OAH underbid SEHO in terms of the costs of conducting special education mediations and hearings by failing to include the costs of administrative support and sending mediators and judges around the State to handle each case in its local community, which allowed OAH to come under SEHO’s bid by several million dollars, as memory serves. The moment it opened its doors for business, it was already millions of dollars over-budget from what it had bid to get the business from SEHO.
The quality of the judges from OAH was atrocious out of the gate. One then-new judge went down in California special education parent/student legal history for the angrily and stupidly stated words, “Ms. [Attorney], what does autism have to do with behavior!?!”
When you have people who have no idea what anybody is talking about deciding the futures of children who have no voice of their own in the process, those of us who are trying to protect these children become almost as powerless as the children we’re trying to protect. We were, and continue to be, faced with people entrusted with responsibilities that are clearly light years beyond their actual skills and knowledge, and the authorities and powers that go with those responsibilities.
What is the point of having the rule of law if the people responsible for enforcing it are personally incentivized to break it or are otherwise too dumb to know how to enforce it? We’re paying these people to implement the regulations, not to invent excuses as to why they don’t have to and bully the rest of us if we dare to question them.
I’ve been saying for the last 30+ years that special education issues are civil rights issues, and if our babies aren’t truly protected, then none of us really are. The national political landscape appears to support my conclusions, not that I’m happy to be right about that. Marginalized groups with specifically identified protected rights are always the first ones targeted by fascists, so special education is really a “canary in the coal mine” when it comes to American democracy. Clearly, we’re not doing that well and this Task Force is seeing a lot of the same things I’m seeing.
Regardless of the authorship issue, which I suspect will be resolved in due time, the evidence cited in this report and the consistency of what it describes with what I live and breathe everyday inclines me to treat it as credible, though if anyone can find an inaccurate assertion in it, please post a comment and let me know. At minimum, another federal investigation is warranted based on this report, but I don’t know that going to the U.S. Department of Education’s Office for Civil Rights (OCR) is the right way to go, now.
As the report discloses, there was already an OCR investigation in 2014 of the California Department of Education (CDE) as it pertains to making its hearings accessible to individuals with disabilities. I won’t repeat the anecdotal account of what that was all about, here; you can read it yourself in the report. But, I warn you, it’s upsetting. I wish I could say it was too outlandish to be true, but it sounds just about right for OAH and CDE, based on my own experiences.
Last year, just to give you an example from my own caseload, I filed a compliance complaint with CDE against a local school district for failing to implement all of a student’s IEP during the pandemic-related shutdown. The most critical element of the complaint was the district’s failure to provide in-person 1:1 aide services, as required by the child’s IEP.
Instead, the district put the aide for this non-verbal, inattentive, prompt-dependent child with autism on Zoom, requiring the child’s mother to be the in-person aide helping her child access Zoom, constantly cueing him attend to the online instruction, and prompting him through all of his work tasks to completion. The aide could only sit there, staring at them through the screen, completely useless … at taxpayer expense.
The aide was willing to provide in-person support and the non-public agency (NPA) that employed the aide was ready to send her to the student’s house in a mask for in-person services during distance learning, but the district wouldn’t permit any in-person services during shutdown. This single parent ended up selling her condo and moving, with her children, in with family friends, in no small part because she couldn’t work a paid job while sitting at home serving as the free aide for her child with special needs throughout each school day while the paid aide sat in her own home on Zoom, unable to do her actual job.
This was a blatant violation of State and federal law that the district kept blaming on the county’s health department. I challenge anybody to find a legal authority that gives a county health department the authority to tell a school district that it doesn’t have to abide by the IDEA. After attempting to get the district to do the right thing by way of written correspondence and the IEP process to no avail, I filed a regulatory complaint with CDE.
CDE opened an investigation based on what I alleged through its complaint intake unit, but then the investigator subsequently assigned to the complaint materially altered the nature of the investigation and cited the district for a different violation of the law than what I had originally alleged, and failed to issue a finding regarding the original allegation I’d made about the aide. The investigator’s findings then went to yet another unit within CDE that developed the order for corrective actions, which included compensatory special education instruction for lost service minutes, but it was silent regarding aide support during those compensatory services.
Think about this for a minute. I alleged in my complaint that the district failed to provide aide support during distance learning. The intake unit opened an investigation in response to my complaint based on the allegation of the district’s failure to implement the IEP as written, specifically with regard to 1:1 aide support. The investigator found that the district failed to implement all of the instructional minutes in the IEP, but issued no finding regarding the 1:1 aide support. The corrective actions unit ordered compensatory instruction to make up for lost service minutes, but there was no mention of aide support.
Once corrective actions have been ordered by CDE and its findings are sent out to the parties, the offending education agency has to provide proof of corrective actions to yet another unit of CDE. When I called that unit to get clarification as to whether the compensatory service minutes were supposed to include the 1:1 aide support called for by the IEP, that unit’s response was, “Yes.”
The offending district’s attorneys (definitely of the Rudy Guilliani/Syndey Powell variety), however, said, “No.” They then tried to fight with CDE over whether or not the compensatory service minutes had to include the same 1:1 aide support the student required throughout the school day in every other instructional setting, as per his IEP, likely billing the district by the hour the whole time.
What ensued turned into an internal feud within CDE. The unit at CDE responsible for collecting proof of corrective action from the district insisted that, because the IEP called for 1:1 aide support during any and all instruction, it was understood that 1:1 aide support also had to be provided during the compensatory services ordered. But, not everybody involved with the investigation at CDE agreed.
What I came to suspect was that the investigator and legal department at CDE had deliberately steered my complaint away from its original allegations for presumably fiscal and/or political reasons. It certainly had nothing to do with CDE abiding by its obligations or making the district comply with the law. It had absolutely nothing to do with protecting the educational and civil rights of a little boy with autism who can barely talk and needs an aide to access his education.
Reading through this Task Force’s report, I’m now seeing that experience again through new eyes. The argument the CDE is fiscally motivated to find it does nothing wrong and neither do its districts, regardless of the facts, as asserted by the Task Force, resonates with me as true.
Another compelling argument asserted by this report that also rings true for me is that DGS exists for the purpose of cutting costs, not ensuring the State’s compliance with federal mandates or protecting the rights of citizens. The report further argues that, as an integral part of DGS, OAH also exists for no reason other than to control costs and not to protect the rights of California’s citizens. As such, the Special Education division of OAH is not organized in a manner consistent with the requirements of the IDEA that special education hearings and mediations be conducted by impartial parties whose only function is to protect the educational and civil rights of students with disabilities.
A State employee who is being told their primary function is to save money should not be in charge of making sure the State abides by the IDEA. It’s an outright conflict of interest, which this Task Force asserts in its report. This isn’t just a philosophical assertion; it’s a regulatory requirement. The IDEA requires education agencies to design and implement individualized programs of instruction that confer appropriately ambitious educational benefits upon each student according to his/her/their unique circumstances, regardless of cost.
A State agency that exists to cut costs should not be making programming decisions in situations in which it is unlawful for cost considerations to be used to determine who will get what. That, to me, explains a lot of the hyper-Republicanism (in the present-day fascist sense of the term, not the former “Party of Lincoln” sense of it) going on in California’s special education system.
And, I’m willing to go out on a limb and say that, back in 2005, right-wing grifters were responsible for giving the special education due process business back to OAH. One of the sleaziest special ed law firms there ever was, which happened to be the largest special ed law firm representing school districts in California at the time, was Lozano Smith. It was instrumentally involved in getting the due process hearings switched to OAH in 2005. All of this came on the heels of No Child Left Behind (NCLB) in 2004, which resulted in changes to the IDEA. Those changes created an opportunity for anti-student and anti-parent forces to lobby for changes to how California handled its special education matters, from changes toState law, to changing who enforced the laws from SEHO to OAH.
However, in 2005, something else big happened involving Lozano Smith, right after OAH took the special education hearings back over. Lozano Smith will live on in infamy, at least in my mind, for decades to come following two public displays of anti-democratic behavior.
If special education advocacy has been the “canary in the coal mine” of American democracy, Lozano Smith has been one of the Mitch McConnell-esque specters of obstructive fascism that has been trying to snuff the voices of “canaries” like me for decades. I’m convinced that every single unrepentant person who had a hand in the Bret Harte mess and anything else like it will have a special place waiting for them in Trump Tower Hell, when they die; perhaps it will be named the Lozano Smith Suite.
In the present, all of the concerns raised by this Task Force’s report are grounded in the realities I deal with every day. The fact that the authors fear to reveal their identities is also grounded in the harsh reality that the fascists aren’t even trying to hide the fact that they are coming for us, anymore. Anybody who stands up for civil rights, these days, is a target, and I realize that includes me just by saying so.
Here’s the thing, though. Those of us accustomed to dealing with special education issues who understand Applied Behavioral Analysis (ABA) also know an Extinction Burst when we see one. So long as those of us who see this Extinction Burst for what it is continue to abide by our professional ethics, stand our ground, and stick to the applicable science and rule of law, none of the self-serving histrionics of those with anti-democratic tendencies within our government will overcome our fact-based arguments. We have to keep acting like we live in a democracy or it stops being one.
We may lose battles on occasion, particularly in those States currently permeated by maskless, unvaccinated seditionists spreading COVID as readily as their lies, but the only way we lose the overall initiative is if democracy fully collapses in the United States. All of us “canaries” need to start beating our wings and squawking loudly as the voices of experience when it comes to fighting fascism within America’s government, or it’s curtains for all of us.
It’s not shocking news to any of us that the fascists are targeting local government, including school boards, as a means of seizing control of the country. That’s nothing new! That’s what all of us working in special education advocacy have been up against since the original laws that protect our children were passed in the 1970s. To the rest of the Country, it’s unfortunate that it’s now happening to you, too, but we welcome you to the front lines and look forward to working with you to win this soft civil war currently being fought over basic rights and the rule of law in America.
To our colleagues fighting similar battles on behalf of other marginalized groups, we look to unify with you. When it comes right down to it, those of us who exist in marginalized groups collectively outnumber the few individuals at the center who put us in their margins.
In a democracy, majority rules. The minority of individuals who want to rob the rest of us of our rights cannot oppress a unified majority. Special education rights are human rights, just like ethnic rights, gender rights, sexual orientation rights, relationship rights, etc. If all of us whose rights are being infringed upon join forces instead of competing for the crumbs that fall from the would-be oligarchs’ tables, we can be sitting at the table eating meals full of freedom with everybody else, instead.
The following is the written transcript of the audio recording of my interview of Zafer Elcik of Otsimo, which you can listen to in the podcast version of this post. This transcription was aided by Otter.
Thank you so much for being in this podcast with me today. I really, truly appreciate you making the time, especially since we’re having to accommodate international time zones, and I’m here in the United States and you’re in Turkey. If you don’t mind, could you just go ahead and give us just a brief introduction of yourself and your product?
Zafer Elcik
Thank you for taking the time to talk with me. My name is Zafer. I am co-founder of Otsimo. At Otsimo, we are developing apps for kids with special needs, mostly for autism, Down Syndrome, and mental challenge. What we are trying to do is to provide early intensive education to the mobile devices and the speech therapy, as well. I have a brother with autism. He has been vulnerable for a long time. And I realized that he has special interest in smart devices one day, but I couldn’t find any suites or apps for my brother. The typical apps have a lot of advertisements, as well as, like, they have a lot of sounds, animations, and so on, and my brother actually liked to play with them, but he ended up with a bad situation. I decided to create app companies just helping kids on the spectrum. Well, right now we have kids all across the US, UK, as well as Turkey. We have already met the Minister of Education of Turkey. We reach education and speech therapy all across the world through the mobile device.
Anne Zachry
That is so cool. That’s such a powerful outcome to make happen. That’s such an accomplishment. That’s so cool.
