Interview of Rose Griffin, SLP & BCBA

Rose Griffin, SLP & BCBA


Anne Zachry
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Today is September 27, 2022. This post and podcast is titled, “Interview of Rose Griffin, SLP & BCBA,” which was originally recorded on August 29, 2022. In this podcast, I interview Rose Griffin about her past work in the public education system and the work she is doing now to educate professionals and parents to support children with special needs to address their challenges at the intersection of communication and behavior.

We’re here with Rose Griffin, who’s a speech language pathologist as well as a board certified behavior analyst. Correct?

Rose Griffin
That’s right, yes, less than 500 of us in the world. So …

Anne Zachry
Yeah, you’re a … you’re a rare species, and you’re very valuable. The crossover between your disciplines is really very valuable. I have another colleague, relatively local to me, who’s an OT and a BCBA. And …

Rose Griffin
… oh, yeah, that’s very rare. I probably know them. There’s not many of those at all.

Anne Zachry
Yeah … and, and so you know, her whole thing is, you know, kids, especially on the autism spectrum, that have sensory integration issues. And the degree to which that interferes with behavior, or it creates sensory-seeking behaviors that interfere with learning in the school setting, or whatever the case may be, but that sensory-behavior connection is where, you know, she really knows her stuff. And that’s very rare that I run into people who have, you know, those dual disciplines and understand the connections. And I think when you and I first started communicating about doing this podcast together, you know, my mind immediately went to functional communication. Because …

Rose Griffin
Yeah!

Anne Zachry
… because we have a lot of kids who … they have the speech and language services to teach them, you know, often in a small group or an individual one-on-one situation, sometimes pushed into a classroom situation, but most often not in my experience, and then somehow they’re supposed to generalize that to the world at large. And …

Rose Griffin
Right! It’s supposed to miraculously happen. Yeah.

Anne Zachry
Yeah, it’s just gonna be osmosis or something. And so, you know, there needs to be that explicit reinforcement of the behavior in the in vivo context, in order for them to make the connection between what you’re talking about in a therapeutic situation and real life. And that’s where the the behavioral supports come in, where functional communication skills are used as behavior strategies in an ABA based program. And so that in my mind, that’s that was where everything immediately went when I saw your qualifications, because I’m like, “Oh, she’s in that nexus of, you know …”

Rose Griffin
Heh, heh – yeah.

Anne Zachry
… where the … because all, all communi-, what is, what is the saying? “All behavior is communication”?

Rose Griffin
Right. There’s that saying. They say that a lot. Um-hmm.

Anne Zachry
And all language is a learned behavior. So you know that the language-behavior, there really is no divide. And …

Rose Griffin
Um-hmm.

Anne Zachry
… it’s just … it’s more as … it’s different nuances of the same thing parsed out and, and so what have been your experiences? Because, I’m assuming you go into the schools or you do work with the schools as well.

Rose Griffin
Yeah, so, for 20 years, I worked as a school based speech language pathologist …

Anne Zachry
Okay.

Rose Griffin
… and I started my own business called ABA Speech five years ago. And I actually just decided in May to step away from the schools to focus on my business where I offer courses, and I have a podcast called Autism Outreach, and we have products, but I still love to be in touch with the schools. So it looks a little bit different now. Now, I’m just kind of seeing a handful of a private clients. But yeah, for 20 years, I worked as a school-based SLP. And I really loved being able to provide therapy in that natural setting. And I really did a lot of push-in therapy into the classroom and some students that I needed to see in my office, but you know, I worked in middle school/high school, so maybe I had kids with selective mutism. Or maybe I had a kid who was stuttering or maybe the classroom was really loud and I needed to pull a student …

Anne Zachry
Right.

Rose Griffin
… into my office to give them a break from the classroom.

Anne Zachry
Right!

Rose Griffin
But I’ve definitely tried to push in and do like a group so I can model therapy strategies for the teacher and one on one staff and things like that. Yeah.

Anne Zachry
Well, and the push-in model is so much more supportive of generalizing those skills from a pull-out situation to real life that gives you the opportunity to go into the real life classroom and say, “Okay, here’s where you need to do this, bro,” you know?

Rose Griffin
Yeah! No, absolutely!

Anne Zachry
You’re coaching people on the pragmatics, you know, people who have a hard time reading the room?

Rose Griffin
Yeah, that’s always … Yeah, that’s what … that’s hard. That’s ever-changing for everybody. I had some students that had more direct instruction, more traditional type ABA services, and I would go into the classroom and see them in their teaching area. And every student was just so individualized.

Anne Zachry
Exactly!

Rose Griffin
But, I tried to do whatever works for the student.

Anne Zachry
That makes sense. That totally makes sense. And that’s really how it should be done. It is supposed to be individualized.

Rose Griffin
Yeah!

Anne Zachry
I just … I think it’s a, it’s a fascinating overlap that a lot of people fail to appreciate … that, that connection between language and behavior, and how much …

Rose Griffin
Oh yeah.

Anne Zachry
… how much, you know, how often do we say, “No hitting; use your words,” and yet, that connection still doesn’t get made in people’s minds? You know, it’s like, well, after they’re toddlers, that doesn’t count anymore. It’s like, “No, it always counts! …”

Rose Griffin
Right!

Anne Zachry
“… That never goes away!”

Rose Griffin
That’s my own kids. Yeah, they’re like, you know, in upper elementary school and middle school …

Anne Zachry
Right. Well, and I have to say, you know, I mean, I use these skills just as much to navigate the politics of the IEP process, as …

Rose Griffin
Um-hmm.

Anne Zachry
I’m using the same skills to deal with the adults in the situation, and to try …

Rose Griffin
Yeah. Yeah.

Anne Zachry
… and get an IEP to say what it needs to say,

Rose Griffin
Um-hmm.

Anne Zachry
… without ruffling feathers, and without people getting their feelings hurt …

Rose Griffin
Oh, yeah!

Anne Zachry
… and taking things personally, when it’s about the construction of a legally binding document and not anybody’s personality, and …

Rose Griffin
Ha, ha, yeah.

Anne Zachry
… and so it’s, you know, having to dance around all of that, I find that … I mean, that my … I have my master’s in educational psychology. I’m qualified to go in and do school-based …

Rose Griffin
Yeah.

Anne Zachry
… you know, behavior assessments, but I don’t go in as an outside assessor. I’m there as the lay advocate. And so I keep that hat on.

Rose Griffin
Oh, okay. Yeah.

Anne Zachry
But I’m going in as an informed lay advocate, and I’ve also paralegaled all the way up to the Ninth Circuit of the Court of Appeals. So the only place I haven’t gone yet is the US Supreme Court. And so, so I … I’m coming at this from both a compliance standpoint, and from a science standpoint …

Rose Griffin
Uh-huh.

Anne Zachry
… that the law mandates the application of the peer-reviewed research to the design and delivery of special ed.

Rose Griffin
Um-hmm.

Anne Zachry
But we don’t have any mechanisms in place to really truly facilitate that. And so when I find people who have extraordinary qualifications, who have worked in the school setting, who have like, “Okay, I found my work-around.” You know, it’s you’re having to drag the science into a setting that really isn’t designed for it …

Rose Griffin
Um-hmm.

Anne Zachry
… and, and trying to implement it in a situation where you’re having to sell everybody on the inside of the legitimacy of what you’re trying to do …

Rose Griffin
Um-hmm.

Anne Zachry
… because it’s not how it’s always been done.

Rose Griffin
Right.

Anne Zachry
And so, there’s a lot of politics and culture, you know, internal district culture issues that have to be overcome before … you know, sometimes … the science will be legitimately applied. And so I see varying degrees of success with kids who have IEPs that call for certain things, but they jump from one school district to another. And what that looks like in one place to a different place are two totally different things. And the child does better in one setting versus the other with things that say they’re … identically described on paper.

Rose Griffin
Um-hmm.

Anne Zachry
And it really does come down to quality control at the individual school sites. And what I one of the questions I wanted to ask you was about fidelity and data collection …

Rose Griffin
Hmm.

Anne Zachry
… because one of the biggest issues that I’ve run into in any aspect of special ed is the validity of how the data is being collected, basically going to the measurability of the goals, whether or not they’re legitimately measurable.

Rose Griffin
Um-hmm.

Anne Zachry
Because, back in the 90s, to backtrack a little bit, there was some kind of workshop for teachers somewhere, and I’m not sure who the entity was that put it on, I have my suspicions. There’s organizations out there that tend to disfavor special ed …

Rose Griffin
Oh, okay.

Anne Zachry
… as something no government should be doing.

Rose Griffin
Um-hmm.

Anne Zachry
And there’s a number of those individuals, certainly not the majority of people in public education, but there are a number of them who are employed within public education, who truly do not believe that this is how government resources should be expended. And they’re in the camp of Betsy DeVos, who wants to dismantle the U.S. Department of Education.

Rose Griffin
Yeah.

Anne Zachry
So, they’re there to undermine it from within and prove that somehow government doesn’t really work. “Well, yeah, not when you’re there, doing that kind of stuff!”

Rose Griffin
Uh-huh.

Anne Zachry
And so there’s people of that ilk who are peppered throughout the system, who are trying to prevent anything that’s going to produce a system of accountability, anything that’s going to create an audit trail. This is why you haven’t seen all of the business automation technologies that were perfected in the private industry over the last 30-40 years. They still have not been deployed throughout all of our public agencies …

Rose Griffin
Um-hmm.

Anne Zachry
… because then you … the people who are misappropriating funds and doing illicit things, they have no shadows to hide in anymore.

Rose Griffin
Hmm!

Anne Zachry
And similarly, when ABA showed up in the special ed arena with all of the data collection and doing it according to a scientifically valid method …

Rose Griffin
Um-hmm.

Anne Zachry
… well, that meant that you were going to take data on everybody blowing it …

Rose Griffin
Um-hmm.

Anne Zachry
… and you were gonna … you were gonna create evidence that families could use to hold their school districts accountable if you actually took data on what was really going on. And you know, as … as a BCBA, I know you know this, that it’s not just … when you’re doing a truly scientifically rigorous ABA program, you’re not just taking data on how the individual responds to the intervention, you’re also taking data on how the implementers are implementing the plan with fidelity. You’re taking fidelity data on how well the plan is implemented, because it can only fail for one of two reasons: either a design flaw or an implementation failure. So you’ve got to have data on “Is the design working?”, which you only know, if you’re trying to implement the plan, according to its design. We have seen a huge, huge push against taking fidelity data as part of any child’s behavior intervention plan in an IEP because of the audit trail it will create, and the fact that it will capture people not doing the job rather than you know, using it as a quality control measure. And so it seems to … in my experience, what I’ve run into it, you know … and bearing in mind that I only get contacted by people whose kids IEPs are just gone off the rails, and it’s a horrible situation.

Rose Griffin
Yeah.

Anne Zachry
Nobody calls me up to tell me how great is going. So I’m only coming into the worst of the worst. But stepping into the worst of the worst, what I find are concerted efforts to cover things up when things have gone wrong, and then try to create a some sort of legal defense that shifts the blame away from the school district. And, you know, one of the preemptive legal defense strategies that their lawyers will, will have them do is like take as little data as possible. And, and so you have this … this energy against valid data collection and fidelity measurement that undermines the integrity of the process, even though the law mandates the application of the science. And that’s not the science, you know. And so, families … but families are the enforcement arm of the law, because you know, we’re a government of the people. So if … there’s no, you know, special ed police running around to make sure everybody’s doing it the way it’s supposed to be done. The only way the law gets enforced is when somebody breaks it and a parent reports them.

