During these unprecedented times of both urgency and delay, I’m finding that the ways in which I share relevant information with our audiences depends on the nature of the information that needs to be shared. Nuanced issues in which science and law become inextricably intertwined and live on as continuing issues, whether we’re in quarantine or not, remain appropriate for our Patreon patron-supported video channel, The Nexus of Special Education Science and Law, while time-sensitive updates and guidance to our audiences as to how to respond to various developments as they happen are more appropriate for our blog and corresponding podcast, Making Special Education Actually Work.
The
reality is that producing the videos are way more involved than
producing blog posts and podcasts. If we’re going to invest our
limited resources into making a video, it has to address an issue
that will remain an issue for some time to come and live a long and
purposeful life before having to be replaced with a more current
version. This is why our most involved video productions are only for
our patrons on Patreon.
That’s
fine for what it is. It’s highly technical stuff for a highly
technical audience. Similarly, we have a podcast specifically for
serious lay advocates to build their representation skills, but that
is again highly specialized for a specific audience and
patron-supported by its paying subscribers.
For
information that is too time-sensitive to take days to be made into a
decent video around my busy caseload and needs immediate attention
from all our audience members for the sake of the general good, our
regular blog posts and podcasts through Making Special
Education Actually Work are much
faster methods of getting the word out, and a great deal of that
content is free. So, with all that in mind, today I find it necessary
to use Making Special Education Actually Work
serve as our most immediate method of getting the following
information to the front lines as soon as possible. Some of my worst
fears are being realized across my caseload and, presumably, across
the country.
It’s
necessary for me to remind everybody that special education is
individualized to the
unique needs of each student. Now, suddenly, hundreds of thousands of
special education students have experienced radical changes to their
educational programs that each require an individualized
response. How they continue to make progress towards their IEP goals
while sheltering in place must be individualized
just like all the rest of their respective IEPs.
The
scope of this issue is unprecedented. Suddenly, every kid in America
on an IEP in a quarantined community needs an IEP meeting to modify
their respective IEPs to fit the current circumstances. Conforming to
the IEP timelines under the circumstances is going to be incredibly
challenging for school districts and they may end up engaging in the
educational equivalent of triage, figuring out who is at most risk of
regression and allocating resources to those students first before
moving on to the kids who are likely to recover lost educational
benefits by way of compensatory services later on and aren’t at risk
for as great an amount of regression as those that require the most
immediate attention.
Chances
are, the kids with the most costly and involved programs are going to
be the ones most at risk of regression if their services get
interrupted, so starting with those students is probably the most
logical place to begin. These are also the cases in which local
education agencies are most at risk of doing something that denies a
Free and Appropriate Public Education (FAPE), simply because the
needs of our most severely impacted students are so significant and
any small exclusion can create significant harm, even if accidental.
The
most severely impacted students tend to be a relatively small number
and figuring out how to deliver individualized services to them that
can be reasonably calculated to achieve their respective IEP goals
can be resolved first, when the most flexibility among the available
resources is necessary. Then, students with less intensive needs can
follow, stepping down to the students with the least demanding
special education and related service needs at the end of the
process.
Trying
to shoe-horn a student with severe special needs into a solution
using whatever is left over after everyone else has picked the
resources clean is discriminatory. Solving the hardest problems first
also creates conduits through which other solutions can be
implemented, making it easier to solve the more numerous less
challenging tasks, and makes them even less challenging to solve.
Local education agency dollars previously spent on facilities may
need to be reinvested in technology, additional personnel, and plenty
of Personal Protective Equipment (PPE), to keep up with the federal
mandates to provide a FAPE to every eligible student.
How
much leniency the various triers of fact will be willing to give to
local education agencies in special education due process hearings
and appeals over the two years that follow this pandemic will depend
on the unique factors of each situation, including the reasons for
any delays that occurred, as well as the unique needs of the student
for which individualized responses were necessary but for which
resources were not readily available. Regardless of how much leniency
is reasonable under the circumstances, the expectation is still that
a FAPE will be provided to each eligible student, in accordance with
both Section 504 of the Rehabilitation Act,
and the Individuals with Disabilities Education Act
(IDEA).