Zafer Elcik
Thank you.
Anne Zachry
Oh, thank you. So well, one of the things that because we’re here in the United States, and we’re constantly advocating for kids with special needs to get the services they’re supposed to be getting and the supports that they need. And, very definitely, the whole issue of alternative communication methods and kids who have language impairments who can’t get their words out, but that doesn’t mean they don’t have words … I mean, I’ve worked for over 30 years with kids with every kind of disability you can imagine, and lots and lots of kids on the autism spectrum with language challenges, but also across all age groups. And, so one of the things I wanted to ask you about – because I did download and install your app and mess around with it, so I could become familiar with it – the graphics and the imagery, and the age ranges that look like on the app max out at like seven and older. And, for my kids on the spectrum who are middle school and high school age or young adult age, they don’t see themselves necessarily in the apps, and the tools that are are out there for children who are younger. And, the accommodations they need evolve over time as they get older, and they may still have the language skills of a very young child, but they are still a teenager on the inside. And, so, my question to you was, “Is there … are there plans to expand the app to have a version that is more grown up and more adult looking and more age appropriate for teens and young adults that will follow them into college?” Because I’m seeing kids who everybody thought they would never go to college. But once they get the help was like “Oh, hey! That’s a possibility for you, now …”
Zafer Elcik
Yeah.
Anne Zachry
… but these tools can’t follow them necessarily. And so my question to you is, “Are you looking to expand it to for to make the tool something that will support older users, especially as your kids get older … your child users?”
Zafer Elcik
Yeah, actually, it’s a great question, because my brother is getting older and older. And, we try to test with my brother as well to what the level will be of the new content in the app. Like, at Otsimo, we approach early and intensive education, because, like, you heard a lot of the time that you know it, like, if the kids can get early and intensive education, it affects our …
Anne Zachry
Right, right. Those are my kids who are now growing up and going to college, who, when we first started when they were four and five years old, that wasn’t even a thought. But, now that they’re 18, it’s like, “Oh my gosh! Look what you can do!”, because we got all those services when they were little.
Zafer Elcik
That’s because, like, I realized that, in the US, as well as in Turkey – I mean – a lot of countries in the world, because, like, we have a lot of users all across the world, and we realized that, like, getting a diagnosis and, then after that, getting the first education is a really big hassle. Like, in the US, as well, like, you need to go to IEP meetings …
Anne Zachry
Yep.
Zafer Elcik
… to get what you need, and it’s a big hassle and you lose a lot of precious months, sometimes a year, to just getting the education. That’s because we, at first, we focused on the, like, really early and intensive skills, like, small hand gestures, or social skills, and so on. But, after that, we really found out that we need to create content for a really diverse community. That’s because, like, right now we have more than 100 games, some of them is really easy, some of them is kind of middle school-ish. But we haven’t, like, created, like … I can set it up, like, we … our apps are at pre-K to K-2, but after K-2, right now, we don’t have real content. That’s because, right now, we are developing new content every month, just to keep updated. I don’t think so we will create content for university or high school and so on, but I believe it’s so go we can go to like pre-K to K-8, and so on, in the near future. We will have a lot of content for that.
Anne Zachry
Right. Well, definitely the early intervention is a huge part of it. I mean, that’s certainly important. And, you know, my background is also in educational psychology. That’s what my master’s degree is in. And I can tell you from an instructional design standpoint … but, also I’ve worked in IT. I’ve worked it … I can do some coding, it’s not my greatest skill, but it’s not like I don’t have any coding skills at all. I understand what it takes to build something from scratch in code. And you want to start with the simpler skills and move into the … progress into the more complex skills, anyway. You know, that those simpler younger skills are foundational, not only for human beings, but also for technology. So, you build on that not only with the kid, but with the tech over time, I would imagine. So, that totally makes sense.
Zafer Elcik
Yeah. Right now, we are developing these apps for more than five years, and still, I believe that we are in the, like, really beginning.
Anne Zachry
Right.
Zafer Elcik
We have more than 20 people. Like, we have psychologist on team. We have educators, developers, designers, testers. A lot of people lately, designers working with us, and so on. And it takes a lot of …
Anne Zachry
I can only imagine. I mean, I’m just trying to envision what all the logistics are of making something happen, you know, like what you’re doing. And, it’s just … you know, what you’re doing is moving the earth. That’s huge. And you said something a moment ago that …
Zafer Elcik
Thank you.
Anne Zachry
Thank you … that really caught my ear, and that was, you know, the diversity within the autism community. And, we have a saying over here that, “When you’ve met one person with autism, you’ve met one person with autism.”
Zafer Elcik
Yeah.
Anne Zachry
Because, no two people with autism are alike, you know. Just like everybody else, that no two brains are alike, even if they have a common disorder. And so, how it manifests … and I’ve got, you know … and this goes to my next question is, you know … I’ve got situations out here where we have students with IEPs that will say in the IEP that they’re supposed to have an AAC device, with hardware and software loaded on it, but they won’t specify what they’re using. They won’t name the device and they won’t name the software in the IEP, as though all AAC tech is interchangeable. And, it’s not! Each technology is different and nuanced, and every student has to learn that piece of technology as a way to learn language. Like, if you start a kid out on ProLoQuo2Go, and then you move that kid to another school, and they see that, “Oh, well. You’ve got an an AAC device with some kind of software in your IEP. We have to implement your IEP that you came in with, but we don’t know what you were using.” And they’ll go off and get, you know, a Samsung smart pad with some kind of who-knows-what software installed on it. And it’s not the iPad with the ProLoQuo2Go the kid knew how to use from the last school. And so, what happens is their language gets taken away. And so, I guess my question to you then becomes, “If there’s other technologies that are going to be used as these children get older, like ProLoQuo2Go, going into the adult world, do you think that it’s wise to start them off on something different and then switch them, or does it make more sense to get them accustomed to one piece of technology and have it carry them through, or does it make sense to teach them more than one type of AAC tech so that if one goes out of business, the other one’s still around?” I mean, that’s my concern. It’s about the people in the public schools who tend to think that AAC technology, if they’re not specifically trained in it, they think it’s plug-and-play, and you can pull one out and push another one in. And, I wonder what your feedback on that what would be.
Zafer Elcik
Yeah, my feedback on that, like, is, we have also AAC solution in our special education app.
Anne Zachry
Right.
Zafer Elcik
We are targeting mostly young children instead of, like, ProLoQuo2Go or other AAC devices as well. And I believe in … so, like, we need to introduce the AAC to the people and individuals on the spectrum as soon as possible, because, like, we have a lot of research also going on there. AAC actually doesn’t have any disadvantages to learning a language. It also have advantages to learning language or concepts of vocabulary, and so on. I believe … so, we need to, we need to show the AAC in really early stages, because it’s helpful for them. And the second thing I need to say: We need to find a way to, like, a different kind of solution. Like, sometimes you need Tobii Dynavox with a eye-tracker device on it …
Anne Zachry
Right.
Zafer Elcik
… and so on, and sometimes you need also some AT with a light reading cue and open source system with you. I think that, like, the schools doesn’t … like, schools must not mandate an AAC over others. They need to accommodate the diversity, the diversity of different assistive technology. That’s because, like, I also came across some schools, like, they’re using just one tech and they don’t want to change, but it doesn’t help anyone. Like, it just helped the teachers, maybe the managers there. It doesn’t help the kids and the family. Because I think that, like, teachers also have a lot of goals, as well, because of the … I don’t want to say that, but, like, teachers need to accommodate the diverse kids …
Anne Zachry
Yeah. Right.
Zafer Elcik
… diverse problems or … the diverse solutions of the kid, and find a way to use the … what the kids like, what the individuals like. Because, like, communication is essential, and when you are changing a device, you’re actually changing the whole communication system. And, you force them maybe to voiceless.
Anne Zachry
Right.
Zafer Elcik
And that’s a huge drawback for diverse communities. That’s because, I believe it. So they don’t need to see a lot of different AAC, but they need to stick with what they feel comfortable.
Anne Zachry
Right. It’s doesn’t do any good to teach a kid how to speak using the tool and then take the tool away from them. And…
Zafer Elcik
Yeah.
Anne Zachry
… and that’s our concern. And that, again, goes back to how special education is legally regulated here, because you can’t just go and change things up once it’s written into the IEP. That’s a legally binding contract that the parents can hold the school to that says, “Hey, these are the things you’re supposed to do for my kid.” But if the contract itself is flawed, if the what it describes in writing is not appropriate, then that’s what’s enforceable. And, what we run into is … Yes, I agree with you that you have way too many school districts that will standardize on a particular technology, because they get bulk discounts. If they buy in bulk from the vendor, they get it less per unit.
Zafer Elcik
Yeah.
Anne Zachry
And so, it’s cheaper to get multiple licenses of a particular AAC and a particular device because they can buy those in bulk, because all of these vendors have realized that they can sell more in quantity to the schools if they can convince them that their technology will solve all these problems. And, for a lot of kids it will, but you have to specify what it is in the IEP. Because, if a kid has started out, say, on your technology and it’s part of what’s being done in the classroom, if it’s not written into the IEP, and that child moves to another area, and that IEP has to follow them to the new school, but it doesn’t say in there … that they were using your technology, the new schools not going to know to put that in. And so, what we run into is sort of a mixture of too vague of a description of the accommodation, as well as what you were talking about, what is sometimes is over-specified to the point where there’s no flexibility to try anything new.
Zafer Elcik
Yeah … Yeah.
Anne Zachry
So, you don’t … you have to strike a balance where there’s enough flexibility with the way the document is constructed that trying out new technologies is not prohibited, but what the child is familiar with is also not taken away. And so, it comes down to the wording of the document. And I think that that’s something that a lot of solution developers find frustrating when they enter into the American special education system because they’re thinking, “Oh, America loves special ed! They actually have laws and they make it free and they do all this stuff!” But, when you actually try to participate in it, it looks a lot different to live through it than it looks like on paper. Yes, there’s an embracing of it. But there’s also all of these rules that get in the way of actually doing something about it, sometimes. And so, sometimes the rules are there to help, and sometimes they get in the way. And I think that, especially as an international developer, for you coming in to try and insert your product into that kind of situation and have been successful, that’s enormous. Because that’s not an easy thing for anybody to do. And for you to come from outside of the country, and insert yourself into such a heavily regulated situation, with a solution that people are actually adapting and accepting and using, I think that’s huge. So that’s … congratulations on that. That’s enormous.
Zafer Elcik
Actually, like, the system in the U.S. is changing by state-by-state. And that’s because like, maybe it’s district-by-district.
Anne Zachry
Yeah.
Zafer Elcik
You are right. They’re involved in that kind of stuff. We here are actually trying to be a company like family-friendly, or special individual-friendly. What we try to provide is an additional value. Like, they can pick what they want. Mostly … most of the other companies, like there are big corporations in the U.S., like, they are selling bulk, but they don’t update the software for a long time or doing anything like that, specifically.
Anne Zachry
That’s true. Right.
Zafer Elcik
That’s because, like … and also, some states and district doesn’t … they need to cover by IEP by law, but they have a lot of that system. That’s because kids couldn’t reach out for, like, the AAC they need.
Anne Zachry
Right.
Zafer Elcik
That’s because we try to find a way to be an affordable and accessible solution for all families, instead of, like, binding the districts or states to just forcing them into one single product. But, you are also right. On the other side, if the kids started some sort of specific AAC, I think, I believe it, so they need to follow the same system in the other schools or other districts because, like, they learn how to communicate through that. Like, it’s something like you learn in English in one nursery; while you carry on your school, you need to … you’re forced to talk in French and …
Anne Zachry
Right.
Zafer Elcik
… it’s impossible for you to actually … it’s something like that.
Anne Zachry
I agree.