Rose Griffin
Hmm.

Anne Zachry
And so, we have parents having to bear the burden of understanding what the science is to even be able to know that it hasn’t been applied. And we have people in the schools who don’t know the science, much less how to apply it. And so we’ve got a lot of changes coming up on the horizon that we see are inevitable in that regard, but having worked for 20 years in the public schools having tried to apply the science to the benefit of children, what have your experiences been of trying to stick to the … to the fidelity of the science that’s behind what you’re doing? Has that been a challenge for you?

Rose Griffin
Yeah, I’ve had great experiences. Yeah, I’ve been a school-based speech therapist and have worked really hard to build rapport with families and teams, and, yeah, we really help students and support them in that natural environment of a public school. So yeah, on my end, it’s been really, it’s been really positive for my students to get those services within public school. It’s been great.

Anne Zachry
Have you had a hard time, though, with respect to the peer-reviewed research and being able to bring in the current research into the school setting and implement the new stuff?

Rose Griffin
No, and it might just be where I live, you know, I live in Cleveland, Ohio, a suburb of that. And we have a lot of really great providers here. And, yeah, I’ve just had really great experiences. And haven’t really had …

Anne Zachry
That’s fabulous to hear, because I’m telling you this, this is my uphill battle all the time. And I’m in California, which is one of the most progressive and heavily regulated states in the country for special ed.

Rose Griffin
Oh yeah. Wow!

Anne Zachry
I mean, we kind of set the tone for because we have more special ed due process cases every year …

Rose Griffin
Oh, I’m sure.

Anne Zachry
… that I mean …

Rose Griffin
It’s so big.

Anne Zachry
Yeah, some states go for years without having any at all.

Rose Griffin
Right! Lucky them!

Anne Zachry
And, and so it goes to the degree that the parents don’t know their rights …

Rose Griffin
Right.

Anne Zachry
… or things are going successfully and you don’t have the kinds of challenges that you know, that other districts run into. And I think it goes to quality of leadership. So it sounds to me like you’ve been in a very blessed situation where you haven’t had to contend with those kinds of situations, which are just, you know …

Rose Griffin
Yeah.

Anne Zachry
… more, more common …

Rose Griffin
Yeah!

Anne Zachry
… than people would like to think. I mean, you know, we have…

Rose Griffin
Right. Um-umm.

Anne Zachry
… our organization was actually founded in 2003, following the death of a classmate of our founder’s nephew, who was …

Rose Griffin
Awww!

Anne Zachry
… was smothered to death by his teacher in front of everybody in the classroom during an unlawful prone restraint. And …

Rose Griffin
Oh dear!

Anne Zachry
Yeah, and …

Rose Griffin
No wonder!

Anne Zachry
… and it was horrible and … and he never went back to school after that. It was a class for emotionally disturbed children, and this teacher was …

Rose Griffin
Oh dear!

Anne Zachry
… supposed to be there to help all these children with these mental and emotional health needs get better. And, instead …

Rose Griffin
Umm, oh dear!

Anne Zachry
… she was this authoritarian monster who just bullied them. And … and so, you know, these things do happen. And it’s not as rare as people would like. That case actually ended up being included in … and I’ve got written in the blog post that goes with this podcast, I’ll include links for it …

Rose Griffin
Yeah.

Anne Zachry
… we have an article about this from a while back, but that just explained our history and how this all happened. But this particular child’s family, he was a foster child. And so the moment his life was terminated, so was his foster mother’s parental authority. And so she couldn’t do anything to hold anybody accountable, because she no longer had parental rights at that point. She had no authority and no standing.

Rose Griffin
Um-hmm.

Anne Zachry
But, a few years after that, Congress had commissioned a study on the use of seclusion and restraints and special ed in the public schools. And, it was public schools in general, but it turned out that special ed kids were the ones who are most commonly restrained and secluded. And, this young man’s case was in part of the that federal investigation.

Rose Griffin
Hmm!

Anne Zachry
We were shocked to see it, because it’s the reason why we founded our organization. It was the, you know, the final straw …

Rose Griffin
Um-hmm.

Anne Zachry
… that made us pull that plug. But, to see that in the federal report, and it was actually, like, one of the feature cases, and they actually had the foster mother go to Washington, DC, and testify before Congress about what had happened.

Rose Griffin
Hmm!

Anne Zachry
And, what they determined was the teacher had never been held accountable, that she had never received any kind of negative consequence for any of this, and was able to leave the state of Texas and go to Virginia. And, at the time of the hearing, when this foster mother was testifying, this teacher was only 45 minutes away running a special ed classroom in Virginia from where Congress …

Rose Griffin
Hmm!

Anne Zachry
… was hearing testimony about how she had murdered this child and got away with it. It’s a failure of multiple systems. But this goes to our whole thing that special ed is really … the work that we do in advocacy to address these kinds of problems is really part of a larger social justice issue. Because …

Rose Griffin
Um-hmm.

Anne Zachry
… it wasn’t just the special ed system that failed.

Rose Griffin
Um-hmm.

Anne Zachry
It was the foster care system, it was the criminal justice system, it was the teacher credentialing system, it was … there was all kinds of parts of the system that broke down that allowed this to happen. And a lot of it goes to the bureaucracy and the lack of communication. And if all of these agencies were actually interconnected in a wide area network, enterprise-class computing environment, the way that, like Walmart, or Sanyo, or UPS Freight, or any of these big global organizations that have these huge computing environments … they overcame these obstacles decades ago, but we don’t have the same consistency of flow of information. And because of that, we’ve got consumers having to go to 15 different agencies and applying for 15 different types of service, you know, and maybe you’re talking about somebody in a wheelchair with an oxygen tank, who has to go trucking around all over the place, instead of the money following the consumer, the consumer has to go chasing after the money. And so we’ve got a lot of organizational defects, you know, when you start looking at … you talk to … start talking about a plan and looking at a behavior plan versus a plan for the operation of an entity, it really isn’t that remarkably different. And does this plan actually support the functions of the behaviors that you know … do these behaviors support the function of the organization? Are we rewarding …

Rose Griffin
Hmm!

Anne Zachry
… are we reinforcing the right behaviors in this organization? And so for me, I think that there’s also a carryover of what you do into the organizational structure of, you know, in the organizational cultures. I know that ABA is used very much in an industrial sense, by private industry, but to create …

Rose Griffin
Um-hmm.

Anne Zachry
… you know, positive workplace environments. And do you see a value of your profession and people in your profession, you know … crossover between both, really … of going in and doing professional development and positive culture building and in help healing the cultures of some of these environments where people are not invested in their constituents?

Rose Griffin
You know, yeah! There’s a whole branch of ABA called OBM. Organizational Behavior Management, I think it’s what it’s called.

Anne Zachry
Yep.

Rose Griffin
I don’t have any experience with that. But I think it makes a lot of sense to use the science and there are people that specialize in just doing that. And they’re doing … going into organizations helping with the culture, helping streamline workflows, and I think that is definitely something that’s positive. There’s so many different things that you can do with the science of applied behavioral analysis …

Anne Zachry
Oh, I know!

Rose Griffin
… autism is just one very small area. So …

Anne Zachry
That’s what I tell people!

Rose Griffin
People make mistakes about that, as well.

Anne Zachry
I tell people that. I’m, like, look! ABA is a science; it is not an autism service.

Rose Griffin
Um-hmm!

Anne Zachry
It’s the science behind certain autism services that address behavior, but it is not an autism service, per se. And a lot of people don’t realize that I’m like, no ABA applies to crustaceans and computer code …

Rose Griffin
Ha, ha, yeah!

Anne Zachry
… you can analyze anything that behaves and there’s always a cause for everything, you know, and everything serves a function, and so that’s something that I think that there needs to be more discussion around and more research done into of how that organizational aspect of ABA can be used as part of the healing process of all of these things that we’re dealing with in our culture right now. I mean, all of the conflicts and the dividedness, and the fights and, you know, it just I think that ABA sort of takes the temperature down because you’re doing nothing but black and white neutral statements of fact …

Rose Griffin
Um-hmm.

Anne Zachry
… and only things that are objectively observable, like this is what we know to be true. And I think that bringing the conversation back to … I mean … getting away from the hysteria and coming back to the rule of law and back to scientific method, both of which are evidence-based, you know … you have to use logic statements … they are very similar in to how you execute both … that calmer heads can sit there and do that kind of black and white analysis and like, “Okay, let’s get to the to the bottom line of what is, and then we can decide how we’re going to emotionally react to it.” But right now …

Rose Griffin
Hmm! Um-hmm.

Anne Zachry
… we’ve got everybody reacting to the data rather than to the outcome of the analysis.

Rose Griffin
Um-hmm.

Anne Zachry
… that, you know, people are pre-judging what a piece of data might actually mean rather than putting it all together and reaching a logical conclusion, “Okay, here’s the story is told by the evidence.” And I think that we do our young people a huge disservice by not teaching them to think that way, as just simply part of curriculum. I think that there’s a huge value in teaching people about ABA as part of like a high school psychology class, I think that it’s a skill that is …

Rose Griffin
Um-hmm.

Anne Zachry
… all it is, is the ability to see what is without cluttering it up with a bunch of other superfluous details. It’s about how to prioritize your data and focus on what’s the most important thing …

Rose Griffin
Um-hmm.

Anne Zachry
… and engage in that neutral fact-based decision-making. And I think that if that were taught as a skill just in, in general, for all kids, I think that would help develop them, especially in high school, when that prefrontal cortex is starting to come online, and they’re starting to think more abstractly, and they’re looking for that kind of structure to structure their thoughts. I think that that’s something that we need to start really thinking about, as we we try to … to develop tomorrow’s leaders and problem solvers. That ABA, just as a skill, as a science …

Rose Griffin
Um-hmm.

Anne Zachry
… is valuable, just as much as it is to learn about the law of gravity.

Rose Griffin
Heh, he, um-hmm.

Anne Zachry
You know, I think that we focus on the physical aspects, and we consider the hard sciences more legit than the soft sciences. And I’m like, I don’t see how you think that ABA is not hard science …

Rose Griffin
Um-hmm.

Anne Zachry
And so I’m, I mean, what are your thoughts about making the science just more part of a mainstream part of the human experience and making it more part of the … of just common knowledge? How valuable do you think that is?

Rose Griffin
Yeah, I mean, you know, with my business at ABA Speech, I disseminate information daily. And I don’t always even say that it’s ABA. But I just talk about the way that I use the science of applied behavior analysis is by helping autistic learners find their voice and increase their communication skills. And so everybody that is a BCBA definitely has the opportunity to disseminate and to share how they’re using the science to help support students or whatever facet, they are included in. So I think that being able to share that is important. And that’s what I do through my online business. So it’s important to me to share that.

Anne Zachry
Yeah, I think the more that the folks I work with understand the science that is being applied to their kids, the more comfortable they are with it, and it logically makes sense to them. And I have moms who will … are like Goddesses at coming up with goals and how to track the data …

Rose Griffin
Ha, ha, ha!

Anne Zachry
…. and how you know which method, you know, “I’m gonna do DRI or a DRA.” And I’m like, “Okay.”

Rose Griffin
Ha, ha, ha!