Congress
did not build any specific contingency plans into the IDEA or Section
504 with respect to implementation during times of emergency, and
certainly none that make it acceptable to suspend the protections
offered by either Act. There is nothing that says these civil rights
laws, or any other civil rights laws that protect people with
disabilities, cease to be in force under any circumstances. They are
in force at all times, even times such as now.
Anything
less is humanity devolving into the Lord of the Flies,
and there is absolutely no need for that, but advocates for people
with disabilities are having to argue for equality in health care,
right now, which is reprehensible! At this moment, the shortages of
medical supplies in the areas most severely impacted by COVID-19 are
forcing health care providers to decide who lives and who dies, just
like in a war zone. The elderly and disabled are the least likely to
receive life-saving care, at this point, and it’s unacceptable that
our health care providers are being put in the position to have to
think this way. Whether or not a person has autism should not
determine whether or not they receive life-saving care.
We’re
going to lose tens to hundreds of thousands of Americans
unnecessarily because of the poor federal response to this situation
since it first began. Disability and/or a complex medical history
doesn’t automatically make a person unemployed or unemployable. We
are losing great minds and true talents to this disease among younger
individuals who were compromised by pre-existing conditions. Further,
we’re losing people of all ages who had no pre-existing conditions at
all, making the unfair distribution of resources in favor of those
without disabilities even less justified.
The
fact that we are having to actively enforce civil rights law through
litigation and formal complaints with respect to access to healthcare
during a global pandemic is disheartening. It means that, now more
than ever, we can’t neglect the other areas in which civil rights
violations against people with disabilities are also occurring, which
includes special education. There has to be a unified voice on behalf
of individuals with disabilities across all domains to stand firm on
the civil rights protections that are already on the books and expect
everybody else to also play by the rules. This is no time for
anarchy.
With
respect to individualized instruction and specialist services, I have
to point out that very few students with significant special needs
are going to benefit from online instruction. As medical supply
production starts to ramp up, now that various industries are
retooling their assembly lines to produce enough masks, gowns, latex
gloves, etc., to keep all necessary personnel adequately protected
and safe, it’s going to have to be accepted as fact that some
students simply require in-person services in order to receive
educational benefits under the current circumstances, and the staffs
who need to provide such in-person services will require adequate
protection to stay well and prevent the spread of disease.
Given
the immediate shortage of PPE, it’s understandable that this time
right now can probably best be used to lay the administrative
foundation for how in-person special education services will be
deployed once the protective equipment becomes available. But, it
also means that many students will be due compensatory service
minutes for any time lost, particularly if they are already showing
signs of regression by the time in-person services finally start.
Given
that states are deciding to close down their schools through the end
of the Summer 2020 break and start again in the Fall of 2020, this is
going to be a long-term temporary period of interim special education
and related services that will have to be tailored to each individual
student affected, just as it was supposed to have been done for each
student in their normal school settings. If school districts move
quickly and strategically enough, they can get something in place and
make up lost service minutes before way too many compensatory service
minutes are owed to each student.
The
good news is that the only things that should have to be changed,
provided the goals already tackle every area of unique student
learning need and are written in a measurable manner, are services
and placement. The goals shouldn’t change. The learning outcomes that
the IEP has been pursuing shouldn’t suddenly become inappropriate
because of a forced change in placement in response to a national
emergency. The quarantine has nothing to do with whether a student’s
IEP goals target appropriate learning outcomes.
If
you are a parent doing an IEP meeting (by phone or video conference,
please!) and somebody from the school suggests eliminating a goal or
putting it on hold, don’t go for it.
Your child didn’t suddenly experience a reduction in the need to
learn what that goal targeted. If they’re trying to get rid of it,
it’s because they are struggling to come up with an inexpensive way
to teach or provide therapy to it and they don’t want to have to pay
what it’s going to cost to legitimately pursue it, which is not cool.