Zafer Elcik
… take a special tech from their hand just because of the bulk discount or so, but it doesn’t help anyone.
Anne Zachry
Right.
Zafer Elcik
It’s helping the … maybe the district managers and so on.
Anne Zachry
Exactly. And that’s a lot of what we run into is … we run into administrators who spend zero time in the classroom, who are business office people making decisions that affect the classroom based on finances, which is illegal, but it happens all the time, because they don’t know any better. They don’t realize their decisions are going to have that big of an impact on a kid. They’re not even thinking about that because their business office people. And so, that’s I think it’s … we’re running into an issue over here with respect to how the bureaucracy is organized. It was created during the Industrial Revolution and emulates a factory. And, even though modern business technology has evolved well beyond that, public education technology has not. Public agency technology has not. The public sector, our government agencies, are decades behind technologically speaking, which I’m sure you’ve encountered with all of their different business systems …
Zafer Elcik
Yeah, yeah.
Anne Zachry
… and things and accounting systems and was like, none of them are running the same operating system. None of them are running the same software. So, it’s a highly disparate situation. And it kind of reminds me when I was working in IT years ago, around the, like, the late 1990s, early 2000s. I went through that whole Y2K thing … and … when I was working in IT. And, at the time, the customers that I had for the company I worked with were mostly in the freight forwarding business. And, it was when U.S. Customs was switching to paperless. And, my goodness! The pandemonium and chaos that broke out amongst all of the people who handle paperwork for shipping goods back and forth overseas. I mean, this was all a paper driven processing, and now Customs wanted to go paperless, and it was something. And, nobody had the same operating system. Nobody had the same software. But, everybody’s stuff was somehow supposed to magically talk to U.S. Customs electronically. And, making that all come together over the span of like five to seven years was outrageous. But at the same time, I see that now happening in public education where we’re finally starting to reach that place where we’re just going to have to deal with it in do the upgrades. And, I think that once the upgrades get done, and we get to a more cohesive modern system, that it’ll be a lot easier because … we have better technology being implemented in the classrooms than we having implemented in the business offices. And, I think that that’s a lot of the problem is that we have this antiquated bureaucracy responsible for teaching modern children. And so, we have all these innovators like you bringing technology in, but what’s it supposed to integrate with? It’s like a green cursor on a black screen or an amber cursor on a black screen. I mean, some of the tech is so old. And so, I know that you’re having to go in and blaze a trail in a place where, you know, in a space in an industry where technology is not as easily as embraced as it is in other places. So that’s another thing that you have to be proud of yourself for, because it’s another accomplishment, to be able not only to come into the American market, with all of the regulations involved, but also just all of the backwards technology that you’re going to have to overcome. And so you’ve really taken on something that’s enormous. You know, I have one last question. I have a young man on my caseload that I’ve been with for a very, very, very long time, and he’s severely, severely, severely autistic. But he’s even more severely intellectually disabled. I think the intellectual disability gets in his way more than the autism does. But, when he was much younger, he was very self-injurious. And he would hit his head against very hard surfaces, like floors, and roads, and walls and …
Zafer Elcik
Yeah.
Anne Zachry
… and so he was a head-banger. And, he would hit himself and he would hurt other people. And, it was because he couldn’t get his words out. And, when he would speak, people wouldn’t take him seriously, because he did a lot of scripting. So they didn’t listen to anything he said, even when he was trying to speak for real. And so, it got to the point where the behavior became his method of communication. And it took a long, long time; he had to be institutionalized to break him of that habit, and teach him to use his words again, and to get him to, you know, where he could be more functionally communicative without engaging in these violent behaviors. Unfortunately, in the course of all of this before I, you know … by the time I got involved with him, a whole lot of harm had already been done. And he had managed to, as best as we can tell, detach his own retinas from head-banging. So, now, he’s permanently blind.
Zafer Elcik
Oh, wow!
Anne Zachry
He hit his head so hard that he blinded himself, or at least that’s what the doctors are saying, because he just … all of a sudden, his retinas peeled off the backsides of his eyeballs and he couldn’t see anymore, and, so, you know, and it was after years and years of head-banging against really hard surfaces. And, his school would … they didn’t know what to do with him, so they would just put them in a seclusion room and leave them in there to whack his head on the wall for 45 minutes at a time. And, needless to say, there was a lawsuit. And, you know, we got compensatory services for him. But what we can’t do with him, now, is teach him to use a traditional AAC or any kind of device-based technologies where, you know, all these wonderful things like what you created, because he doesn’t have eyesight anymore. He can’t see the screen.
Zafer Elcik
Yeah.
Anne Zachry
And so, you know, we’ve had him evaluated by experts to help figure out what we can do for this guy, you know. And, he’s now my friend. I love him to death. He’s my sweet little lamb. He … I mean, I don’t have any behavior problems with him. But, here he is now, you know, as a young adult finally starting to say, “Okay, well, I think I want to have a life and do something with myself,” and the tools and the resources are so now limited for him because of the eyesight loss, because everything for autism was all about visual schedules and visual cues.
Zafer Elcik
Yeah.
Anne Zachry
And, you know … and I can’t do that with him. And so, what we’ve had to do is, I create tactile schedules for him where I take dollhouse miniatures, and I glue them on a great big piece of foam board. And, I make like a visual schedule, but instead of looking at it, he’s got to touch each item, and it moves through a progression so that he can, you know, follow the flow of what it is we’re going to do. And once he learns the routine – once he gets that ritual down – he knows the order of events, I don’t have to use the schedule with him anymore, because he already knows what’s coming. Now he knows the routine. But, to teach him new schedules, I would have to glue together $200 worth of dollhouse miniatures off of Amazon onto a piece of board to give him an idea of what was about to happen. And, what I’m not seeing … and so, I’m kind of putting it out there, hopefully you’ll … this is something you can think about … are tools for individuals with autism who are also blind or are deaf and have these sensory impairments on top of the autism that makes the typical solutions inaccessible to them. And just your your thoughts maybe of what you think might be a good way to go in terms of adapting a device for use with someone. Like, I can see if someone has hearing loss … hearing loss, you could do vibration. You could make the device vibrate …
Zafer Elcik
Yeah.
Anne Zachry
… in the absence of sound. But when for someone with vision loss, I don’t know how you replicate a visual schedule, other than to just audio record yourself, like in the voice recorder, you know, just speaking your way through it. I’ve done that, too. But it doesn’t seem to be as powerful as a tactile schedule. And I’m curious as to, you know, when I talk to developers, what do you think about that? What do you think could be done for someone who’s got multiple disabilitiees and the autism is just one of many?
Zafer Elcik
Yeah, it’s a nice question. Like, we also came across like, people with hearing disorders with autism, and so on. We try to make our product as much as accessible for that. I don’t know, literally, like, because we are not doing visual schedules. I don’t know, in specific people region schedule basis. But for the Apple devices, there is, like, assistive disability techniques. And I know that, for example, ProLoQuo2Go has a system. You can actually use the switches or you can … they will actually scan the screen with them. But, you need to teach them this assistive tech on the Apple devices to the kid. And, I believe it, we are also … there will be our apps right now. I can’t say we are 100% accessible for vision problems, or hearing problems and so on, but you can use that assistive settings in the settings in Apple devices. And, combined with that assistive settings with the apps like us or ProLoQuo2Go, or if you’re using a visual schedule app, you should reaching out to developers and saying them, like, “Could you implement assistive settings to our device on your app, because we are using it for for this, this this?” And, that’s the only chance I can see from my point of view …
Anne Zachry
That stands to reason.
Zafer Elcik
Apple has a great assistive settings for people with vision problems, as well as hearing problems. That’s because, if he or she can use them assistive techniques while using the device, apps also can be a part of it and you can use that settings in the specific apps, and you can just scan the screen instead of picking seeing regionally, and so on. You will see here what you, like, the device actually loudly saying that what they’re clicking, and they can actually talk thanks to that, while just memorizing what they were seeing. That’s doable and a lot of companies are doing but, yeah, it’s a one more additional step of teaching.
Anne Zachry
Is it like an API where you if you’re a developer, you could reach out to Apple and say, “Hey, we want to link in with your accessibility tools. What’s the code?”
Zafer Elcik
Yeah.
Anne Zachry
Okay.
Zafer Elcik
Yeah, it’s kind of an accessibility feature. You use that kind of specific codes in your app. At times, too, the Apple accessibility feature actually can be used in the app as well. The name is … or … you can use voice over, or you can use in the voice over settings. You have, like, Braille alphabet, as well as, like, the others. And also hearing devices can be connected to the Apple devices and you can use for specifically hearing disorders and so on. That’s because like, the settings if the app using that specific API or SDK, for just specific assistive technology settings, you can use it in the app as well. And Facebook, Google, using these APIs a lot. You can test it out there. You can see how they … how it’s working. And if you’re using one, we just schedule it out. You just reach out to developers and say what you want. That I believe in, so they will implement it in near future.
Anne Zachry
That’s a really good point. I know that one of the colleagues that I work with who I’ve actually have involved with this student in the past to teach independent living skills, she herself is blind. And she … her whole house is an Apple smart house at this point, because she’s become so dependent upon the Apple technologies to … as her accommodations …
Zafer Elcik
Yeah.
Anne Zachry
… but it’s interesting you would say that because the first time I introduced the two of them to each other, we met at a restaurant in the community that is entirely staffed by individuals with mental disabilities. And, we were there to meet each other – for him to meet her – and I went inside to go get the menu. And, there was a line! And, I had to wade through a sea of people before I could even get the menu to bring it back out to him and read it to him and ask him what he wanted. And my colleague had already looked up the menu on their website, and had her phone read it out loud to the both of them so that, by the time …
Zafer Elcik
Yeah.
Anne Zachry
… I got back outside with the menu, he already knew what he wanted.
Zafer Elcik
Yeah. Like, Apple devices are expensive, but Apple as a company, really pro assistive technology. That’s because, like, they devices are best in case for using that kind of technology.
Anne Zachry
Right, they’ve got the most experience working with this kind of stuff; they’ve been doing it longer. And well, it just for the for the benefit of our listeners who are hearing this conversation, I mean, here in the United States, if you if you’re on the autism spectrum, especially if you have other disabling conditions, other developmental disabilities, you’re also going to be eligible for services from Department of Developmental Services. And every state has a Department of Developmental Services. Now, again, federal regulations that come down from the top, just like special education law, but then how each state …
Zafer Elcik
Yeah.
Anne Zachry
… implements the federal regs varies from state to state. And so with Developmental Services, some states, the DDS is its own thing, and you just go to the DDS office and that’s who you deal with. It’s the state agency, and they have offices in different communities around the state. But in California, and in other states, it’s a little bit different, where you have what’s called regional centers. And, regional centers are non- … here in California, are non-profit organizations that contract with California’s Department of Developmental Services. And, their function is to provide anything that someone with a developmental disability needs above and beyond what any of the other generic agencies have to do. So, for example, for a child who’s in, you know, K-12 age, the school district is going to have the primary responsibility for meeting their needs in terms of publicly funded programming for people with disabilities. But if there’s anything that doesn’t have to do with school, like afterschool childcare, or social skills in a non-school setting, like a Boy Scout troop, or something like that, there’s services above and beyond what the school is obligated to do, those things fall to regional center. So, if a child gets an iPad with your technology – with Otsimo – loaded on it, for example, at school, that’s only for school. If they need to be able to use it to communicate with people outside of the school day, they need a second separate iPad that they keep at home and take out into the community, and that’s regional center. Because the school’s …
Zafer Elcik
Yeah.