Anne Zachry
And they’re like, you know, honorary BCBAs after a while, and I …

Rose Griffin
Hmm!

Anne Zachry
… it’s because all it really does is measure what already is.

Rose Griffin
Um-hmm.

Anne Zachry
It’s not like you made up something new. you’re just trying … it’s a way of documenting what’s happening in the environment, and then what to make of that data once you’ve collected it. So it’s not like you’re making something new out of what is or, you know, inventing a new chemical or something. It’s looking at, “Okay, here’s what’s going on in this actual real world environment,” you know, and then to the degree that language plays into it, which is always, you know, usually part of it.

Rose Griffin
Hmm!

Anne Zachry
And so to circle back around to the school and the speech and language and the ABA overlaps, do you find that it is more efficient for you to be able to wear both of those hats? Or do you find that it can be equally effective to have a team where you’ve got a BCBA and a speech-language pathologist working together? I mean, what do you … how do you see, you know, all the different ways to still come up with the same information that a team might need with respect to behavior and communication?

Rose Griffin
Yeah, in a school setting, you’re typically going to have one person that’s a speech therapist, and one person that’s the BCBA, and they can work collaboratively together with the students, the family, the teacher. Even though I’m dually certified, my role on the team in this particular job setting was as a speech-language pathologist …

Anne Zachry
Got it.

Rose Griffin
… so we actually had an outside consultant that we would work with. And it’s so much easier for me to work with outside consultants, because I’m a BCBA, so I understand all the different things that they’re talking about. So is it easier for me to work with consultants, and to make that a cohesive team? It absolutely is. But you know, being dually certified, allows me to work with ABA providers that want to offer speech therapy or offer consultations, or I help different ABA providers with professional development about communication. And so being dually certified is a very special niche area. And I can help businesses and families and individuals in a very specific way. But if you have a team and you have a few therapists, and you have a BCBA, and they’re able to collaborate, that’s just as impactful.

Anne Zachry
Yeah, it does … I mean, it’s sort of like, well, you have all your eggs in one basket on the one hand …

Rose Griffin
Ha, ha, ha.

Anne Zachry
… but at the same time, you’re also got a more efficient a … you know, a faster machine and in a manner of speaking, because you’re not having to do the … everybody on the team coming together and collaborating. It’s all in one brain and they can just, “Blech, there it is.”

Rose Griffin
Ha, ha, ha.

Anne Zachry
So, I mean, I, you know, and I totally get that. And I mean, I’m in a similar situation in that I’m in the nexus between the legal side of it as a paralegal and a lay advocate …

Rose Griffin
Hmm.

Anne Zachry
… but also coming from the scientific side of it with my master’s in educational psychology and all the work that I’ve done in that regard …

Rose Griffin
Um-hmm.

Anne Zachry
… and so I’m straddling that nexus between where normally you would have to have an attorney who brings in an expert to tell them …

Rose Griffin
Right.

Anne Zachry
… the science part of it. So you’ve got the expert who knows the science, and you’ve got the lawyer who knows the law, but sometimes there’s things they miss, because they’re talking apples and oranges. And they don’t, you know … and it’s not quite the same, because I think the connection between speech and language pathology and behavior is like way closer. I mean, it’s really just, you know, two sides of the same coin.

Rose Griffin
Um-hmm.

Anne Zachry
Whereas, what I’m doing, I’m really having to straddle two different universes and trying to get these people to understand each other’s professional lingo, because, you know …

Rose Griffin
Um-hmm. Yeah!

Anne Zachry
… you know the educators have their their jargon. And, the lawyers have their jargon. And, a lawyer may be able to identify that, you know, a timeline was violated, or, you know, “Well, this kid’s nonverbal and you didn’t do a speech and language assessment at all. How is this possibly a comprehensive triennial evaluation?” You know, it’s like … when it’s really over the top egregious stuff like that, a lawyer will recognize the failure.

Rose Griffin
Yeah.

Anne Zachry
But, when you’re talking about, “Well, this child has the potential to make X amount of growth in reading ability over the next year, but you’re not targeting an outcome that’s that aggressive; you’re low-balling this kid on his IEP goals,” a lawyer is not going to look at an IEP and be able to recognize that.

Rose Griffin
Um-hmm.

Anne Zachry
You’ve got to have somebody who’s an expert in the data and the assessment stuff to be able to look at, “Okay, well, what did the assessment data say about this child’s capacity to learn? And how …” you know, “… and where their baselines were at the time everything was written, and how aggressive is this goal relative to their baselines based on what we know about their capacity to learn?” So you’ve got a scientific analysis that has to happen that a lawyer is not going to be able to do, but then you have educators who come into it and don’t know the legal side of it. And so they’ll see that discrepancy, but they don’t know how to advocate for the right thing. And a lot of times, if they’re going to a school district administrator who doesn’t know that, either, they’ll just “Oh, I guess that’s just the way it is.” It doesn’t occur to them that there’s something that can be done, or that the law requires more …

Rose Griffin
Um-hmm.

Anne Zachry
… and they … and it comes down to professional development. It’s not because anybody has ill intent. It’s not because somebody is trying to hurt a kid. More often than not, what I run into, when I run into the challenges that I run into, it’s not because somebody’s mean and they want to hurt somebody. It’s because they don’t know …

Rose Griffin
Um-hmm.

Anne Zachry
… and they don’t have the resources, and nobody told them. You know, I think it’s exciting for me to hear from professionals who come from schools where that’s not so much the case. That you’re … you’re in a situation where you’ve got a really progressive team. And I’ve talked to other educators who come from really progressive public schools and school districts where, you know, everything is evidence-based, and you’ve got a really amazing people who are pushing forward, really progressive and collaborative types of projects that include the families and don’t vilify them. But, you still got some really weird, old, cronyistic, “Boss Hogg/Roscoe P. Coltrane” kind of stuff going on out there, too.

Rose Griffin
Ha, ha, ha.

Anne Zachry
And so it’s a mix, you know? Iit’s a mixed bag. And I think that where you are has a lot to do with it. So it’s exciting to hear. And you said, you’re in Ohio.

Rose Griffin
Yes, I’m in Ohio. So yeah, I’ve had really positive experiences. It’s been … it’s been really wonderful. I was sad to step away from the schools after 20 years, but I just … my business has grown so much at ABA Speech that, you know, it’s just what I needed to do. So …

Anne Zachry
That’s exciting to hear too. Because you know, all growth is just part of life. You have to grow and evolve into something else.

Rose Griffin
Um-hmm.

Anne Zachry
And whatever skills you acquire in one situation, and the benefit you serve to people while you were there just equips you to serve other people in a different kind of way better, stronger, you know. And so it sounds like that’s what you’re doing. So with your practice, now, you’re mostly working with private families, and then consulting with organizations?

Rose Griffin
Yeah, so I divide my time. My podcast, Autism Outreach, is a big part of what I do. Yesterday, I batched three episodes. And so we have monetized my podcast. And so we offer it for continuing education units for … geared towards speech-language pathologists.

Anne Zachry
Nice!

Rose Griffin
And then I do some therapy. I see a couple clients privately, and then I do some telehealth. I’m actually licensed in Washington State.

Anne Zachry
Nice!

Rose Griffin
And so I act in the capacity of helping ABA centers sometimes provide speech therapy. And then sometimes I just do consultations for complex communication cases. And I do a lot of presenting. I do a lot of speaking about working on autism and communication and how to help students at various levels along their communication journey. And we offer courses. That’s the biggest thing that we do is we offer courses about autism that are geared towards professionals and parents that are a little familiar with the science of applied behavior analysis, would probably be the best way to describe it. And we’ve just had a great chance and opportunity to be able to reach people through our courses. That’s been really something that’s been very rewarding.

Anne Zachry
That speaks to the concern I was having before about, you know, just how difficult it is to get the science pushed into the schools.

Rose Griffin
Really?

Anne Zachry
So, people who are doing the kind of work that you’re doing …

Rose Griffin
Yeah.

Anne Zachry
… and be able to reach through to them through the internet and nonetheless get the information out to these people. So they have access, I think that is so incredibly important. And that’s going to be such a huge part of what makes things better is people like you doing the kind of work that you’re doing, because you found a workaround.

Rose Griffin
Right!

Anne Zachry
It’s like, “Okay, well, maybe I’m not gonna go down to the local school district and hold a workshop today. But I don’t have to,” you know? “I can do it myself …

Rose Griffin
Right!

Anne Zachry
… and put it out there, and people can get their continuing ed units.” And then, you know, Bob’s your uncle, there it is.

Rose Griffin
Yeah! Yeah!

Anne Zachry
And so I think that that’s very encouraging,

Rose Griffin
Because our courses are offered for speech language-pathologists for their CEUs. Also, for board certified behavior analysts, they’re called ACEUs. And then also, we do general certificates for teachers and parents. And that’s been really great. So it’s really just a mix of I do live presentations. But then I also have these courses that are usually on Evergreen. And we have a new course coming out in September, that is called The Advanced Language Learner. And that is going to be about students who are using two to three words on their own, and how to help them go beyond basic communication skills. So I’m very, very excited and have been working diligently on that launch. So that will happen mid-September.

Anne Zachry
That sounds really exciting! All of that sounds amazing and wonderful. So, well, I’m excited to be able to share that with our audience, because I know there’s gonna be a lot of families out there who will benefit from it. I mean, by no means are our entire caseload, you know, kids with autism. That’s some, you know … a good fair percentage of our caseload.

Rose Griffin
Um-hmm. Yeah.

Anne Zachry
But, you know, and that’s … they’re not the only kids who would benefit from something like that either. And then I have lots of kids with other types of issues …

Rose Griffin
Yep. Um-hmm.

Anne Zachry
… that that would really speak to their needs as well, and that knowledge being out there for the professionals in their lives, as well as their parents. The parent education piece is really important. And I … so here’s a thought …

Rose Griffin
Um-hmm?

Anne Zachry
The implementing regulations of the IDEA include in its description of all the different things that can be related services … like speech and language, or transportation, or OT, or whatever …

Rose Griffin
Um-hmm.

Anne Zachry
parent training and counseling is also listed. And …

Rose Griffin
Hmm!

Anne Zachry
… and so some … and the purpose of that being as a related service is so that parents can understand their children’s disability better and be more effective participants in the IEP process and understand the IEP process … because they have federally protected rights to informed consent and meaningful parent participation in the IEP process, and they can’t participate meaningfully if they don’t understand.

Rose Griffin
Hmm.

Anne Zachry
So, the parent counseling and training component is to help the parents get up to speed on what’s going on with their kid based on what the assessment … help them understand the disability, and also, you know, how to support and be part of the IEP team.

Rose Griffin
Right.

Anne Zachry
And, be able to be a collaborative member of the whole process …

Rose Griffin
Um-hmm.

Anne Zachry
… and have that meaningful parent participation where they’re not in there, just you know, having hysterical fits, because they don’t understand and nobody can get anything done, you know? Because that can happen. And so, I’m wondering how easy it would be for a parent to be able to get the cost of doing training through your program covered as an IEP cost?

Rose Griffin
Yeah, you know, I actually did have somebody reached out from California …

Anne Zachry
Where I’m at.

Rose Griffin
… where they wanted to sign their parent up for this parent training. That they wanted to know if I was a provider, which I think is something that’s very specific to California and the region.

Anne Zachry
Right, you have to be …

Rose Griffin
I have a friend that is an SLP.