It’s also totally unlawful.
It
is my sincere hope that public education agencies will respond to the
needs of their special education students timely enough to prevent
regression and the need for compensatory services as much as
possible. The faster and smarter they move on this, the less
responsible for compensatory education they will be. If the education
agencies go straight to each child’s IEP goals and ask, “Given the
limitations with which we are currently faced, what services are
going to have to be delivered either in home or in some other 1:1
instructional situation in order to still see these goals met?”
they’ll cut to the chase and be as efficient as anyone can be under
the circumstances.
IEP
teams don’t have to start over at the beginning. They just have to go
back to the point where they are trying to decide what services are
necessary to meet the goals and how they can be delivered in the
placement options currently available. When this conversation was
last had for each student on an IEP, the placement options were more
plentiful, so that conversation fit what was then the context. But,
the context has now changed, so IEP teams need to return to the
services and placement portion of the IEP process to address the fact
that placement options are now very limited and a fair amount of
creativity is going to be needed to work around the limitations that
are now imposed by this quarantine.
The
current situation also requires school nurses to come up with health
care plans to go into each student’s IEP and tailor them on a
case-by-case basis for students with unique needs that may require
hands-on support for medical equipment, physical positioning,
hand-over-hand instruction, and other close contact instructional
methods and support services for which PPE will be critically
necessary. It is important to include guidance to anyone having to
implement an IEP in person as to how to conform to appropriate safety
practices in the health care plan section of each special education
student’s IEP.
Now
is the time for strategic thinking. It’s all hands on deck for those
of us who have critical thinking and problem-solving skills, and some
of us are way better at things like that than others. I gladly defer
to those who can understand things that are way beyond me, like
sophisticated mathematical models. We need to defer to those who come
up with the most effective and efficient methods of meeting public
agency obligations regardless of their titles or training. We need to
be working collaboratively rather than competitively. All of us who
are trying to make public education work, regardless of the roles we
each individually play, have to keep the timbers of the system from
being rent apart, right now.
I
know one of my students is, thankfully, already receiving in-home
instruction from a credentialed special education teacher supported
by a Board Certified Behavior Analyst (BCBA) for three hours a day,
using safety protocols as per the Centers for Disease Control (CDC).
However, I also know another one of my students is sitting at home
having one meltdown after another while her mother pointlessly tries
to access Google
Classroom in the absence of any special education instructional
or behavioral support services.
These
students need specialist supports and services from experts with
advanced degrees. Almost no
parents knows how to deliver this kind of highly specialized
instruction. When it comes to specialist-provided related services,
like speech/language services or occupational therapy (OT), parents
are even more at a loss.
The
educational needs of most special education students, because of
their increased risk of regression during lengthy breaks from
effective instruction, are as significant to their development as is
their medical health. Particularly when you are talking about
students with developmental disabilities, disruptions in routines and
services are likely to lead to educational losses that will take time
to recoup; the longer the period of disruption, the longer the period
of recoupment.
Recoupment
comes at the cost of new learning. Time spent relearning lost
knowledge is time not
spent learning new information. Regression and recoupment always mean
a student falling even more behind same-grade peers, even after lost
learning is recovered. Further, developmental windows of childhood
development narrow and close as time goes on. When children miss
developmental milestones because they are kept in deprived
environments, it stunts their developmental growth and it is very
difficult to overcome the knowledge deficits later in life.
There
are adults everywhere today who are maxed out at Concrete Operations,
according to Piaget’s
Stages of Cognitive Development, and that’s enough to get them by
for the most part, but they don’t understand big picture concepts and
tend to subscribe to magical thinking when it comes to things they
can’t deduce from direct observation of physical objects and
phenomenon.
Adults
like these may be very accomplished at things that involve the
manipulation of tangible items, such as using tools to make and/or
repair things, or representations of tangible items, such as visual
computer models. But, try to get them to explain the differences
between democracy and fascism, or love and need, and they can’t do
it. These are abstract concepts that require a fully functional
pre-frontal cortex, which they don’t have.