Anne Zachry
… only responsible for what happens at school, or anything to do with homework, you know, anything that’s school related. But, if it’s beyond that, if it’s just life in general, now, you’re talking about regional center. And, for our individuals who have graduated from high school with a diploma or aged out of special ed, and now they’re young adults and they’re going out into the world, regional centers and the Department of Developmental Services are obligated to serve these people their entire lives, not just when they’re children. So, if someone is using an iPad with your technology, or ProLoQuo2Go or anything else, and then they’re no longer a public school student – they’ve grown up, they’ve gone on – but they still need that iPad with that technology on it to communicate with people, then they have to go back to DDS, or regional center, depending on how its configured in their state and say, “Okay, well, this is a life functional skill thing for me. This is an activity of daily living. If I don’t have this device, I don’t have a means of communicating with people.” And so, the laws very definitely protect their communication rights. And so, it falls on a different agency to purchase that equipment. It doesn’t automatically fall on the shoulders of the families to come up with all this money to buy all of this tech. There’s public dollars out there for it. Just, people need to know which agency to go to for which circumstance. If you’re talking about someone who is an adult who’s looking to get a job and needs to have this technology to communicate in order to be employed, well, now you’re talking about the Department of Rehabilitation, which is also federally funded and also regulated under the same bodies of law as special education law on a federal level. But again, every state does it different. Some states will roll their Department of Developmental Services and their Department of Rehab together as one solid agency that takes care of both of those responsibilities. Where others, like in California, DDS it’s its own thing and it’s got its regional centers, and the Department of Rehabilitation is a completely separate entity that you have to go to separate from everybody else and go ask for their help. And so, getting all of these different agencies that each may have an individual responsibility to one person can be a lot, but any one of these agencies could end up having to finance the technology, the communication device and software, that these individuals would need. And so, I’m just putting it out there not only for you, but for our listeners, that there’s more than one way to get the job done, and if one avenue is not appropriate for an individual, there may be another avenue that is, and that could still make your technology accessible to people outside of just the schools, even if they can’t afford to buy it personally. And so, I just, you know … Yes, I want my families who can afford it, they can just go straight there and get it. It could even be something they could get reimbursed on by the schools, if they buy it themselves because the schools haven’t given them anything appropriate, and that ends up working for them. And so, there’s a lot of different ways here in the United States where families can access these tools, including your technology, even if it’s not through the public schools.
Zafer Elcik
Yeah.
Anne Zachry
There might be another way to do it. So I just wanted to put that out there. Have you worked with any other agencies other than the school districts out here?
Zafer Elcik
Not yet. But we will like to working with agencies and so on. Right now, we are on track to complement …
Anne Zachry
I think what I’m going to do is I’m going to share your information with, here in California, we have First5, which is an early childhood intervention program, separate from the schools, but it works with them, sort of, but it’s separate. And, it is all early intervention. And, very often they’re the ones making the referrals.
Zafer Elcik
Yeah, that would be awesome.
Anne Zachry
Yeah, they’re the ones often finding out, especially when you’re talking about children from low-income, non-English-speaking families, immigrant families … they don’t know what to look for necessarily, or, even if they see something’s up, they don’t know what to do.
Zafer Elcik
Yeah.
Anne Zachry
Very often, First5 will be the one that catches it and makes the referrals and gets these kids into the appropriate supports and services. And so, this is the kind of stuff that they’re going to want to know about. So I’m very definitely going to share it with them. And, then I’ll also have it on our website and everything and I’ll put it out there on our social media.
Zafer Elcik
So, I forgot to mention we have also a Spanish version, as well.
Anne Zachry
Ooooh!
Zafer Elcik
Many families are using our apps in U.S., is reaching out to special education.
Anne Zachry
Oh, that’s huge. That’s enormous to know. I’m excited to see what your project is going to be doing as it expands use through here in the United States, and as it evolves over time. I’m going to be putting links to it on our … on this … the post for this podcast. Wanted to ask me about anything?
Zafer Elcik
No, thank you for your time. Like, it was a nice coffee talk with you. Like, I haven’t imagined that, like, we are going to talk in this prophetic situations, and how I am thinking about it. It was nice questions. It was the one of the best questions I ever ask. Thank you for that and thank you …
Anne Zachry
Oh, of course! Thank you!
Zafer Elcik
… for your time and showcasing our product, as well as me. Happy to see you in two years, three years after this podcast, out with the new products focusing on adults on spectrum. That will be really awesome!
See how disability rights advocacy and smart device-based interventions can put evidence-based practices into the hands of the people, regardless of whatever rules and regulations may apply (or not) where they live.
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In this video, Anne summarizes how the IEP process is supposed to work in the first place, then how that process applies to students with special needs in preparation for returning to school in the Fall 2021 semester following pandemic-related school closures.
Parents can get the information they need to successfully advocate on their own in many situations. If you are dealing with complex violations of the law and need extra help, Anne explains the types of services and referrals we provide to parents and colleagues to help solve these kinds of problems.
Don’t start next school year without a strategy! We’re here to help.
On July 22, 2021, The Lancet published an article by Adam Hampshire, et. al., in which the findings reported that COVID-19 causes long-term cognitive impairments among many of those who have been ill with it, particularly those who have been hospitalized with severe forms of the illness and those diagnosed with COVID-19 but not hospitalized. I won’t rehash the entire article here. Follow the link to read it for the details.
In today’s post/podcast, I’m summarizing the findings of this body of research and discussing their implications for the special education community. First, let’s look at what the cognitive impairments caused by COVID-19 can look like, and then we’ll talk about what this means for the special education community.
This research by Hampshire and his team specifically found: “[The] results [of this study] accord with reports of ‘Long Covid’ cognitive symptoms that persist into the early-chronic phase. They should act as a clarion call for further research with longitudinal and neuroimaging cohorts to plot recovery trajectories and identify the biological basis of cognitive deficits in SARS-COV-2 survivors.”
So, basically, there is evidence to support that if a person gets sick with COVID-19, they can experience cognitive impairments that last a long time, perhaps permanently, and further research is needed to understand the long-term consequences of millions of Americans having their cognitive functioning reduced by COVID-19. For our kids about to go back to in-person learning, the questions become about whether they will end up subjects in that research after getting COVID-19 and experiencing cognitive impairments, and what will be done to benefit them if they are affected in such a way.
The symptoms, specifically, were reported by Hampshire and his team as: “… colloquial reports of ‘brain fog,’ … low energy, problems concentrating, disorientation, and difficulty finding the right words.” Further, there is evidence that “… COVID-19 patients can develop a range of neurological complications including those arising from stroke, encephalopathies, inflammatory syndrome, microbleeds, and autoimmune responses,” any of which can cause brain damage or impairment.
As children face returning to school as the Delta Variant of COVID-19 rages through unvaccinated populations, including children under 12 who are not eligible for vaccination, all parents in their right mind are worried about their children getting sick. The risk of long-term cognitive impairment during the critical learning years of child development and/or permanent brain damage are now yet more reasons for parents to want to keep COVID-19 far, far away from their children.
The sad reality is that a lot of children in areas of the country with low vaccination rates, many of which are communities compromised by poverty and reduced access to resources in the first place, are going to get COVID-19, and a fair number of those that survive are going to experience cognitive impairments as a result. This means a whole new cohort of children entering special education who otherwise would not have required it, thereby increasing the special education burden of every local, state, and federal education agency.
For those children already on IEPs who get sick with COVID-19 only to be further cognitively impaired by it, we’re going to see changes in their present levels of performance that make their current IEPs no longer appropriate to all of their needs. They are likely to experience regression and an increased need for supports and services in their IEPs, meaning yet another increase in the burden on local, state, and federal education agencies.
This is, of course, preventable with appropriate safety measures. The problem is that we have some local and state leaders doing everything they can to spread the disease, banning mask mandates in our public schools, for Christ’s sake! We have millions of unvaccinated children expected to co-mingle in crowded spaces that will become super-spreader sites that induce cognitive impairments among the students who are there for the purpose of enhancing their cognitive abilities.
And, it’s the same conservative leaders who are pushing to ban mask mandates in schools who will refuse to fund their students’ special education services when they come back to school with cognitive impairments later on. Parents can fight together now to prevent their children from becoming cognitively impaired, or at least more impaired than they already are, by pushing for appropriate safety measures in our public schools, or a smaller but significant number of them can fight later on for special education services for their children who experience “Long COVID” and resulting neurological impairments.
Aside from the obvious lingering health problems that children who experience and survive COVID-19 can have, which will require ongoing care that parents previously weren’t having to provide, there are the added complications of learning problems that will require parents to exhaust themselves further to pursue. Special education was already falling grossly short of the mark, but we’re now in the process of creating the next large population to blaze a litigation trail across the judiciary with special education cases: COVID-related impairments.
As it stands, regardless of the symptoms, if a student who survives COVID-19 ends up with long-lasting health and/or cognitive problems that interfere with access to learning, the fact that it’s the result of COVID-19 could cause that student to meet criteria for “Other Health Impairment (OHI),” under special education law [34 CFR Sec. 300.8(a)(1)]. It’s not like a new eligibility category would need to be created.
The special education world went through similar chaos during the 1990s when Attention Deficit Hyperactivity Disorders (ADHDs) first became understood and widely recognized as an actual set of conditions. The University of California, Los Angeles (UCLA) ran a great big study on ADHDs. I remember attending a panel discussion by individuals who had participated in the study back in the day.
Back then, ChADD (Children with Attention Deficit Disorders, as it was known back then), was big on the advocacy scene while litigation went forward in the courts to determine if kids with ADHDs were eligible for special education. The ultimate outcome was that there didn’t need to be a separate eligibility category for ADHDs because they were captured by either the Specific Learning Disability (SLD) or OHI categories, depending on how each affected child experienced it.
Back in the early 1990s, I went to a speaking engagement at which the founder of ChADD, who was also one of the parents taking this landmark litigation forward, described the favorable outcomes the litigation had achieved, but also how awful it was to have to go through all of that and how vindicated his family felt in the end, particularly his child with ADHD.
I see the same thing happening here with kids who will be disabled by COVID-19 to such a marked degree that they require special education and related services in order to access education, and kids who already needed special education who will now become even more greatly compromised than they already were after surviving COVID-19. Plus, I see this happening the most in the states and locales least likely to protect their children against COVID-19, which are also the states and locales least likely to comply with special education law.
Far right politics have undermined the success of special education at the local and state levels since special education law was created. In fact, the laws that protect our children with special needs were created in response to these far right political efforts to deny them access to education. The situation has literally become life with permanent disability or death for far too many of our children, and still the public scrutiny on the right wing fuckery that goes on in public education has not become intense enough to change the broken system.
How much more broken will the system become when it has killed a percentage of its students and permanently disabled yet another percentage who will now require special education when they didn’t before or who will now need more intensive special education above and beyond what they were previously getting? At what point in the future will all of the associated costs created by neglecting our kids now finally matter enough for the tax-fattened hyenas that are undermining public education from within to realize it’s in their best political interests to actually protect and educate their students?
Political extremism in any form will derail the most sensibly created system, but public education was not sensibly created for the present times and the political extremism has always been part of it. Many have the misconception that public education stopped serving as an arm of the Patriarchy once it became a female-dominated profession. But, there is nothing professional about a bunch of “Karens” sitting around a table passing judgment over a single, low-income mom of color with a kid who has a mental health disorder and related behavior problems instead of helping her and her child.
Thankfully, the field is changing and we have more scientifically-minded people entering special education, but there are still a lot of the old cronies hanging in there for as long as they can before grabbing their pensions and running off into the sunset, leaving all kinds of poorly educated, if not traumatized, children in their wake. This country is going to through a reckoning in which ethics and the rule of law are at the heart and soul of it all. Ethics and the rule of law have always been the heart and soul of special education disputes, and I can only see what is happening on the national level as an expansion of what I’ve been fighting for the last 30 years.