Anne Zachry
Um-hmm. Yeah.

Rose Griffin
And I was, like, “Oh, I’m not covered on that.” So, I mean, if there’s any way that I could be covered on things like with that, she said that I would have to have a physical location in California …

Anne Zachry
No, no, no, no!

Rose Griffin
… which I’m not going to do from Ohio.

Anne Zachry
Here’s what you do. You do it as a reimbursement model. The parent pays you directly …

Rose Griffin
Oh!

Anne Zachry
… and the parents simply gets reimbursed.

Rose Griffin
Yeah!

Anne Zachry
That’s how you work around that requirement.

Rose Griffin
Okay!

Anne Zachry
Because, what you’re talking about is in California, in order for an agency to contract with the school district to provide anything special ed-related …

Rose Griffin
Yeah.

Anne Zachry
… they have to be a non-public school or a non-public agency. There’s a license you have to get from the California Department of Education.

Rose Griffin
Hmm.

Anne Zachry
And you have to have all this, like, this behemoth of a red tape process. It’s almost not even worth it for a lot of people …

Rose Griffin
Okay. Right.

Anne Zachry
… and which is why it’s so hard to find people to do it.

Rose Griffin
Yeah.

Anne Zachry
The workaround is if you have someone in private practice, and the parent simply pays and then gets reimbursed. If they have the means to do that, then a reimbursement model is the workaround for those kinds of things in special ed and that’s … you can write it into the IEP that way, or sometimes it will come up as part of a settlement agreement. And …

Rose Griffin
Okay, because I’ve had some people reach out to me that way, from California, but I’m just I’m not there. I’m not licensed in California. And …

Anne Zachry
You could do it remotely. And yeah, I mean, there’s your answer. So, if that helps you, you know, serve families in my state, that would be great! Ha, ha, ha!

Rose Griffin
Okay, good to know.

Anne Zachry
Yeah, no! There’s absolutely a work-around.

Rose Griffin
We definitely have courses that parents really, you know, enjoy, so … and just helps them feel like they have a better understanding of what’s going on in therapy, even if they’re not going to be the therapy provider themselves …

Anne Zachry
Right.

Rose Griffin
It just gives them more of an overall …

Anne Zachry
Well, yeah. That’s the whole point of understanding what’s really going on and why these things are important …

Rose Griffin
Um-hmm.

Anne Zachry
… and why it’s important for them to …

Rose Griffin
Yeah.

Anne Zachry
… you know, facilitate it and, you know, be part of the team to make it happen. You know, I would say to any parents who may have already paid for your services, especially if it’s been within the last year or two, you know, and a lot of people coming off the pandemic have had to go out and privately fund a lot of stuff that they wouldn’t have otherwise expected to have to do …

Rose Griffin
Um-hmm.

Anne Zachry
… that, they might want to save those receipts and their proofs of payment. And if they are …

Rose Griffin
Right.

Anne Zachry
… in any kind of dispute with their school districts trying to get services that they’ve otherwise had to get from you, that …

Rose Griffin
Right.

Anne Zachry
… if they were out of pocket for that, that that could be a reimbursable expense. And if they are going down that route, they do have an attorney or someone helping them with that process to have that person to look at the situation, the facts of their case, and how much they’ve had to spend on that, to see if it’s recoverable. Because you know, in very … a lot of instances, I would think that not just the speech and language or the ABA or any of this … that stuff you’re doing, but also the parent training could be a recoverable expense, because of that provision under the IDEA a that provides for parent training and counseling. So, just something to keep in mind. It could get get written into a kid’s IEP, and then, you know …

Rose Griffin
Right.

Anne Zachry
… if it’s not California, the district could potentially contract with you directly. Yeah, because we’re regulated …

Rose Griffin
Right.

Anne Zachry
… we’re so regulated. And you know, it offers a lot of good protections that the federal law doesn’t offer. But it sometimes …

Rose Griffin
Um-hmm.

Anne Zachry
… also creates additional bureaucracy. It’s like “Really?” Yeah, in other states, that wouldn’t necessarily be the case. And you could actually get your product and your services written directly into a kid’s IEP …

Rose Griffin
Hmm!

Anne Zachry
… and get funded by the district for that. Another …

Rose Griffin
Um-hmm.

Anne Zachry
… thing that I’ve seen with people doing similar kinds of programs like yours is that sometimes they will be able to get a contract with a school district to use the product, like on a licensed basis, where …

Rose Griffin
Hmm!

Anne Zachry
… you train the speech and language pathologist

Rose Griffin
Um-hmm.

Anne Zachry
… to replicate your content in their setting.

Rose Griffin
Hmm.

Anne Zachry
And, you know, any therapies or anything that you’ve developed or any strategies you develop that are branded to you then becomes …

Rose Griffin
Um-hmm.

Anne Zachry
… it’s like … it makes me think of, for pragmatic language assessments you have was Michelle Winner-Garcia, Michelle Garcia-Winner, I never can remember …

Rose Griffin
We really don’t use her that much anymore. I mean, I think …

Anne Zachry
Yeah, but back in the day, I remember that was…

Rose Griffin
… the test for pragmatic language is the CASL. Yeah.

Anne Zachry
Well, but the CASL is a standardized measure. So a …

Rose Griffin
Um-hmm.

Anne Zachry
… norm-reference test is not …

Rose Griffin
… not observation …

Anne Zachry
going to get you …Yeah, it’s not going to give you the exact same kind of a thing as an …

Rose Griffin
Right, right.

Anne Zachry
in vivo, authentic language sample.

Rose Griffin
We always do an observation.

Anne Zachry
Yeah.

Rose Griffin
Make sure that we’re observing in the natural environment. Yeah.

Anne Zachry
You want the language sample and … But her … the thing that I liked that she did was the “Double Interview.”

Rose Griffin
Um-hmm! In one of our podcast episodes, with Lisa Chattler. She’s actually a speech therapist. She lives in Orange County …

Anne Zachry
Oh, right on!

Rose Griffin
… and she talked about the double interview and asking questions. And, yes.

Anne Zachry
I think that’s really important, too. I mean, I think that there’s value in norm referenced standardized tests, but to us … especially when you’re talking about school psychology, because that’s more my domain, you could be a psychometrician and paint by numbers, and not understand what any of those tests do. You can go through the motions of administering and scoring that test, and that doesn’t mean that you appreciate what the data means. I actually had a case a few years ago, where we had an audiologist supposedly doing an assessment for an auditory processing disorder.

Rose Griffin
Hmm!

Anne Zachry
She was with … the district had the choice of who was going to do it. They didn’t have an audiologist on staff. And so they outsourced it to a non-public agency. And the young woman who was the licensed audiologist who administered the test, none of it made any sense. And she had transposed percentile rankings and standard scores on her scoring charts and whatnot. And I was like, I don’t think she understands what these numbers mean.

Rose Griffin
Hmm.

Anne Zachry
And her report made no sense. And so we asked for a second opinion at public expense, an IEE … for the district to fund an outside second opinion. And they said, “No.” And so we had to go to due process to argue over whether or not they had done a good job, and we needed a second opinion. And she gets on the witness stand, and we asked her, “Well, what’s the difference between a standard score and a percentile ranking?” And she was like, I don’t know. I’m not a statis-, statis-” (she couldn’t say “statistician”). She goes, “I’m not a statistics person.”

Rose Griffin
Hmm.

Anne Zachry
And I could just feel the attorney for the school district die inside right next to me …

Rose Griffin
Hmm.

Anne Zachry
…. because this was his case. You know, he was the one arguing that she knew what she was doing. He was a lawyer. He had no way of knowing that she didn’t know what those things were because he didn’t know what those things were.

Rose Griffin
Um-hmm.

Anne Zachry
So, he was just … she would say, “Well, of course I know what I’m doing!” So, he had her back. And, then we get in front of the judge and she just tanks! She couldn’t explain any of her data. And, then we had our own audiologist who came and testified who was an expert witness on how it should have been done, and, it was just night and day. And so, there are people out there who are going through the motions, who can administer and score a standardized assessment, but they don’t necessarily understand how to interpret the data. And they may not have even chosen the right test. In this particular case, she just used a boilerplate list of assessments that the owner of the company she worked for, who was also an audiologist, said, “This is what you do when you test for this.” And, so everybody was getting identical measures. None of it was individualized. And … I mean, for a large part, for that kind of testing, there’s only so many things you can do, but still. And so, she was just going through this list of tests that her boss had said, “This is what you do,” and listing the scores, but not explaining what any of it meant, and, in fact, she had her scores were all transposed and she had them jumbled up, and it didn’t mean anything. It made no sense whatsoever. And, so how can you trust that she even administered and scored them correctly? That does happen. For people who are thinking, “Oh, well standardized measures for pragmatic language …” If you know what you’re doing, you can go do an authentic language sample and the CASL, and that’s going to get you there. But, for people who are paint-by-numbers folks who really don’t understand, thinking they can do pragmatic language in a paint-by-numbers manner, you have to be able to engage in the act of pragmatic language of reading the person yourself in order to take the data necessary to read whether that person has intact pragmatic language skills. And, if you don’t know how to do that type of analysis, then you’re going to have … what I see is people falling more and more back on the standardized norm-referenced stuff and getting away from the observations … getting away from things like the double-interview, where they have to actually use judgment and there’s a professional level of skill that … and understanding and higher-level thinking and critical thinking skills that are required, that a paint-by-numbers, “Let’s just do a norm-referenced test and it will tell us what’s going on” … Up to a point, yes. But, that shouldn’t be the be-all and end-all. I think there’s a lot of value in some of these other, maybe standardized but not norm-referenced, maybe more criterion-referenced kinds of measures. One of the tools that I’ve seen used out here is called the Southern California Ordinal Scales of Development

Rose Griffin
Hmm.

Anne Zachry
… and, it’s broken into a cognition, a communication, an adaptive behavior, a motor skills, and one other that I’m not remembering, but all these different aspects of development that you have these subtests in.

Rose Griffin
Um-hmm.

Anne Zachry
And, it’s based on a Piagetian model …

Rose Griffin
Hmm.

Anne Zachry
… where you’re trying to figure out what stage of Piagetian development the individual is in each of the different domains. Because, when you’re talking about someone with a developmental disability, in particular, there’s going to be scatter. That, they may be higher in cognition but lower in communication, if they have apraxia. They may be higher in cognition and communication, but lower in adaptive skills. It’s just, everybody’s different, right? And so, what it looks at, is it’s criterion-referenced, not norm-referenced, and you’re coming at, “Can this person do this thing in any kind of way, yes or no?” And, so, like, when you’re testing for whether they’ve mastered the concept of conservation, the idea that mass doesn’t change even if the way that the mass is arranged is different. So, like, if you have … or volume. So, if you pour water … a cup of water … you’re talking about, like, if you have a tall skinny beaker or a short fat beaker, and you pour a cup of water into each, and you ask the kid, “Which has more?” Well, neither, because it’s both a cup of water.

Rose Griffin
Hmm.

Anne Zachry
But, a kid who has not mastered conservation is gonna say the tall skinny one has more water because it goes up higher, and the short fat beaker has less because it’s shorter, relatively. And so, they’re only looking at it from one dimension. And someone who has mastered conservation knows it’s still the same amount of water. Or, you take a ball of clay and roll it out into a snake and you say, “Is it still the same amount of clay, or is it more or less?” And, a kid who hasn’t mastered conservation will say it’s more because it’s longer, but the kid who has will say, “It’s the same amount; I just changed the shape.” And so …

Rose Griffin
Hmm.