And,
that is the kind of thing that has me worried about all the students
doing some kind of home school thing during this quarantine. We have
inexpert parents, the older bunch of which were raised during a time
prior to the Common Core and without the types of cognitive
stimulation that come with it.
I’m
middle aged and I can remember that, in my early adult years, adult
literacy was still a big deal. Illiterate but employed adults
bemoaned the idea of employers requiring a high school diploma for a
job like carpenter, cook, truck driver, or factory worker, which were
the types of jobs that large numbers of Americans were pursuing and
occupying at the time. A high school drop out could make a truly
comfortable living plucking chickens at the local chicken plant, back
when I was a teenager and young adult, especially if working the
graveyard shift. That was $20 per hour back in the late 1980s.
So,
when I say that there are parents out there who are ill-equipped to
home school their children right now, I’m not just whistlin’ “Dixie.”
There are still a fair number of people my age or close to it who
grew up surrounded by adults with a gross under-appreciation of the
value of education and now have school age kids or grand-kids for
whom they are responsible. They may appreciate the value of a good
education, but since they never got one, they don’t have the
knowledge necessary to home-school their children.
And,
that doesn’t even begin to take into account all of the dysfunctional
parents with actively manifesting mental health issues, which can
include drug and alcohol addiction, who are now stuck at home with
their poor kids and expected to teach them skills they never
mastered, themselves. How many of them are actively using in front of
their kids to deal with the stress of this situation? How many of
them have lost income because of the current circumstances, can’t
afford to re-up, and are now experiencing withdrawals while stuck at
home with their kids?
You
add special needs on top of an already weak family system and then
put that family unit through a quarantine made necessary by a global
pandemic, and something bad is bound to happen. For a lot of these
families, their kids going to school every day is good for everybody
involved. It gets the kids away from toxic adult behaviors and around
more appropriate role models during the majority of their waking
hours, while giving their parents a break that can facilitate
peaceable interactions later when the whole family unit is together.
For those kids from difficult situations at home who also have
special needs, school-based specialist services and individualized
instruction can be their lifeline to a better future and they need
that lifeline now more than ever.
To
the degree parents can
be effective parts of an IEP implementation team under the current
circumstances, parent counseling and training as related services are
going to become increasingly necessary. Whether it’s done online, in
person, or a hybrid delivery model of both, the parent has to be
trained on how to implement those portions of the IEP for which
he/she can assume responsibility during quarantine, which
is an IEP team decision.
34
CFR Sec. 300.34 lists parent counseling and training as a related
service that can be provided by an IEP.
Qualified
personnel will have to make up the balance of the IEP services that
cannot be delivered by a parent in consultation with special
education and related service personnel. It is not educationally
appropriate to delegate 100% of the implementation of an IEP to an
inexpert parent. Specialist personnel are still required in some
capacity and that has to be determined on a student-by-student basis,
just as with any other aspect of an IEP.
While
the IDEA does not include a contingency plan specifically for
pandemics, it does have rules that provide structure as to the
outcomes public agencies are expected to achieve and the mechanisms
by which they can be achieved, even as they adapt to ever-changing
situations. Public education agencies are just having to rely on
these rules and tools to respond in a way never before anticipated.
The fact that we can keep these institutions going under the current
circumstances speaks to the construction of the enforceable laws, the
tenacity of the American people, and the collective belief of our
majority in preserving our institutions.
This
is not the worst that things could be, as bad as it is for some
people, right now. The majority of us will survive the virus, though
those of us who survive are likely to lose people we know before it’s
over. It’s up to those of us who are not willing to descend into
anarchy to continue enforcing the laws that make us who we are, even
under these distressing circumstances. We’re needed now more than
ever. Human lives, whether they are disabled or not, are worth more
than money, and we need to make sure that message remains
resoundingly clear in the times ahead to come.
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