The thing that also is getting lost in this debate is the impact of “Long COVID” on teachers, specialists, and administrators. How does inducing cognitive impairment among a public education agency’s personnel serve the public good? How is that an appropriate employment practice for any employer? Why are we willing to impair the minds meant to sharpen the minds of our children? How is this self-preservation as a species?
As a tough old broad who has already seen the kinds of bullshit these people can pull, and given how much bullshit the American public is starting to realize can happen within our supposedly democratic government based on what is now coming out about the 45th President’s attempted soft coup d’etat following the 2020 election, I don’t think I’m being hyperbolic or alarmist when I point out the travesty we’re creating for ourselves in increased special education expenditures by failing to prevent childhood cognitive impairments as a result of “Long COVID.” I’m hoping this message isn’t falling on deaf ears.
Christine Priola, OT, on the right in the Vice President’s Office of the Senate during the January 6, 2021 insurrection at the Capitol in Washington, DC
On January 6, 2021, a group of people, radicalized by false propaganda generated by the 45th President of the United States and his co-conspirators, attacked the United States Capitol with the intent to kidnap and/or murder members of Congress and the Vice President. This is an event that will live in infamy for so long as America remains a nation, and be blamed for it if it does not.
I’ve been working in special education advocacy, helping parents protect their children with disabilities from physical, emotional, and educational abuse/neglect by the public sector, primarily the public school system, since 1991. By now, you would think there’s nothing new for me to see when it comes to all the ways that adults can do wrong by those among us with disabilities. Clearly, I was wrong.
These recent events at the national level have left me with a whole new set of concerns that I believe are important to talk about, right now. Not the least of these concerns is the fact that a profoundly mentally ill president, along with his pathologically self-serving sycophants, exploited the suffering of some Americans with mental illness and the unfounded sense of entitlement experienced by other Americans with mental illness.
In the end, it’s a bunch of people with mental health issues frenzying like piranha at the smell of blood in the water and taking down the rest of us with them. The inmates are literally running the asylum, right now, and the survival of us all rests on the shoulders of those of us intact enough to realize what is happening, and equipped to deal with it.
For the last 30 years, it’s been my observation – and one I’ve repeatedly shared – that there are individuals employed within the public education system who believe children with disabilities are expendable and unimportant. In a sea of deprived students in general, special education students are uniquely further deprived because of their disabilities.
It’s been my observation that these individuals see their constituents – in this case, our children – as a means to their own personal financial ends, and nothing more. When the costs of educating these constituents increases due to disability, they become a hated burden to those looking to profit off them.
It’s not like the public education system is doing that great by any of our kids, right now. It’s just that problems that impact education in general tend to have a magnified effect on our kids with special needs. Public school officials will say things like, “My heart is bleeding for your child. I wish there was something I could do,” when there’s totally something they could do. They just don’t want to pay for it, which is unlawful.
Special education laws would have not become necessary back in the 1970s if it were not for the fact that people who do not believe in science or law were already employed in positions of authority within the public education system and engaging in unconstitutional conduct towards children with disabilities at that time. The public schools would refuse to enroll these students at all or, even if they did, let them languish in general education classes until they dropped out.
In spite of compulsory education laws, back in the day, it was totally okay to drop out of school if you couldn’t keep up with the instruction and nobody would come after you for truancy. This was what happened to a lot of people with relatively mild challenges, like learning disabilities, who ended up reaching adulthood functionally illiterate and unable to find gainful employment except as factory workers, coal miners, and all the other dangerous jobs that don’t require academic skills, in spite of their normal intelligence.
I provided adult literacy instruction to this population at a local vocational/technical college as a young adult in Arkansas. I’ve met these people. I’ve seen this play out, first hand.
This has led to a class of individuals who have increasingly lost the ability to support themselves, as robots take over dangerous jobs that don’t require real thinking. While the laws that passed in the 1970s were the right place to start, it’s foolish to think that enough has changed since then that the system isn’t still biased against kids with special needs. If things had changed, I’d have worked myself out of a job a long time ago.
The public education system is biased against any kid who isn’t white, male, and expected to inherit property upon reaching age of majority. It was created in its present form during the Industrial Revolution and hasn’t changed much since.
For the longest time, public education agency administration was male dominated while the teaching staffs were female dominated, putting men in authoritarian control over women employees. Teachers unions grew out of the very real discrimination and abuse of women in the public education workplace by their male “superiors” around the same time that unions gained popularity among the laborers working ot inher dangerous jobs in factories and mines.
Students, however, have no collective bargaining power. Even though they are the reason the system exists, they are the last individuals served by it. They get whatever leftovers are left after public agency administrators bleed their agencies dry with undeserved six-figure annual salaries while teachers are buying classroom supplies with their own money. Students are just an excuse for politicians to pay themselves.
So, the idea that discrimination and abuse do not manifest in the public education sector is plainly inaccurate. There are mountains of evidence to the contrary, my caseload being only one such mountain. The judicial and legislative history of special education law is not the total point, here, but it’s relevant in that it establishes that bad actors in public education have made it necessary to regulate public education to control for their inappropriate behaviors.
The evidence of bad faith in public education has been documented in the courts long enough that I don’t have argue it, here. That’s a done deal. So, when someone tells me they are worried about child welfare at the hands of government officials, I have to say, “Me too! That’s why I’m a child and family advocate.”
However, now when someone tells me they are worried about pedophiles in public education, I have to do a double-take and ask, “Why?” That’s only because of the whacky Q-Anon and similar conspiracy theories, now going around about Satanic cannibals molesting and trafficking children.
It’s not that human trafficking isn’t real or horrible. It’s that there is zero proof that it’s being perpetrated by the people these conspiracy theorists are targeting.
There is proof, however, that the 45th President was pals with a known, convicted pedophile and wished this pedophile’s co-conspirator well when she, too, got arrested. He’s also been accusing of raping a 13-year-old who was made available to him by this same duo of pedophiles, but these conspiracy theorists are not going after him. They think he is the champion of their cause, which defies logic in every possible way.
Even if the allegations of child rape cannot be sustained against #45, he’s sexually assaulted plenty of women and bragged about it on the record. How he’s become the champion of a human rights cause given his history of sexual assault and his policies regarding the children of lawful asylum-seekers at our borders is beyond me.
We have all seen news stories of the occasional teacher, aide, specialist, or administrator who gets busted for sexual relations with their students. It’s not that pedophiles are not employed within public education; we know some have slipped in and we do a poor job of screening them out, often only finding them after the harm has been done.
The more important point is that a ring of cannibalistic pedophiles do not run public education. The average school district administrator doesn’t come anywhere near actual children. They don’t appear to care for the company of children; they just want to exploit them for public dollars.
While I don’t doubt that there are people employed in public education administration who would gladly traffic in humans if they thought they could turn a profit and get away with it, that’s a whole lot of work to make happen within the public education system and not get exposed. It’s easier to milk the broken system as it is without taking on that risk. They can get rich by lazier means than selling their students into slavery.
As soon as someone gets caught engaging in pedaphilia with students in the public education setting, most school districts are the ones that call the cops. If school district administrators come to an accused educator’s defense, it’s either because the educator was wrongfully accused or because the administrators don’t want to be held accountable for the fact that they let a pedophile come work for their public education agency, so they’re trying to convince everyone that they didn’t.
It’s not that public education isn’t being run by a pack of corrupt jackals. By and large, like local police departments, local school districts get away with as much as they do because they only answer to their local constituents, most of whom don’t know how to monitor and audit a school district on an ongoing basis for compliance issues. Jackals are in gross abundance.
Even the most ethical educators can be corrupted once they are promoted into administration, and I suspect most of that is economics. Once they start getting that six-figure annual salary, they start buying nice houses and cars, putting their kids through college, and going on expensive vacations. That quickly creates debt.
If you have a six-figure income, you can pay that debt, but if you lose that income and can’t replace it fast enough, you’re quickly screwed. This is how good educators get pulled into the Dark Side of the Force when they accept promotions into administration. It’s the rare pure soul that sees what’s really going on and refuses to be manipulated that way before it’s too late.
The overarching problems I see in public school administration are about money, not pedophilia or cannibalism. I’ve yet to encounter cannibalism, actually, but it’s only January 2021, so let’s see if this year tops last year for the most disgusting conduct to be revealed among public servants for the whole world to see.
What prompts me to discuss this, now, is the recent resignation of Christine Priola, an Occupational Therapist (OT) from Cleveland Metropolitan School District, one day before she participated in the January 6, 2021 insurrection against the American government. Ms. Priola occupied the Capitol building with other insurrectionists and was photographed in the Vice President’s office as part of the occupation.
In her resignation letter, Ms. Priola, who is currently out on bail pending trial, stated she was leaving her job as an OT for the District’s special education department for three specific reasons:
She refused to take the Corona virus vaccine before returning to in-person learning;
She disagreed with paying union dues because she believes that money is funding abortions; and
She’s embarking upon a fight against child trafficking by government agencies.
So, I’m going to pick these apart one by one, first, and then get into the rest of it.
First, it’s unclear if Ms. Priola is an anti-vaxer opposed to vaccines in general, is against the current Corona virus vaccine because it was rushed to market so quickly and she questions its safety and efficacy, or just resents being told she has to take a shot before she can go back to work. Maybe it’s a combination of those things.
We don’t know why she was opposed to the vaccine, so I can’t automatically lump her onto the science-denying anti-vaxer wagon with this limited amount of information, though her overall behaviors incline me to suspect that she could be an anti-vaxer. Because she’s an OT, which is a scientific discipline that functions within the medical and educational realms, I don’t want to assume too much, here. However, science is a fact-based discipline and Ms. Priola has not be operating according to facts.
When we look at her second objection, the total absence of logic casts an unfavorable light on the first objection, even further. How union dues, which pay for the administrative overhead of each union’s operations, somehow funds abortions makes no sense.
The district may withhold those dues from educators’ paychecks, but there is an audit trail that shows where that money goes. If you’re worried about where the money is going, you do a request for public records asking for the accounting details and turn them over to a grand jury if you find that the money is being misappropriated.
The rule of law already provides a remedy for the misuse of public funds. You don’t raid the Capitol with the intent of hanging the Vice President to death to resolve issues such as these.
The idea that the rule of law had collapsed to the point that it was ineffective cannot be argued, here. Ms. Priola did nothing on record to resolve the issue with where her union dues were going before resorting to the violent overthrow of the government and an effort to assassinate the Vice President.
The government already had a legal remedy that she chose not to access and the “remedy” she opted for instead did not fit the situation. This strongly suggests disordered thought. It also, however, goes to the degree to which legitimate remedies to harm done are often inaccessible to everyday Americans because they can’t afford to lawyer up every time the government shirks its responsibilities and hurts people. When the appropriate options are closed off to people, they are only left with the inappropriate ones.
This is where peaceful protests for changes to the rules become such an important part of democracy, none of which involves insurrection or execution. Insurrection as a more expedient option to litigation speaks to the degree to which the legal system is often unavailable to most people because of the associated costs, but it’s not a valid excuse for what Ms. Priola has done. Ease of access to remedy may have made it less likely that she wouldn’t have done something literally insane, but that’s speculative at this point.
The third justification for resigning given by Ms. Priola was that she’s embarking upon a fight to protect children from abuses by government employees. On it’s face, I can’t take issue with that because I’ve been fighting to protect children with disabilities – the same students Ms. Priola served as an OT – from abuses within the public education system for the last 30 years.
Very often, though, I’m protecting them against people like Ms. Priola who are so divorced from science and, therefore, reality that they engage in violations that require me to file complaints with regulators. Again, the rule of law provides a remedy. The difference between Ms. Priola’s efforts to protect children and mine is that I use science and law to protect my babies. She’s trying to kill the members of Congress most likely to help her protect children from the real predators.