Anne Zachry
… when you’re doing things like that, sometimes what can happen is … when you’re talking about doing those kinds of things … sometimes, the example in the test … in the Ordinal Scales … will say, “Here are some ways you can test for this,” but it doesn’t obligate you to do it exactly that way, the way a norm-referenced test would … where you’ve got to administer and score it exactly the same way for everybody … well, the scoring is the same, but the administration is not the same on a criterion-referenced … because you’re trying to whether a kid has a skill or not, not how they display it. So, if you have to do something different, like if the ball of clay doesn’t work but the beakers of water gets you there, and they can still demonstrate they have at least, you know, emerging conservation skills. But, you only do one thing with the ball of clay and that’s where you leave it, and you don’t experiment with it, it’s like when you’re testing your hypotheses when you’re doing ABA. You’ve got to fool around with it to see if you’re actually … your hypothesis is right. So, for that kind of measure, what are the various different types of measures do you think are really the most reliable for giving you the broad, full picture of how someone … someone’s communication and behavior plays into each other?

Rose Griffin
Yeah, I think what’s most important is to … whatever you’re doing, it’s going to be dependent on your work setting. So if you’re in a public school, there might be a certain expectation of what type of evaluation tests you’re going to use versus being in a practice that is either private pay or is insurance led. Every work setting is going to have an expectation of what is going to be an assessment. But I think what’s most important with an assessment is to make sure that you talk to the student, you talk to the family, and that you observe the student in different settings. So observing the student in a classroom lesson; observing the student in a less structured environment, like gym or recess or lunch, to try to get a snapshot of the student’s skills. But I really think assessment is an ongoing process and that every time that you see a student, and you work with a student, you’re going to be assessing, “How is the student doing?”, “Are they generalizing their skills?”, and “How can I help support my students?

Anne Zachry
And that makes a lot of sense. I agree with you. I think … that’s music to my ears, because I think that that’s something that’s really important is the observation of students across various different settings, because you’re going to see different presentations …

Rose Griffin
Um-hmm.

Anne Zachry
… based on different environmental stimuli, and different social demands. So I think that that’s hugely important. I think that’s where a lot of the pragmatic stuff really comes out. I think that you coming at it from the perspective of both a BCBA and a speech and language pathologist … that your ability to see the function of the behavior and a moment where pragmatics are not working for someone has to be so much more informed and enlightened than, you know, different brains having to come together to piece together the same story. So I really, truly appreciate, you know, what you’re bringing to the table and your insights into this. This whole realm of how to, you know, help people who are struggling with these kinds of issues and all the different ways that can be done. And I’m excited to share your information with our audience as well so they can go to your site and your podcast and …

Rose Griffin
Ha, ha, ha! Well, it was really nice to connect. And yes, definitely feel free to reach out to me during the podcast, my free resources, and also the courses that I discussed today.

Anne Zachry
Absolutely! And I’ll be sure to include links to everything because a lot of my families are in, like, parents support groups and stuff they’ll benefit from it.

Rose Griffin
Yeah! That’s awesome! Yeah. so it was great to connect today. Thanks for having me on.

Anne Zachry
Thank you for listening to the podcast version of interview of Rose Griffin, SLP and BCBA. KPS4Parents reminds its listeners that Knowledge Powers Solutions for Parents, and all eligible children, regardless of disability are entitled to a free and appropriate public education. If you are a parent, education professional or concerned taxpayer, and have questions or comments about special education-related matters, please email us at info@kps4parents.org or post a comment to our blog. That’s “info” at “K” as in “knowledge,” “P” as in “Powers,” “S” as in “Solutions,” the number “4,” “Parents,” (“p,” “a,” “r,” “e,” “n,” “t,” “s,”) dot, “o,” “r,” “g.” We hope you found our information useful and look forward to bringing more useful information to you. Subscribe to our feed to make sure that you receive the latest information from making special education actually work, an online publication of KPS4Parents. Find us online at KPS4Parents.org. KPS4Parents is a nonprofit lay advocacy organization. The information provided by KPS4Parents in Making Special Education Actually Work is based on the professional experiences and opinions of KPS4Parents’ lay advocates, and should not be construed as formal legal advice. If you require formal legal advice, please seek the counsel of a qualified attorney. All the content here is copyrighted by KPS4Parents, which reserves all rights.

Is LAUSD Run by a Fascist Mafia?

LAUSD Main Offices – Downtown Los Angeles

The school year hasn’t even started yet and Los Angeles Unified School District (LAUSD), the second-largest school district in the country, has already hit the ground running with illegalities left and right, not the least of which is the systemic policy issue that I’m focusing on in today’s post. It’s hardly the only violation, but its a systemic one that stands to continue hurting a lot of children with disabilities, particularly our kiddos on the autism spectrum.

What I’m about to tell you would sound far-fetched if it was not for the fact that the United States is currently engaged in a soft civil war in which right-wing extremists are attempting to change us from a democratic republic to a ethno-religious dictatorship. The evidence indicates these decades-long plans were started at the local level in city councils, school districts, and various county agencies, then percolated upward into our federal agencies before culminating in the January 6, 2021 insurrection against our democratic republic.

The reality is that I’ve been dealing with these kinds of behaviors from local education agencies for the last 31 years, and there is no end in sight for many families in local education agencies as large as LAUSD. It’s the Titanic, it’s been on a direct course for an iceberg for decades, and it will collapse and sink under its own weight before too much longer at the rate it’s currently going.

This is particularly the case as the pro-democracy backlash to recent fascist efforts to overthrow our system of government is gaining momentum as more and more high-ranking fascist individuals at the federal level face the consequences of their actions with the J6 Hearings and related Department of Justice (DOJ) investigations. When the example is finally set at the national level and all of those responsible for J6 are either behind bars or being pursued by the feds and Interpol after fleeing the country, the trickle-down of legal consequences to State and local government agencies that have been engaging in fascist practices all this time will be severe.

But, we’re not there, yet. The only way to really get there is to make public what the heck is really going on so that taxpaying registered voters in Los Angeles can make informed decisions about the people they entrust with the responsibility of educating their children, particularly their children with disabilities. So, let me get into the actual issue to which I want to call immediate attention, that being LAUSD’s unlawful and unethical method of conducting Functional Behavioral Assessments (FBAs), which it has implemented as a policy, district-wide, according to District personnel.

Title 34, Code of the Federal Regulations (34 CFR) Section 300.304 describes the parameters for how special education assessments are supposed to be conducted. 34 CFR Sec. 300.320(a)(4) mandates the application of the peer-reviewed research to the design and delivery of special education, which includes the assessment process. Taken together, these laws require that competent assessors acting within the scope of their qualifications conduct assessments according to the professional standards that apply to each of the various types of assessments being conducted, in conformity with the peer-reviewed research.

There is no standardized measure, like an IQ test, when conducting an FBA, though there are assessment tools and instruments that can help inform the process. Instead, the applicable science describes the types of critical thinking and lines of inquiry a properly trained behaviorist must apply when determining the function of a maladaptive behavior and the most appropriate ways of responding to it. The science used is referred to as Applied Behavioral Analysis (ABA).

ABA is not a special education service, per se. ABA is the science behind effective behavioral interventions. ABA services requires scientists to think independently in applying the known science to the unique facts of each individual person assessed. It’s not a paint-by-numbers, one-size-fits-all measure. It’s not psychometrics in the sense that norm-referenced standardized tests will be administered to the student. It requires more thought and higher-level critical thinking skills than that, and the people who are certified to do it must prove their abilities to function that way.

There are no formal criteria for FBAs, specifically, but they are based off the Functional Analysis (FA) procedures developed by Dr. Brian Iwata and his colleagues in their published research. While being certified as a Board Certified Behavior Analyst (BCBA) is supposed to confirm that a behavioral scientist is adequately qualified to analyze behavior, BCBA certification is not required in California for conducting FBAs in the special education context. Anyone who has gone to graduate school for a school psychologist credential should have theoretically been trained on ABA just as a part of their grad school education.

My master’s degree is in educational psychology and I had to study ABA more than once during my higher education. It is not typically part of a special education teaching credential program, other than to mention that other professionals are available in the special education context to conduct FBAs and provide ABA-based behavioral interventions.

That is, except, in LAUSD, which is using special education teachers to conduct its FBAs. It will hire Non-Public Agencies (NPAs) that specialize in providing ABA services through and under the supervision of BCBAs, but it will not allow the BCBAs to actually conduct their own FBAs to inform their own Behavior Intervention Design (BID) services, which then compromises the quality of the Behavior Intervention Implementation (BII) services. This is a district policy, according to various LAUSD employees with whom I’ve been speaking about this since April, and they don’t seem to understand why I have such an issue with it.

First, the 8th grade LAUSD student I’m currently representing in which this issue has come up has been “assessed” under this model since the 1st grade and he still has the same behavioral challenges today that he had in 1st grade. He’s made no improvements and now he’s over 6 feet tall. His toddler-like tantrums result in significant property destruction, which has only gotten worse as he’s gotten smarter and bigger over time, and he puts himself and others at risk of injury when he throws them. Not only does LAUSD’s method of conducting FBAs fail to comply with the applicable science and law, it does not work!

LAUSD’s solution is to offer yet another illegal FBA conducted by an inexpert special education teacher who must then hand off their “data” to a BCBA who is then supposed to somehow magically engage in scientifically valid BID and supervise a Registered Behavior Technician (RBT) who is supposed to provide the BII in conformity with the plan designed by the BCBA. When I point out the epic failure of logic behind this practice to LAUSD personnel, I’m met with the Orwellian Doublespeak of corrupt District administrators and the blank stares of ineptitude and rote recitations of District policy from school-site personnel.

One school site administrator actually tried to get me to lie to the parent and trick him into doing something he otherwise was not inclined to do. I analyzed her behavior according to ABA standards based on what information I could gather and ultimately concluded that she’s as stupid as she is corrupt; her behaviors were automatically reinforcing and externally reinforced by her employer, which appears to employ the dumbest people it can find in positions of authority well beyond their critical thinking abilities and professional skills so that they can be the clueless, easily manipulated henchmen of the mafiosos at the main office on Beaudry.

Basically, what we are dealing with here is science denialism and unconstitutional conduct on the part of public officials to the tune of hundreds of millions of taxpayer dollars. LAUSD is the government, regulated by the rule of law and answerable to its local constituency, but the people generally have no voice against this behemoth of a self-serving institution, which is why I’m talking about it, here.

LAUSD is long overdue for a reckoning regarding its systemic illegal conduct across all aspects of special education, and it’s probably safe to say that if the District is willing to compromise its most vulnerable constituents, that being children with disabilities, it’s likely equally comfortable violating everybody else’s rights, as well. I can’t speak to the other social justice issues in which the District might be in the wrong, but it has historically failed on the special education front ever since special education and related civil rights laws were first passed in the 1970s.

Disability-related civil rights law is truly the canary in the coal mine for American democracy. The measure of how civilized a society is can be determined by how well it takes care of its most vulnerable members, and children with disabilities are among the most vulnerable humans on Earth. If LAUSD is willing to treat children with disabilities this way, it’s top administrators should probably swap out their dress suits for animal pelts so that their lack of civility is adequately conveyed. Otherwise, they’re just wolves in sheep’s clothing, preying our our most vulnerable children.