I’ve never had to violently overthrow a government agency or hang anybody to protect a child from government employees. Has the rule of law let my babies down, before? Yes, in hugely significant ways. Has the rule of law protected my babies when I’ve pursued enforcement of it? Yes, more often than it has not. It’s not a perfect system, but insurrection on behalf of the people responsible for undermining it is not going to fix anything.
And, it’s not like I haven’t seen evidence of child trafficking in government agencies. I have, just not in public education. Specifically, I’ve been working on a separate justice project with our organization’s founder, Nyanza, to address the egregious over-incarceration of African-Americans in Oklahoma that dovetails with what may be State-sponsored child trafficking.
Based on the publicly available research data we’ve gathered to date, it appears there may be an orchestrated mechanism in place in which officials in the State of Oklahoma incarcerates people of color and remove their children from their homes through the Child Protective Services (CPS) system, only to place these children in privately owned foster care facilities and/or adoption agencies that operate for profit.
It appears that at least some of the foster care and adoption agencies in Oklahoma that participate in this dynamic are owned, at least in part, by State officials responsible for passing and enforcing the laws of Oklahoma, from which they profit. It should be noted that Oklahoma’s CPS system was found to have been responsible for the death, rape, and maiming of many children processed through this system via a federal class action lawsuit that resulted in a consent decree that is not being properly enforced.
CPS employees have come out as whistleblowers to advise that the “proof” of compliance with the consent decree is falsified information and Oklahoma isn’t taking this federal court consent decree as anything other than one more thing to lie about. It should also be noted that all of the individuals involved in these behaviors appear to be Republicans, or they were at the time the data we collected were gathered.
From what we’ve seen so far in our data, it appears that Oklahoma lawmakers and judges are incarcerating people so they can steal their children and sell them for profit. If true, that’s a legitimate State-sponsored human trafficking ring that needs to be shut down immediately. But, it isn’t a Satanic group of Hollywood actors and Democrats eating and raping children.
While this possible human trafficking ring has not been investigated as such to my knowledge, thus far, it’s one of those things that can’t last forever without someone getting caught. Nyanza and I are working to get enough evidence together to get the situation investigated, and she’s been filing documents this whole time, but that’s how you address these things. We are availing ourselves of the mechanisms of our imperfect, but better than anarchy, democracy to fix this heinous problem. Whatever is responsible for Oklahoma’s ridiculous incarceration and CPS numbers is a problem that needs to be fixed, regardless of what it is.
This is painful because we know of families suffering horribly because of what is currently happening until this gets resolved, but justice can take time. I’ve learned that lesson from 30 years of working cases from IEP meetings all the way up to the 9th Circuit Court of Appeals, and you don’t always win. But, you always make a difference, even when you lose on some technicality. I’ve had cases where we lost on an issue, but just barely. The involved districts knew the next time they pulled the same stunt, they wouldn’t necessarily get lucky again, and have changed their practices as a result.
What I’ve learned from relying on the rule of law to address failures of the system is that you have to look at things in the aggregate. It becomes a measure of how many things I’ve prevailed on versus how many things I have not, and I’ve prevailed on more things than I haven’t. Overall, my work is highly effective. On a day-by-day basis, it’s a mixture of resolution and being obstructed by law-breaking public servants.
You have to get to the point where you can identify when it’s time to negotiate and when it’s time to collect evidence and file a complaint of some kind. We have processes and procedures already to address all of the concerns raised by Ms. Priola’s resignation letter, none of which involve insurrection and execution of elected officials.
So, having said all that, now I have to turn to the issue of people who think like Ms. Priola who are still employed in public education. I first have to say that she may be in the minority, but we don’t know how large or small that minority is because they have not been outspoken within the public education context, thus far.
Further, because I have been dealing with disordered thought on the part of school district personnel that results in harm to children for the last 30 years, I’m willing to believe that people whose thinking is as impaired as Ms. Priola’s appears to be are still deeply rooted in special education, right now. Whether their disordered thought makes them vulnerable to Q-Anon and similar propaganda or not isn’t anything I can answer. But, Ms. Priola’s departure from science in spite of her scientific training is consistent with much of what I see in special education when things go wrong.
What this really comes down to is a concern that I’ve had for years and have spoken about with colleagues, but we haven’t really figured out the most appropriate way to address it. What is happening now and the national dialogue around it may have finally opened a door to deal with this issue, and that issue is the societal impact of having so many members of our population who are apparently incapable of logical thought when it comes to abstract concepts like justice, democracy, and fascism. And, it circles back around to the quality, or lack thereof, of our public education system.
One of the tools I regularly use, or request that it be used, in special education is a standardized assessment called the Southern California Ordinal Scales of Development (SCOSD). The history of what led to the SCOSD’s creation is a story unto itself, but suffice it to say that it is a scientific way of measuring all the different domains of development according to Piaget’s stages of development.
The SCOSD breaks development down by subtest into cognition, communication, adaptive abilities, social-affective functioning, and motor skills. It is possible for an individual to function at a higher developmental level in one area than other areas. Each person’s outcome on the measure paints a picture of their relative strengths and weaknesses across the developmental domains. When working with children and young adults with developmental disabilities, this becomes important to designing effective programs for each of them.
What I’ve come to realize from the data I’ve seen produced by the SCOSD over the years is that it is possible for someone to have age-typical cognitive and communication skills, but then have below age-typical social/emotional functioning. What this means is that their emotional development is delayed while their abilities to acquire academic and job skills are intact. They can emulate adult behavior, but their motivations are child-like because of their delayed social/emotional functioning.
When otherwise intelligent people get whipped up into an emotional frenzy over things not supported by any credible evidence, this disconnect between intelligence and social/emotional functioning is apparent. When otherwise intelligent people argue against evidence that they did something incorrectly, this same disconnect is again apparent.
This disconnect is what I’ve been fighting over the years more than anything else. Any reasonably intelligent and socially/emotionally intact person would not engage in the kinds of crap I encounter in the public education system. Most of what I encounter in the public education system is the consequence of ineptitude, not a cabal of cannibals.
If any kind of cabal exists in public education, it’s the same one currently running the American Presidency into the ground. All of this makes me think of the right-wing folks in Orange County, California, who started a non-profit membership organization, self-described as a “brotherhood,” of school district officials who would all pay membership dues and then use that money to finance legal battles against parents of children with disabilities.
It also makes me think of Lozano Smith, a law firm that infamously (within special education circles) got eviscerated by a federal court judge after trying to lie, cheat, and steal in a special education due process appeal. The firm, the responsible attorneys, and the district it was representing all got sanctioned for jerking everybody, especially the court, around with their lies.
All of the firm’s attorneys were ordered to participate in additional ethics training, in addition to the reprimand and sanctions meted out by the court. At the time, Lozano Smith had over 200 attorneys on staff statewide throughout California. Shortly thereafter, most of them jumped ship and went to different firms or started their own firms. It’s quite reminiscent of what we are seeing in Washington, DC, right now, as cabinet members and other high-ranking personnel turn their backs on the outgoing President in the wake of all the destruction and death he has caused.
Lozano Smith is still around, but I haven’t encountered them in the field in several years. The last big thing I saw from them was in 2013 when my colleague, David Grey, prevailed on a case at the 9th Circuit against two school districts engaging in the same violation of the Americans with Disabilities Act (ADA). At least one of the involved districts filed an appeal to the U.S. Supreme Court, but it was shot down; the Supreme Court declined to try the case.
When the Supreme Court appeal was first filed, Lozano Smith, which had been uninvolved at that point, wrote an amicus brief that looked like something that could have been produced by Sidney Powell and Rudy Giuliani. It made nearly hysterical arguments about how the 9th Circuit’s interpretation of the ADA would undo decades of precedent within the public education system, as though decades of an established practice of discrimination should be maintained.
The point is that the conservative “fringe” has never been the “fringe.” To quote Stephen Colbert, “Lunatic fringe? There were tens of thousands of people in that murderous mob. The day after the riot, a poll found that 45% of Republican voters backed the attack on the capitol building. That’s not a fringe! That’s almost half the outfit! If you wore a suit that was 45% fringe, you’d be arrested for public indecency! But at least we’d be able to see through your pants to know you don’t have any balls!“
Based on how scholars look at the political spectrum, conservatives have gone further and further to the right towards radicalization as the left has remained predominantly centrist. The far right looks at centrist politics and mischaracterizes them as the “radical left.” Democracy is not the radical left.
Conservatism is no longer part of democracy in this country; it’s become a movement towards dictatorship in which 45% of the population believes it needs to be led by the nose by a demagogue. When left to think for themselves, these individuals run towards authoritarianism, thinking these leaders understand their needs and will fight for them, rather than exploit them to help take over and then kick them to the curb when they no longer serve a useful purpose.
It’s my suspicion that, once the people who participated in the insurrection realize that the 45th President will let them rot in jail for taking up his cause while he claims to have nothing to do with any of them, his base will finally get the backstabbing that has been coming their way this entire time and will realize he’s not in their corner like they thought. We can at least hope getting stabbed in the back will have this effect.
We’re going to have to watch the prosecuted go through this epiphany over time as we try each of their cases one by one. The stories we’re going to hear from these people are going to reveal legitimate unmet needs, impaired problem-solving skills, and exploitation of those factors by Republican terrorists looking to radicalize them.
Those of these defendants with the mental wherewithal to realize they’ve been played and the emotional stability to own it will turn on those who exploited them, as have many former allies of #45, such as Michael Cohen. Those who don’t have the emotional stability to own the fact that they made a mistake in judgment will continue to assert they’ve done nothing wrong and describe themselves as political prisoners rather than criminal insurrectionists and traitors.
In the minds of the insurrectionists, as they’ve reported themselves, they were responding to the call of their President to defend democracy. If that’s what you’re really doing, defending democracy isn’t bad. But democracy relies on the rule of law. You defend democracy by participating in it and putting its mechanisms into constructive use, not trying to overthrow it.
If our democracy is not working for all of the people – and people of color, indigenous people, LGBTQ+ people, women of all stripes, and people challenged by disability can attest that it has not for a very long time – we need to fix it. What boggles the mind is that now that groups made up mostly of white males in this country are finally beginning to experience the lack of undemocratic entitlement and advantage they’ve historically known, their response to advocate for themselves is to engage in insurrection. This means that what they want is nothing a true democracy would ever give them, and that tells you all you really need to know about them.
There is absolutely a silver lining in all of this, and I rely on Applied Behavioral Analysis (ABA) to inform that determination. In ABA, there is a term that I’ve discussed in previous posts called “Extinction Burst,” and that’s part of what we are looking at with the current state of things. In an Extinction Burst, a behavior that had previously been reinforced is no longer being reinforced, and the organism tries to force reinforcement to come by escalating its behavior.
Think of it this way: If, every day, you put money in a vending machine and a candy bar comes out, the candy bar reinforces the behavior of putting money into the machine. But if, one day, the candy bar gets stuck and won’t come out of the machine, what do we do? Walk away sad? No! We beat on the machine in an effort to make the candy bar dislodge and come out.
That’s an Extinction Burst. If the candy bar dislodges and comes out, it reinforces the behavior of beating up the machine. If beating the machine doesn’t work, then you walk away sad. After than, you’re less likely to use the machine again. If you stop using the machine altogether, the behavior of putting money into it becomes extinct.
What is happening in this country with the radicalized right is an Extinction Burst. Behaviors engaged in by the right wing that were previously reinforced are no longer being reinforced. The behaviors of the 45th President, his co-conspirators, and his followers over the last five years, leading up to January 6, 2021, and what may still yet happen as the 46th elected President takes office, have been an extended Extinction Burst.
The most important thing about an Extinction Burst when you’re trying to extinguish an inappropriate behavior is that you cannot allow it to produce the reinforcement being sought. If you want someone to give up on the candy machine, there can be no way to beat the machine until candy comes out.