The Chanda Smith Consent Decree came after decades of unlawful special education conduct and was in place for decades thereafter in an effort to end the District’s unlawful conduct, which it failed to do. The courts attempted to pull LAUSD out of the gutter with the consent decree, but LAUSD just pulled the courts into the gutter with it. An Independent Monitor was hired to oversee the consent decree until such time that LAUSD came into compliance with special education law, but that day never came.

Apparently, presuming that compliance would never happen, the Independent Monitor began engaging in equally corrupt behavior, assuming lifelong job security for so long as LAUSD continued to violate special education law and grifting the system by overpaying consultants who failed to make any kind of perceptible difference with respect to LAUSD’s compliance. The Office of the Independent Monitor was shut down and the consent degree was closed out following an audit that revealed excessive unnecessary spending by the Independent Monitor that could not be related to the District’s conformity with the consent decree.

Further, while it may be true that the District legitimately improved some of its special education programming, by no means had to come close to a reasonable degree of compliance, as evidenced by the number of families who have still had to file lawsuits to get services, and even that doesn’t guarantee they’ll get all of the right services for their children. Many get only some of the services their children need, making their IEPs as effective as watered-down penicillin in the face of a raging bacterial infection. For all the services they may actually get that they need, the absence of the other services they also need undermines any successes they may have in the areas in which they’ve actually received help.

Which circles back around to the question that serves as the title to today’s post/podcast, which is, “Is LAUSD Run by a Fascist Mafia?” From the outside looking in, this seems to be a legitimate question.

Let’s start with the fact that LAUSD hired computer coders to work with its in-house counsel decades ago to bastardize a piece of insurance software known as Welligent into its IEP software. As a result, LAUSD has basically bureaucratically obligated its school site personnel to break the law because of the software limitations of Welligent, or at least how it has been coded by the District, that fail to even offer compliant options to its users in many areas of special education.

For example, let’s look at the assessment plan, redacted for privacy, that was offered to my current LAUSD student, which was generated from Welligent, and compare it to another redacted assessment plan for another student on my caseload in a different school district who also needed an FBA.

Example 1, below, is the assessment plan offered to my LAUSD student, and shows the FBA as an “alternative assessment” to be conducted by a special education teacher. “Alternative assessments” usually refer to non-traditional assessment measures or methods from those typically used in the place of standardized testing.

For example, using curriculum-based assessments in the classroom to gather informal data on actual classroom performance can be a more reliable method of assessing academic achievement than a standardized measure like the WJ-IV or the WIAT-4. None of this assessment plan makes sense with respect to the FBA.

Example 1 – page 1

Looking at the table of “standardized” testing from page 2 of this assessment plan, which is referenced by page 1, FBAs are not listed. Item 7 targets “Adaptive Behavior,” but that goes more to independent living skills and self-care, like dressing, toileting, and navigating the school setting. FBAs do not fit that category and the LAUSD assessment plan has no category that FBAs would logically fit. This was a deliberate coding decision made in Welligent by the District that has absolutely nothing to do with adequately assessing children with special needs and offering them appropriate behavioral supports at school.

Example 1 – page 2

Example 2, below, shows a different student’s assessment plan from a different school district. This assessment plan offers the student involved an FBA to be performed by the school psychologist in collaboration with a district behaviorist. This actually makes sense.

In this student’s case, it turns out the special education teacher was the problem and she got reassigned to a different classroom. This student had gone without behavioral challenges until she was placed in this teacher’s class, and the FBA made clear that the teacher was the one provoking the behaviors. Objectivity is one of the most critical aspects of science that must apply to special education assessments. Can you imagine if she had been trusted to conduct the FBA?

I can assure you the quality of the outcomes using appropriately qualified people who actually care makes all the difference in the world. Whereas our LAUSD student has historically been assessed according to plans virtually similar to Example 1, above, and has now gone for over six years with next to no improvements in his behaviors, our student from whose case Example 2 was taken is now thriving in school with no serious behavioral challenges of any kind.

To be clear, it’s not like the student in Example 2 has never had issues with this school district. There were problems years ago when she was little that I had to deal with, but it had been smooth sailing until she ended up in that whacko teacher’s classroom, last school year.

Because the student’s behaviors were interfering with her learning, even though we suspected the teacher was likely the problem, we didn’t go in accusing the teacher of anything. We simply asked for an FBA to get to the bottom of the behaviors and the next thing we knew the teacher was gone. The FBA report we got back was very well-written and explained the facts without demeaning the teacher or doing anything else unprofessional.

We hit a huge bump in the road that had the potential to go really badly, but the District in that student’s case handled it professionally, compassionately, and responsibly. I’ve yet to see any of those qualities from anyone I’ve dealt with from LAUSD regarding my LAUSD student. The difference in handling is night and day, and I’ve caught both districts messing up before. The difference is that my other student was met with professionalism, while my LAUSD student is being met with science denialism and an utter abandonment of the rule of law.

It is this refusal to abide by science and law on the part of the second largest school district in the nation that raises the specter of fascism. It’s all very “Marjorie Taylor Green-ish.”

Consider that California has adopted the Common Core as its State Standards. The purpose of these standards is for our public schools in California to teach students how to use academic knowledge and skills to solve real-world problems, yet LAUSD doesn’t use academic knowledge and skills to solve problems. It denies science and breaks the law.

How can people who deny science teach our kids to use science to solve problems? How can people who have abandoned the rule of law credibly teach social studies, particularly civics, and educate our kids to become knowledgeable participants in American democracy? How is this anything other than fascism and when are the feds going to do something about it?

I tried filing a complaint with the U.S. Department of Education, Office for Civil Rights (OCR), but it twisted my words into a narrower complaint than what I alleged and then declined to investigate its twisted version of my allegations, which is a first for OCR with me, I have to admit, and it makes me fear for our democracy even more, now.

If OCR is too intimidated by LAUSD to investigate such that it makes up lame excuses as to why it shouldn’t have to, how does that not also suggest the presence of organized crime within LAUSD so large and expansive that even the feds won’t touch it? DOJ is a little busy with the J6 investigations, but I suspect all of this stuff in inter-related as multiple spokes of a wheel-and-spoke conspiracy to overturn democracy in America.

Remember that Betsy DeVos tried to shut down OCR after she was appointed Secretary of Education by the 45th President until she had the snot sued out of her and subsequently reinstated it. She also admitted that her goal was to abolish USDOE as the Secretary of Education; she took the job with the specific intent of shutting down the entire agency from within.

How many people from the last administration continue to poison the well at USDOE? It’s the same question Americans have to ask about every single federal agency, but as pointed out in the above linked-to article from The Root describing DeVos’ desire to abolish USDOE altogether also describes the conference at which she recently shared her continued desire to shut down USDOE as teaching far-right parents how to build conservative-dominated school boards in their local communities, ban books, and a host of other undemocratic activities intended to deny the civil rights of children with disabilities, LGBTQ+ students, students of color, and students from other protected classes.

It’s an anti-science, anti-democracy approach that includes anti-vax, anti-masking nut-jobs who are too dumb to know how dumb they are and/or are profoundly mentally ill, being manipulated by grifters like DeVos to vote against their own interests in favor of the interests of the grifters. It’s the “have-nots” falling for the tricks of the “haves” who know the only way they can have way more than what they actually need is to make sure others don’t have enough.

Today’s post isn’t about documenting how I’ve figured out a way to overcome whatever fascist mafia might control LAUSD. It’s about exposing what I’ve witnessed and adding my voice and the voices of the LAUSD students who aren’t getting what they need to the conversation in the hopes that it will spark others to also help hold LAUSD to account for its egregious violations of special education law.

I’m hoping that voters in LA will learn more about these issues, understand that special education social justice issues cuts across all other demographic groups, and no segment of society is safe for so long as our government is allowed to conduct itself in this way. If you are involved in any type of social justice issue in which LAUSD has engaged in discrimination and withheld services it is legally required to provide, consider getting involved with our Meetup Group, Social Justice Series – Everyday Local Democracy for All.

Our Meetup Group is not limited to people living within the LAUSD attendance area, but we certainly have Angeleños already in the Group. You can comment/DM us directly on Meetup or on our social media, or use our Contact Us form on our site with any questions/feedback. We don’t have all the answers, but awareness is the first step to solving a problem, so we’re starting there.

Interview of Dawn Barclay, Author of Traveling Different: Vacation Strategies for Parents of the Anxious, the Inflexible, and the Neurodiverse

Anne Zachry 00:00 Welcome to Making Special Education Actually Work, an online publication presented in blog and podcast form by KPS4Parents. As an added benefit to our subscribers and visitors to our site, we’re making podcast versions of our text only blog articles so that you can get the information you need on the go by downloading and listening at your convenience. We also occasionally conduct discussions with guest speakers via our podcast and transcribe the audio into text for our followers who prefer to read the content on our blog. Where the use of visual aids, legal citations, and references to other websites are used to better illustrate our points and help you understand the information, these tools appear in the text only portion of the blog post of which this podcast is a part. You will hear a distinctive sound [bell sound] during this podcast whenever references made to content that includes a link to another article, website, or download. Please refer back to the original blog article to access these resources. Today is April 28 2022. This post/podcast is titled, “Interview of Dawn Barclay, author of Traveling Different: Vacation Strategies for Parents of the Anxious, the Inflexible and the Neurodiverse.” In this podcast, which was originally recorded on April 1 2022, Dawn and I discuss her book and the challenges that children with various special needs can experience when it comes to going places in the community, including travel and vacations.

Anne Zachry 01:28 Thank you so much for doing this with me. So, you know, just to get started, if you could just introduce yourself, and then tell us about the book you’ve written and more or less the core issue that you were trying to tackle with it.

Dawn Barclay 01:40 Okay, terrific. So my name is Dawn Barkley and I have written a book called Traveling Different: Vacation Strategies for Parents of the Anxious, the Inflexible and the Neurodiverse. I have been a travel writer for the past 30-some years. I specialized in travel trade writing. And when I needed a book like this back in around 2008-2009, there wasn’t a book like this. So I wanted to write a book that would help the parents of children on the autism spectrum, as well as with mood and attention disorders. What I what I found was that the tips would help in a neurotypical family, as well. Anne Zachry 02:31 That stands to reason. I mean, that’s one of the things that research bears out, that when we start creating accommodations for people with special needs, that it turns out that it benefits everybody. I mean, look how people are now using text-to-speech to text when they send their text messages, right, you know, and that was started out as an accommodation. And now just people do it because it’s a convenience. And so it just becomes adopted as, “Well, of course. Why wouldn’t you use a calculator?” And so that totally makes sense that you would find overlap there that, you know. When you’re having to think very deliberately for someone who needs that level of deliberate thought in order to simply access the situation that, you know, it’s also going to benefit other people. So that’s an interesting finding that you’ve made.

Dawn Barclay 03:16 Well, I think it stands to reason also that when a child is taken out of their comfort zone, they can be anxious or inflexible, you know, everybody is a little out of it when they are out of their comfort zone. And children haven’t experienced those transitions as much as adults …

Anne Zachry 03:32 True.

Dawn Barclay 03:33 … they really need … It’s great when people take the time to really explain to a child what’s going to happen on a trip, or get them involved in the planning of a trip. So they have a vested interest in being successful. So little things that you can do like showing videos to a kid before they travel, so they know where they’re going. It’s not all super exciting …

Anne Zachry 03:54 No, it’s all it’s all common sense stuff. But it’s you know, when we’re talking about our special needs kids, these are things we would write it into, like, into an IEP, an accommodation for priming or front-loading, you know …

Dawn Barclay 04:06 Right.

Anne Zachry 04:06 … to warn them of transitions ahead of time, to give them a visual schedule so that the …

Dawn Barclay 04:11 Right.

Anne Zachry 04:11 … daily routine is predictable. And you know, and it really goes to … you’re right, it’s a fundamental human thing, that anxiety is about lack of predictability.

Dawn Barclay 04:20 Yes.

Anne Zachry 04:20 And when you don’t know what is coming next, it makes you anxious. And so you know, we all have our ways of dealing with that. And when you’re talking about kids, they haven’t necessarily develop the repertoire of skills …

Dawn Barclay 04:34 Right.

Anne Zachry 04:34 … and certainly as you were talking about a kid with special needs, the speed with which they’re acquiring coping skills may not be as quickly as, you know, typically developing kids who may pick them up through observation, whereas some of our kids may need to be explicitly taught.

Dawn Barclay 04:48 Yeah, you’re totally on target. And that’s what I found. And that’s what a lot of the advice revolved around is how to prep the child for each different type of trip. Whether depending on mode of transportation, or whether it evolved through restaurant or camping, or going to a hotel versus a vacation rental, any type of situation they might be put into, “How can we prepare?” and, “How can we smooth the way?”

Anne Zachry 05:16 Yeah, so that you know what to expect, and you’re not worried or freaked out and anxious. That totally makes sense. And yeah, and it goes to ecological control, too. And you said something interesting in your email to me when we were setting all of this up about how some kids may need to start small. And maybe it’s not even like an overnight trip anywhere, it’s like going to a garage sale, or, you know, just going through a novel environment of any kind. And just, it’s a skill that needs to be generalized. And so what …

Dawn Barclay 05:45 Yes.

Anne Zachry 05:46 … what was, what were your findings with regard to scaling and in scaffolding the complexity of the outings?

Dawn Barclay 05:54 Well, I have devoted a whole chapter to starting small, because I think it’s vital to preview what the trip is going to be like, before you actually do it. And you’ve got a lot of time and money and energy invested in it. And so a lot of it involved social stories, which I would imagine that …

Anne Zachry 06:13 Yeah.

Dawn Barclay 06:13 … you’re familiar with.

Anne Zachry 06:15 Yep.

Dawn Barclay 06:16 And also videos. But even before all of that, to do something small, like you said, like maybe if you’re planning a trip to Italy, you would have some Italian food and talk about currency, or maybe introduce some Italian words, and just try to teach children that there is life that out there that’s different than the way they experience it, and just make it fun for them. But also, like you said, like a garage sale, or a trip to the post office, any trip, you can take a child on can be a learning experience, if you couch it that way.

Anne Zachry 06:55 Right.

Dawn Barclay 06:55 I mean, I take them to a bakery that specializes perhaps in you know, like an Italian bakery or German bakery. And there are things that they’re not familiar with and little by little get them excited about maybe trying something new. Local festivals in your town might be a good short trip, or a zoo, or an aquarium. Any of those can start the child getting used to something that will involve maybe a tour later on, on a vacation. And you can always refer back and say, “Oh, remember when we went on that tour to the aquarium? You’ve sort of experienced that.”

Anne Zachry 07:32 You can even create a social story about outings in general based on past experiences on a smaller scale like that, and take photos and then, “Okay, well, when we go on the big trip, we’re gonna go to other places where we take a tour. You remember the rules for tours, right?” And …

Dawn Barclay 07:48 Right.

Anne Zachry 07:49 … and whip out that social story with pictures of them having successfully done it before, and it just reinforces “Oh, I can handle this.” So I think that’s really smart. Well, that’s really clever stuff. Well, so can people … where can people get the book? Is it on Amazon or other places? Where are you selling it?

Dawn Barclay 08:06 Right now it’s on pre-order. It’s coming out August 15. But it is on pre-order on Amazon, on the Rowman and Littlefield website, on almost any online retailer. And we’re hoping that we’ll be in libraries as well. Right now you can preorder in hardcover, or in audiobook.

Anne Zachry 08:27 Okay.

Dawn Barclay 08:27 The … that … you can’t preorder the digital the ebook yet.

Anne Zachry 08:31 Got it. Okay. That’s good to know. Well, we do have our own online store of books, that is really just Amazon, that we use for fundraising for our nonprofit organization and to put useful tools in the hands of the families we serve. And so if you’re listed on Amazon, that’s easy enough for me to just, you know, include you in there so folks can pre-order, so I’ll be sure to do that. And then, yeah, and then we’ll have a link for that to the post as well, so that people can just click right on over. In your situation, what you’re doing is so elegantly simple. And so, you know, most brilliant things are. Because you’re just … you’re whittling it down and distilling it down to, you know, you don’t need to overcomplicate this. That’s what freaking everybody out is it’s overcomplicated in their mind, and it’s too chaotic, and you’re just, like, bringing it down to a succinct, “No, here’s what’s going on. Here’s the predictable thing that you can expect.” And you’re taking something that’s unpredictable and turning it something … into something predictable and more easily managed emotionally for …

Dawn Barclay 09:31 Yes.

Anne Zachry 09:32 … for people who struggle with lack of predictability for, you know, for whatever reasons, which we all do to one extent or another. But I think that there’s very definitely … I know for my families that have to struggle every summer with, “Do we accept the offer of extended school year services from the school district, or do we send our kid to some kind of camp where they could potentially get more, or do we do a family vacation?” and, you know, “What if we want to do all three? And how do we schedule all of that?” And I think that your, you know, your bottom line point that as long as you’re -predicting and you’re front-loading and you’re priming. And you’re thinking deliberately about how you’re going to pace everything that it can be done. And very often, you’ll have kids who do extended school year to work on things like social skills, or their …

Dawn Barclay 10:21 Yes.

Anne Zachry 10:21 … you know, their communication and their behavior. Well, they can also work on those same things if they’re in a national park, you know, listening to the park ranger explain how, you know, what to do if you see a bear.

Dawn Barclay 10:35 True, and there are special passes for those with invisible disabilities for national parks.

Anne Zachry 10:41 Yes, there are.

Dawn Barclay 10:42 I talk about how you get that, and I talk about camping as well. If you want to take a small trip that might start with an overnight in your backyard, just so you can test what camping is like …

Anne Zachry 10:52 Exactly.

Dawn Barclay 10:53 … and then how to gauge … how to evaluate a campground ahead of time to make sure it’s going to work for you. There’s a checklist for that. There are checklists for if you’re going to rent a vacation rental, things you should look for.

Anne Zachry 11:06 Oh, that’s so huge.

Dawn Barclay 11:08 Yeah. And when you talk about hotels, another tip for starting small is maybe just spending a night at a friend’s house with a guestroom …

Anne Zachry 11:17 Yeah.

Dawn Barclay 11:18 … the child can get used to just staying in a different location and sleeping, to see how they adapt to that.

Anne Zachry 11:25 That makes a lot of sense, that makes a … totally makes a lot of sense. Yeah, I mean, it’s the baby steps sometimes before you take the large leap.

Dawn Barclay 11:33 Yes.

Anne Zachry 11:33 And, yeah, and it’s scaffolding, I mean, when you’re when you’re talking about instruction, when you’ve got a child whose functioning below grade level, you just don’t hit them full force with the grade level content. You back up a little bit, and you teach the prerequisite skills that they need to master that might be at a lower level. But if you don’t know that, the bigger thing is not going to make any sense, you know?

Dawn Barclay 11:55 Sure. Of course.

Anne Zachry 11:56 And so it’s you have to take those baby steps and work someone incrementally towards their comfort level, and where they’re at a place where they can master something new. And that’s really what, you know, it’s the same concept just applied to, you know, the real life situation of just going out in the world and participating. And, you know, it’s not really about the academics per se, but the concept still applies to learning how to access the world around you. So I think that’s, you know, obviously, it’s a very transferable concept. And you’ve … it sounds like you’re applying it in a really smart way. I’m excited to see your book now that you’ve told me all these awesome things and planning the things that are in it, because I’m telling you, I have families who are like, “We don’t know what we’re going to do this summer.” And a lot of families who are just like, “We’re just not going to do anything, because it’s too hard to figure it all out.” But if there’s something …

Dawn Barclay 11:56 That’s so true.

Anne Zachry 11:57 … yeah, there’s something they can use that will help … because I think for a lot of moms in particular, it tends to be the case that moms are the ones saddled with the planning …

Dawn Barclay 12:53 Yeah.

Anne Zachry 12:53 … and the logistics, and getting everything together and organizing everything. And just the thought, I mean, I can feel my own heart palpitating. You know, I remember doing Girl Scout events and having to get all those things together. And I know what kind of anxiety is around being the planner.

Dawn Barclay 13:09 There’s been a study where they interviewed 1000 families and, of the ones with special needs, 93% didn’t travel but said that they would if they knew where to go and how to handle it.

Anne Zachry 13:21 Exactly. No, that totally makes sense. Well, I think, you know, this is a huge service for the community of families that we serve, this is definitely information that families need. So I’m excited to share it all out and see what the response is to it once it comes out. I mean that right now it’s preorder so no one’s it’s not available for review at the moment. But it’ll be exciting to see what people say once they’ve gotten a chance to look at it. How have the preorders been going? What kind of feedback have you been getting from people now that you’re going around promoting it?

Dawn Barclay 13:51 Well, I don’t get to see the preorder numbers. However, we did send it to some people … early endorsements for the back cover. And I was very, very happy with what people had to say, especially people who had written books about autism, and they were very positive about it. So that made me feel good, because the only people who had really read it before that was my agent and my publisher …

Anne Zachry 14:14 Right, on.

Dawn Barclay 14:15 … you know, I really hadn’t heard from the community. And when I heard from them, and they felt that this was a very helpful book that made me feel great, because if I get a letter from someone in the future, who’s read this book and said, you know, “Because of what you wrote, we traveled and thank you because you opened up the world to us,” that will have made it all worthwhile for me.

Anne Zachry 14:36 I totally understand that. I mean, that’s as advocates, that’s what we’re doing is, we’re in the business of opening doors for people who otherwise they wouldn’t open for, and it is. It’s incredibly gratifying to realize that, you know, even if it’s something simple, but certainly when you put forth this kind of effort to know that other people are benefiting from it. Yeah, it’s very … it’s just, you know, you’re reason to get up in the morning. I get it, I totally get it.

Dawn Barclay 15:04 It’s true, and there’s so many people out there who don’t know what the resources are, like there are certified autism travel professionals out there who have dedicated themselves to being able to plan trips for families …

Anne Zachry 15:17 Holy Moly!

Dawn Barclay 15:17 … on the spectrum, and there are different certification companies like IBCCES, and that stands for the International Board of Credentialing and Continuing Education Standards.

Anne Zachry 15:31 Right.

Dawn Barclay 15:31 … IBCCES, they created the Certified Autism Centers, and they go around certifying and training different venues to know how to work with the autistic population. And that’s so important, because then you have certain resorts who have dedicated themselves to training their staff to helping.