We want the radical right to give up on trying to destroy democracy, so we cannot allow their behaviors to result in the reinforcement they are seeking, which, here, is to remain in power regardless of the will of the people. This includes holding them accountable according to the letter of the law. That’s what I’ve been doing in my niche of governmental accountability for the last 30 years and it’s the only way to preserve democracy going forward.
The other silver lining, here, is that in spite of all their efforts to overthrow democracy, it’s our democracy that will ultimately prevail. When we apply the rule of law to what they have done, democracy will have the opportunity to defend itself.
What saddens and scares me the most is the number of people whose developmental weaknesses and mental health conditions are being exploited by the right wing to radicalize them into becoming domestic terrorists while convincing them they are upholding American principles through their terrorism. When we talk about the mental health problems in this country, we tend to point to homelessness and addiction issues, like this is the only way they can hurt us.
As an advocate for people with disabilities, I am torn between being sad for and fearful of these individuals. On the one hand, we absolutely need to hold them accountable under the law. But, we prove the point that the system is skewed towards specific demographics when mentally ill right wing radicals suddenly get criminal consequences and nothing to address the real-world problems that they couldn’t solve that propelled them into radicalism.
In the end, once again, it’s people with disabilities being used as political pawns by self-serving, undeserving, overpaid public officials looking to line their own pockets with taxpayer dollars as part of a grift. This is something I know all too well in special education.
I’m willing to believe, in light of the evidence thus far, that decades of special education failures have produced an entire class of emotionally disturbed adults who are still vulnerable to the manipulations of public officials and that Ms. Priola and many of her compatriots are among them. I’m also willing to believe, in light of the evidence thus far, that the people manipulating them are just as mentally ill; they just have money and power.
I will never pretend to have all the answers, here, but I do know a thing or two that can help. All of us do. We need to weave our efforts together to repair the fabric of our country and make it stronger than it was in the first place. It’s not impossible. This country’s founding was far more difficult than its current preservation and we can do this.
“Fascism” is a scary word that is far too often slung as an insult by people actively engaging in it who don’t understand what it actually is. In today’s post/podcast, I want to talk about what fascism actually is and how it shows up in all aspects of public agency functioning, but particularly how to recognize it in special education.
Unfortunately, these days, there are no better angels to appeal to within many public agencies, including public education agencies. It’s not that the entire barrel of apples is spoiled, but enough of it is that the good apples either leave or go bad, too.
Bureaucrats accustomed to gaming the system for their own financial gain at the expense of children with special needs have historically engaged in some pretty unscrupulous behaviors over the years, but they just could not resist the opportunity to exploit the pandemic to advance their self-serving agendas. They’ve become experts at seizing upon opportunities to escape/avoid their job responsibilities while still collecting their government paychecks.
For far too many individuals, employment in public service has become a form of welfare fraud, only public agency employees get more free government money and perks in exchange for nothing than actual welfare recipients, who have to perform for the pennies on the dollar they receive by comparison. In California, for example, the average special education director is paid around $125K per year plus benefits with support administrators each being paid around $100K per year at taxpayer expense, regardless of whether their students receive educational benefits or not.
So, how does that relate to fascism? And why is it such an inflammatory word when it simply describes a frame of thought?
My theory is that either the people who find the terms “fascist” and “fascism” inflammatory are engaging in fascist behaviors and don’t want to be called out on them, or they don’t actually understand what fascism is and that they are actively engaged in it, thereby simply taking it as an insult. So, before we start talking about the fascists that have been employed in local government over the last 100 years, lets first arrive at an understanding of what these terms actually mean.
Before we can talk about what fascism is, we first need to talk about what our democracy is supposed to be. The most basic summary of American democracy is that it is a system governed by the rule of law, which is created by legislators elected to represent the interests of their constituents wherein the majority rules. Being ruled by laws of which no one is above, rather than a dictator or an authoritarian regime, is an essential element of a democracy.
Another essential element of a democracy is the belief that every person, regardless of what makes them unique, is afforded equal rights under the law. The fact that we need laws like the IDEA, Section 504, and the ADA make clear that, if left to their own devices, our public schools cannot be trusted to afford equal rights to their students with special needs. They have to be regulated or they can devolve into little fascist regimes of their own, depending on the communities in which they are located.
The last 29+ years of working in this field has convinced me that even those laws are not enough. Fascists who have been within the system since before these laws were passed made these laws necessary in the first place to ensure that democracy is afforded to every child in the public education system. One of the most historically significant pieces of litigation in IDEA history is PARC v. Pennsylvania, in which it was determined that denying children with disabilities equal access to education is unconstitutional.
The fact that our federal government has been kidnapping and locking up babies coming to our borders through the the legal asylum-seeking process with their parents speaks to the degree to which the rights of any child in this country are not honored in general, much less when children have disabilities. Recent feedback from the American Association of Pediatrics has described this conduct as institutionalized “child abuse.” The American Federation of Teachers has called this conduct “crimes against humanity” (see https://youtu.be/3lMhuv3EXLI).
A government that disregards child welfare at all, much less to this degree is monstrous, hence today’s discussion of fascism.
fascism
[ˈfaSHˌizəm]
NOUN
fascism (noun)
an authoritarian and nationalistic right-wing system of government and social organization.
So, basically, anything undemocratic is fascism. Denying children with disabilities equal access to education has already been determined to be unconstitutional. If it’s unconstitutional, is undemocratic. If it’s undemocratic, it’s fascist. Ergo, denying children with disabilities equal access to education is fascist.
Nazis are fascists. They do not believe that all people have equal rights and individuals with disabilities top their list of people who don’t deserve to live, much less be given equal access to anything. All fascism includes biases against other humans on the bases of observable physical traits and/or behaviors.
In Hitler’s Germany, it was the medical community that turned its back on individuals with disabilities, using science without ethics to justify mass killings and inhumane experimentation that were legitimized as “medical procedures.” After Hitler purged the country of somewhere between 6,000 and 7,000 Jewish doctors, more than 7% of all remaining German medical doctors joined the Nazi party, a much higher percentage than in the general population at that time. By 1942, more than half of Germany’s medical doctors and professionals with PhDs in related fields had joined the Nazi party.
Doctors working for Hitler’s Nazi State rather than patient welfare then embarked upon many of the most unethical human experiments conducted in modern history. Using Mendelian genetics to guide their decision-making processes, they saw extermination as the correct solution for developmental disabilities like Autism and Down’s Syndrome, which they regarded as genetic defects. This abandonment of the Hippocratic Oath to do no harm facilitated the Holocaust.
Murder and dismemberment in the name of science were visited upon every class of individuals captured by the Nazis, including people with disabilities, during the Holocaust. At the time, there were no international laws governing the behaviors of doctors. After the war, following the Nuremberg Trials, the Nuremberg Code was created in 1947, which established a set of research ethics for human experimentation.
In the early 1970s, when the special education and related civil rights laws were created, these ethical standards had long been established as a matter of law, but not necessarily common practice. The concept clearly did not generalize from the medical community to the education community, and much hell has been raised by school district officials and their lawyers about public education agencies not being liable for educational malpractice.
In my opinion, educational malpractice should be a criminal offense, complete with jail time and fines. Acts of unconstitutional conduct carried out under the color of public office cannot be tolerated in our democracy, whether we’re talking about extrajudicial killings by police or denials of a Free and Appropriate Public Education (FAPE) as a result of malice and/or neglect.
These laws only became necessary, and were finally enacted in the 1970s, because the intrinsic educational and civil rights of children with disabilities were being denied all over the United States. Professional ethical standards alone were not enough to protect students with special needs. Just as with the Nazi doctors and the Nuremberg Code, laws had to be created after the fact to hold people accountable for their unethical treatment of individuals with disabilities, including school-aged children, here in the United States.
The laws that protect students with disabilities have always been difficult to enforce. In no small part, this is because the fascists already employed within the public education system who viewed children with disabilities as second class citizens continued to undermine these laws from within their public education agencies after these laws passed.
As a more visible example of what I’m talking about, consider one of the most famous “Karens” in our social awareness, Kim Davis of Broward County, Kentucky. While she got elected to serve the public, taking an oath to abide by the rule of law and fully knowing that the Constitution requires a separation of church and state, she refused to issue marriage licenses to same-sex couples following the landmark federal lawsuit Obergefell v. Hodges, because her religious beliefs require her to engage in discrimination on the basis of sexual orientation.
This is fascism. She denied equal Constitutional rights under the law, refused to abide by the rule of law, and abandoned the separation of church and state in favor of her religious beliefs, which clearly do not align with the Constitution or democracy in general. She then claimed that she was being persecuted for her religion when she was put in jail for refusing to do her government job according to the rule of law.
This kind of behavior has been going on since the laws that protect children with disabilities were passed in the 1970s through to today. And, now, we have the consequences of this pandemic impacting an already unconstitutionally dysfunctional system and exposing all of its flaws for the whole world to see.
The thing about hard times is it quickly reveals who the fascists are. They are the ones advocating for a return to the previous status quo in which they were the beneficiaries of inequities while actively denying the existence of the obvious inequities in our publicly funded systems.
It has become the norm that agencies created by our democratic rule of law and funded with taxpayer dollars routinely violate those laws and misappropriate those dollars at the expense of the very constituents these agencies were created and funded by the taxpayers to serve. This has to stop or democracy is truly dead in this country.
Such is often the case in special education, just as a matter of routine. But, now this pandemic has really shown everyone’s true colors and there is little that is beautiful to behold. Just as peaceful protests against police brutality are being met with more police brutality, parents advocating for remedies to address their children’s special needs are being met with more frequent and egregious violations now that the circumstances have changed in response to the pandemic.
Clearly, public safety is of paramount importance and I will never dispute that plain fact. But, public safety does not require the end of democracy, and I’m not talking about masks. Don’t be an idiot; wash your hands, wear a damn mask, and socially distance yourself from other people.
Public safety is equal in importance to the constitutional rights of children with disabilities, not greater. These children have a protected legal right to equal access to public education. Further, special education students have a protected right to individualized educational programs designed and delivered according to the peer-reviewed research (34 CFR Sec. 300.320(a)(4)).
Local government agencies performing according to their legal mandates is democracy in action. This pandemic is not so apocalyptical that certain classes of individuals suddenly cease to have legally protected rights. Fascism denies their rights, not a virus. Local education agencies refusing to perform according to their legal mandates is fascism in action.
Further, as I’ve previously reported here, none of the applicable federal laws have been waived as a result of the pandemic. States and local governments do not have the legal authority to waive the federal requirements; they can only describe with State law how the federal laws will be implemented within the State, and local education agencies can, at most, create policies about how they will individually comply with the State’s implementation requirements of the federal regulations.
No local school district has the legal authority to refuse to abide by the laws, particularly those that regulate its purpose and existence. Nothing could be more undemocratic – more fascist – than that.
And, yet, here we are with our most vulnerable children languishing and regressing developmentally with every passing moment because a bunch of “tax-fattened hyenas,” to quote the great Berke Breathed, saw fit to use the pandemic as an excuse to not expend public dollars on the members of the public for whom those dollars were intended, while continuing to collect six-figure annual salaries in exchange for nothing. This isn’t just a civil rights issue. Just like police reform, it’s a taxpayer issue.
What this pandemic has done, among other things, is expose every crack in every system throughout all our systems of governance. And, those cracks are the consequences of systemic non-compliance with regulatory mandates, as well as failures of those mandates to adequately describe courses of action that prevent non-compliance.
There is no proactive oversight of local education agency compliance with special education and related civil rights law; the burden falls to the shoulders of largely uninformed and/or unempowered parents to file complaints or litigate in order for the law to be enforced, which means it usually is not. It’s a matter of “When the cat is away, the mice will play.”
Without proactive oversight and enforcement, public agencies are adrift at sea, inventing their own ways of doing things while often unaware of their legal obligations. There is no real quality control in special education. There’s just school district lawyers who jump in after the train has already wrecked to argue that it really didn’t for ridiculous dollars per hour at taxpayer expense.
It’s one thing to point this stuff out. It’s another thing to do something about it. My thought process is that the IDEA is overdue for reauthorization. Presuming democracy is preserved with the upcoming election and we haven’t descended into dictatorship, there is going to be a lot of public agency and legal reform coming down the pike for the next 10 years, at least.
Historians, anthropologists, sociologists, and psychologists will all be looking at the last four years and what led up to the current state of affairs in our nation under a microscope for the next 100 years, at least. The data they will be generating will inform vast improvements to our social systems and create systems for ongoing improvement as our society evolves and encounters new challenges, so long as the rest of us make sure that happens.
Right now, one of the most powerful things that parents of children with special needs can do is vote for the candidates they believe will take action to make sure that our publicly funded government agencies actually perform according to the regulatory requirements and achieve the purposes for which they exist, including the application of valid science to the delivery of services intended to benefit the public good. Maybe then we can finally become the democracy we’re supposed to be.
I know that everyone in special education is scrambling to try and make things work during these unprecedented times, but a lot of parents and advocates are struggling to find the language necessary to move things in the right direction and keep entire IEP teams from coming apart at the seams. Our kids who require expert behavioral interventions appear to be losing the most ground.
I want to speak to the families and advocates working with students who have behavioral needs by sharing the language of a communication that I recently had to submit on behalf of one of our families. It’s altered, of course, to protect the identity of the student, but I think a lot of parents and advocates may be able to recycle this language to fit their own situations.
Because so many families are in this same boat without an oar, we all need to share resources with each other so that we can be effective IEP team members. It shouldn’t be on us to keep school district people from spinning out, but humans are humans regardless of who employs them and, particularly if you’re a parent dealing with this on behalf of your kid, it in the best interests of your child to be the anchor that keeps the rest of the IEP team from drifting off course.
Just to put things into perspective, this student is in a Special Day Class (SDC) with embedded mental health and behavioral supports, including a Positive Behavioral Intervention Plan (PBIP) in his IEP that identifies his target behaviors as: Refusing to follow staff directions by either not responding, putting his head down, making statements such as “this is stupid,” “why do I have to do this?” or engaging in a different activity. Not surprisingly, this is what he is now doing at home during his school closure instead of participating in the online instruction.
Below is a copy of the email exchange that includes the language you can hopefully repurpose if you are having to argue similar points on behalf of your own children or clients. The first bit is an email that the parent and I received from the student’s special education teacher/case manager. The second bit is the reply I sent, which has now been forwarded to the district’s main office and we’re awaiting Prior Written Notice (PWN).
For more information about PWN, please see the ad-free early release of our informative Quick Fix video on Patreon by clicking here. This video will be released on YouTube for free, but with ads, in a couple of weeks and run for 30 days on YouTube before retiring to our Quick Fix Video Archive on Patreon, but for the $2.99 monthly pledge to our Quick Fix Video Archive on Patreon, you have immediate and indefinite ad-free access to that information plus all of our other Quick Fix Videos.
Because we’ve already published content on PWN, I’m not going to belabor it, here. I’m just going to get right into these emails and the language I hope at least some of you are able to repurpose and tweak to your own situations.
So, here is the email that I and the parent received:
Good morning,
I hope ALL is well and you guys are staying safe and well.
I was hoping you could help me with [Student’s] participation in our weekly Google Meets. He declined the meeting again for tomorrow
I really need to speak with him at least once a week.
Thank you VERY much for your help.
Be Well, [Case Manager]
Now, here is what I wrote in response:
[Case Manager],
We would appreciate the District’s help with this, as well. Behavior modification is supposed to be embedded in [Student’s] specialized instruction as part of his placement, but that component is not being implemented in the home and no one who lives there is specifically trained, credentialed, or certified in the necessary expert disciplines. The District is responsible for FAPE, even now. The fact that [Student] is not receiving the behavioral interventions necessary to afford him equal access to education as that given to his peers without disabilities is directly reflected by his refusal behaviors in the absence of his social/emotional and behavioral supports from his SDC.
The parent is not in any position to implement an expert level of positive behavioral interventions to facilitate [Student’s] participation on her own. She is relying on the public agency funded by the taxpayers to deliver these interventions under a federal mandate to provide him with a FAPE, that being the District, to come up with these solutions. The parent requests an offer of appropriate behavioral interventions as part of a prospective offer of FAPE that addresses these immediate concerns or an offer of compensatory services that will be provided to remediate this behavioral and academic regression once school starts back in the Fall and the campuses are re-opened.
We understand that these are difficult times, but regardless of the difficulties, [Student] still has a legal right to a FAPE and he isn’t getting it. You asking his mother for help to facilitate his compliance with online learning given his unique circumstances inclines us to worry that the District doesn’t know what to do and is grasping at straws. Any IEP team member that actually understands the complexity of [Student’s] needs would already know that [Student] requires supports beyond what an average lay person would know to provide.
While [Student’s] mother absolutely wants to be part of the solution, she cannot be expected to deliver any kind of home instruction on par with what [Student] was previously receiving in the SDC, which was a step down in restrictiveness from his previous placement, and in which he had been participating for only a few months before the campuses all shut down. There is an overtly apparent need for an increased level of support to [Student] in the immediate present to avert significant behavioral and academic regression during the shut-down.
The lack of an appropriate response from the District right now will create a significant compensatory education claim that [Student’s] family will have to pursue in order to make him as whole as possible. We’re not looking for a lawsuit, but if that is the only procedural mechanism the family has left to protect [Student], I will refer them to a qualified attorney. It is the District’s burden to offer and render a FAPE. We remain ready to collaborate with the rest of the IEP team to come up with an appropriate solution, here, and avoid the need to involve attorneys. We would much rather sort this out than have to litigate. We want to see [Student] appropriately served as quickly as possible.
[Student’s] family will participate in IEP implementation during the shut-down to the degree they are able, with the full understanding that they do not have the training, experience, or professional expertise needed to competently support [Student] behaviorally and academically at home on their own. If his mother tells you that something that needs to be done is something they cannot do, they will expect the District to propose viable solutions to each such task.
[Student] continues to require the expert services from which he was previously benefitting in the SDC and the effects of the absence of those expert services is apparent to all of us. We understand that these difficult times call for out-of-the-box thinking. So long as there is a viable plan for how to deal with this situation in place, whether it’s through the immediate increase and/or modification of how current IEP services are provided, a plan for compensatory services upon the campus reopening, or a hybrid combination of these two options, the family can trust that everything will come out okay in the end, but we can’t leave things so open-ended. That lack of predictability is part of what is causing [Student] to experience increased school-related anxiety and avoidance behaviors.
The District has a legal obligation to make a firm offer of FAPE based on [Student’s] present levels of performance in the immediate moment, as well as plan ahead for the next 12 months via the IEP process. We’re not asking for anything other than what the regulations already promise and we’re willing to be creative about how we achieve that as an IEP team given the unique circumstances. We await the District’s PWN in response to the request made herein.
Kindest regards, Anne M. Zachry, M.A. Ed. Psych.
So, there you have it. What I see in all of this is a case manager who hasn’t been given the tools and authority to do what needs to be done. I’m not frustrated with the case manager. I feel bad for him because he’s being expected to somehow pull this off without the support of his employer.
I wish I had the PWN to include, here, because I think it would be equally informative. That may become a future post topic. In the meantime, if you think you can recycle this language to create your own request letter to address similar issues with your own children or clients, please feel free. It isn’t the work product of an attorney and I’m not putting this out there as formal legal advice. It’s just a tool that might be useful to some people, but if it helps even one family, it’s worth sharing.
It’s now official: There will be no waivers of the Individuals with Disabilities Education Act (IDEA) during any time of sheltering-in-place and resultant school closures. Thanks to the efforts of many people, most notably the Council of Parent Advocates and Attorneys (COPAA), a national non-profit professional and volunteer organization of advocates and attorneys, working with the United States Department of Education, (USDOE), Secretary Betsy De Vos determined that no part of the IDEA should be waived at this time.
This is important because it’s no secret that most students, just in general, are going to regress in their learning because of the sudden school closures, putting them behind relative to the grade-level standards. Special education students are even more vulnerable to regression, but only special education students have a legal right to assert demands for compensatory education to make up for regression.
This suddenly creates inequity in favor of the special education students with respect to compensatory education, when is an unexpected turnabout. It’s usually the other way around that the general education students have advantages over the special education students. What was originally meant to level the playing field for kids with special needs has now become an unfair advantage over the general education students with no enforceable right to compensatory education. That’s something that needs to be addressed and rectified.
The degree to which a court may reduce the amount of compensatory education due to a special education student in light of the need for sheltering in place remains to be seen. In my lay opinion, there is an obvious need for some leniency. None of this was within any public education agency’s control and its commendable how so many educators stepped up their game during this crisis and continue to give us their best.
There is no way I could possibly diminish from that. It moves me in my heart and gives me faith that we can all somehow pull it together for all of our students, regardless of how each of them learns, if we all just collectively put forth the effort.
There is also the matter of the “snapshot rule.” In special education litigation, it is commonly known among attorneys and paralegals that an IEP cannot be judged with the benefit of hindsight. It has to be judged according to what was known or should have been known during the time at issue. This requires the trier of fact to look at the period at issue as a “snapshot” of what was known or should have been known during that time.
Given the unprecedented unique nature of the sudden school closures, and the pre-existing lack of a contingency plan in the event of something like it, what was known or should have been known by public school officials will require an unprecedented degree of scrutiny. This is because unforgivable errors are being, and will continue to be, hidden among the forgivable ones, and a few bad apples are already seeking to exploit the situation to get away with things for which they would otherwise normally be more likely to get caught.
So, how the law will be applied to the facts in the months and years to come ahead is something only time will tell. Given how conservative our Supreme Court has become, there is still cause for concern as to how the law will be enforced. The innovations that are happening around the country in response to campus closures are inspiring and shaping our understanding of what is realistically practicable.
This is important because the federal regulations require the public schools to deliver special education according to the peer-reviewed science to the degree that it is practicable to do so. Those who are innovating in public education, right now, are establishing the education community’s professional standards with respect to practicability in many regards.
In the effort to determine what was reasonable, given what was known or should have been known in light of the evidence, the innovations being reported around the country by clever educators should have shown up in the research of any educator searching the internet for solutions. This goes to what should have been known.
I am the last person to advocate for litigation unless there is just no other way to resolve the problem. I’m thinking about these things from a preventative standpoint, considering the consequences of what will happen if IEP teams don’t work together to figure things out, now. I am trying to think ahead and consider what can be done to prevent worst-case scenarios.
My motivation is envisioning what the worst-case scenarios would look like. That prompts me to consider what would have to go wrong to arrive at those outcomes, then backwards-chain the process to basically reverse engineer it and come up with preventative strategies that will hopefully steer things in a better direction. So, I don’t want to be all doom and gloom, here.
I am happy to celebrate the champions in all of this, but we still have a lot of work to do. Everything we do right now to prevent regression will be heartache we spare everyone in the near future when school starts back up, again, in the Fall. I want to encourage everyone impacted by school closures to do everything they can to prevent educational regression in their students.
The generational Cohort Effect of this pandemic will be something that affects our species for generations to come. How history remembers our responses to these sudden changes in our world depends on our collective decisions in the present.
We’re going to have children who have lived in trauma for one reason or another throughout this period who will be re-entering our school system in need of supports that they would have not otherwise needed. Our kids already in the special education system are going to have more demanding needs upon their return. The more wisdom we can exercise today, the less regret we will have tomorrow.