Anne Zachry 15:50 That is so cool. Well, it’s interesting now that you’re saying all of that, because separate from the work that we do through our advocacy organization, I also have a separate program that I created that we operate, called the Learn & Grow Educational Series, which is part of the ecotourism circuit, and we address food security and sustainable living instruction through project-based learning and modeling. So online and in-person teaching, and we’ve actually got a teaching garden in a space that we use to do that kind of instruction. And that’s something that actually I’d be interested in doing is getting us certified that way, because I’ve already got the master’s degree in educational psychology, I already serve people on the spectrum every day, I understand how to apply the science but having a certification that says, “Yes, Anne knows what she’s doing,” I can see the value in that as well. So that’s really interesting.

Dawn Barclay 16:42 Yeah, I can certainly tell you who to speak to, because not only does IBCCES do it, sorry, I’m tripping over myself …

Anne Zachry 16:50 No worries.

Dawn Barclay 16:51 … there are other organizations that are also starting to certify, like the Champion Autism Network, there’s Culture City, there’s Sensory City, just a number of people who are taking up the cause. But of all of them, I believe IBCCES has been around the longest, and they have done the most work for the certifying …

Anne Zachry 17:10 Right.

Dawn Barclay 17:10 … if you go to autismtravel.com, you can download their most recent list their catalogue of different locations. And what I have done is combined a lot of what they’ve done with other autism friendly resorts and attractions. And you have to be very careful whether it’s certified or autism-friendly, because these things always change …

Anne Zachry 17:34 Right.

Dawn Barclay 17:34 Certifications change. In fact, the new catalog just came out in there are some that are not in my book. And that drives me crazy. So I’ll be running the Traveling Different blog that will update my book. That’s the only way I can live with myself.

Anne Zachry 17:50 I totally get it. Yeah, because once it’s printed, you’re like, “Oh!” and then things change.

Dawn Barclay 17:56 “Ahh! I don’t have that one.” But what’s also important is, and I mentioned that several times in the book is if you see something that says “autism-friendly,” you have to do your due diligence. You have to call them or write to them and find out exactly what that means. What is their training entail? What have they actually done? Because it means different things to different suppliers, and it doesn’t necessarily mean that it will be right for you. And also then you might be autism-friendly on the weekend, or on certain days in the month. That doesn’t mean that they’re always gonna have like autism-friendly days or low-sensory days at a museum every day.

Anne Zachry 18:33 Right.

Dawn Barclay 18:34 It might be one Saturday, a month. You have to be careful.

Anne Zachry 18:36 Right. No. And I know that in the greater Los Angeles area, and that the museums and the different aquariums and things that they’ll have those types of events, but you’re right, it’s scheduled. And it’s only like once a quarter or once … Yeah, so you have to, it’s not like they’re just going to accommodate you like that on the fly necessarily. So …

Dawn Barclay 18:37 Right, you have to make sure that it’s going to happen while you’re there. What I’ve also done in the book that I think it was very important I thought for me is I think most people with children on the spectrum know that they can obsess about a specific topic for up to 16 hours a day. It’s their life.

Anne Zachry 19:13 Yep.

Dawn Barclay 19:13 So what I’ve included is a whole list of museums for special interests that are not necessarily autism-friendly, but they’re going to be autism-friendly for your child because your child is going to be so thrilled to be there, that it might help overcome other obstacles …

Anne Zachry 19:29 Yeah.

Dawn Barclay 19:29 … like flourescent lighting or other sensory issues because I think there’ll be so excited that here … like I talked about one child that was … I don’t know if they were in Montana or somewhere in that area … and there was a mustard Museum, and the kid was crazy about mustard and only talks about his how his parents took him to this museum. So museums all over the country. So say you happen to be going to Cleveland and your child is interested in something you know some oddball …

Anne Zachry 19:58 Yeah, area of interest. Yeah.

Dawn Barclay 20:01 … and that would turn the whole business trip into a really memorable trip for your child because you engaged in their interests. And the trip has to be child-centric. And once you get, you know, that idea that we’re going to build it around the child, I think everything starts to fall into place. So I do include a very large chapter about that, as well as ways to find other museums.

Anne Zachry 20:23 That is so cool, this is really interesting, I’m really looking forward to seeing the book when it comes out. Thank you so so much for tackling this, because you’re right, this is … this has been an area sore need for a long time. And you do have to have that blended knowledge of the travel industry and be a travel insider to be able to speak to what all these different places can do and what your options are, and how you go about asking for those kinds of things. But you have to understand what the needs are in the first place to know that you need to ask, and so, you know, you’re in this nexus between the travel industry and the disability community, you know, making those connections between where the needs of one overlap with the abilities of the other to serve. And …

Dawn Barclay 21:11 Well, and it does take a village right?

Anne Zachry 21:11 So, but you know, it also takes somebody to be that person who ties it all together and, you know, puts it down in writing for everybody to use in the, you know, your role is very significant in that because even though all of these people may have possessed all of this disparate knowledge, it needed to be distilled down into something that the lay public could access and make use of, and that’s where you basically act as a scribe and made that happen. So I think that that’s a gift to be able to take what you already know, and connect with the … with people who are going through these unique circumstances, and be able to create a tool like this. So this was really exciting stuff. Thank you so much for doing the work.

Dawn Barclay 21:11 And I thank goodness for the people who contributed to this book, because this isn’t my story, this is the culmination of over 100 interviews with parents, with certified autism travel professionals, with health professionals like Tony Atwood and Dr. Ellen Lippmann, and different organizations, and different advocates and allies, and all of them taught me so much. And that’s what … I couldn’t have written the book without them.

Anne Zachry 21:39 Thank you.

Dawn Barclay 21:39 I learned so much. I mean, I would have never known that there were therapeutic aspects to diving vacations, or to golf vacations, or to skiing, and there’s so much out there for this population now, because everybody is trying to be so much more inclusive than they were before.

Anne Zachry 22:35 Right.

Dawn Barclay 22:35 So it’s just fascinating that you can go to a dude ranch, and there are ones that will cater to your child, or you can go to rent a house boat, we should really know the safety measures that are involved in that or if you want to rent a yacht, because, you know, if you rent a private boat, you certainly have enough room to bring along friends or family that can help take care of the child. So it’s not only on the parents.

Anne Zachry 23:01 Right, no that’s a really good point, too.

Dawn Barclay 23:04 … all kind of gels together.

Anne Zachry 23:06 That’s really interesting. Now, I will say that a lot of our families are not going to be renting yachts anytime soon. I mean, a lot of folks, you know, what isn’t appreciated very often is the added expense that comes along with parenting a child with special needs, and that, you know, even a middle class family can find themselves struggling just because of those added expenses. So I think that the … you also, you know, talking about these other options, and that where you start small at a more local level, still builds the skills and still gives them that exposure, even if you know, we’re not going to go to Europe this summer, but we’re you know, maybe we’re gonna go, you know, we’re going to drive for six hours and go stay with aunts and uncles in another part of the state, you know, and, and so whatever the scale of it is, really, it comes down to the experience for the child and the predictability of it. And having your ducks in a row in terms of, like you said, planning it and making a child-centric plan about how you’re going to handle your trips, which I think is really smart. I mean, it’s not about saying that any one person is more important than everybody else; it’s just saying that this person’s needs are going to be the most demanding ones we need to accommodate, and at minimum, we need to make sure we take care of x, y and z. And then we can take care of everything else around that and you know, you get those those the hardest things you’re going to have to accommodate out of the way and then everything else is easy going forward. So …

Dawn Barclay 24:32 Right, and I agree with you, not everybody can afford a yacht. I certainly can’t. I do spend a lot of time talking about car travel, bus travel. I talked about how the Autism on the Seas Company has a scholarship or a grant for people who can’t afford to sail on their own …

Anne Zachry 24:51 Right on!

Dawn Barclay 24:51 … if they want to take advantage of an autism cruise. I do talk about how to handle restaurants and how to do camping, so I do include all that information and I’d like to think that this book can help people from, you know …

Anne Zachry 25:05 From across …yeah, across the socio-economic spectrum.

Dawn Barclay 25:08 Yes.

Anne Zachry 25:08 Yeah, because you were talking about camping and things like that. And I’m thinking to like, even if you do make it to Europe, maybe you’re not going to rent a car, you’re going to be using public transportation.

Dawn Barclay 25:17 Right.

Anne Zachry 25:18 And you know, and you’re gonna be using a Europass, or whatever. And so, yeah, so there’s a lot of things that have to be factored in. And everybody’s situation is unique. And yet there’s these things in common that, you know, these unifying factors that if you just attend to these details, then all of the things that are unique, will still be manageable. So …

Dawn Barclay 25:39 And also, like, how to keep safe, how to make sure you don’t lose your child, and safety measures to take. All information like that. That’s so important to have.

Anne Zachry 25:47 That’s so huge. Absolutely. My goodness! Well, this was just a very enlightening conversation. I really appreciate you sharing all of this with me. I’m looking forward to sharing your information with everybody and hearing what they have to say about it.

Dawn Barclay 26:01 Absolutely. My pleasure. Thank you so much.

Anne Zachry 26:03 You’re so welcome.

Anne Zachry 26:04 Thank you for listening to the podcast version of interview of Dawn Barclay, author of Traveling Different: Vacation Strategies for Parents of the Anxious, the Inflexible and the Neurodiverse. KPS4Parents reminds its listeners that knowledge powers solutions for parents and all eligible children, regardless of disability, are entitled to a free and appropriate public education. If you’re a parent, education professional, or concerned taxpayer, and have questions or comments about special education related matters, please email us at info@kps4parents.org or post a comment to our blog that’s info at “K” as in “knowledge,” “p” as in “powers,” “S” as in “solutions,” the number “4,” “parents,” P-A-R-E-N-T-S dot O-R-G. We hope you found our information useful and look forward to bringing more useful information to you. Subscribe to our feed to make sure that you receive the latest information from Making Special Education Actually Work, an online publication of KPS4Parents. Find us online at KPS4Parents.org. KPS4Parents is a nonprofit lay advocacy organization. The information provided by KPS4Parents in Making Special Education Actually Work is based on the professional experiences and opinions of KPS4Parents’ lay advocates and should not be construed as formal legal advice. If you require formal legal advice, please seek the counsel of a qualified attorney. All the content here is copyrighted by KPS4Parents which reserves all rights.

Fecal Smearing, Disability, and the January 6, 2021 Insurrection

This is not a pleasant topic at all, so I want to start out this post/podcast with the understanding that I know this isn’t a pleasant topic. That doesn’t make it something to avoid, however. Problems aren’t solved by pretending they don’t exist.

For those of us who work with people with significant mental disabilities, fecal smearing, otherwise knows as “scatolia,” is a behavior we usually encounter among individuals with significant developmental disabilities and dementia. These behaviors often happen among these populations very frequently alongside other bowel-related health issues, such as constipation and encopresis. Simply put, constipation is poop not coming out and encopresis is poop not staying in.

The function of most fecal smearing behaviors appears to be communicative, especially among individuals who are nonverbal or have limited verbal abilities. In verbal individuals who engage in these behaviors, other significant mental impairments are still present, whether its the loss of mental functioning due to dementia; the failure of mental maturity due to developmental disabilities, such as intellectual disabilities and/or autism; or some forms of mental illness. Fecal throwing and smearing can also be seen among other primates. It’s a primitive, infantile behavior.

When I was 20 years old, I worked in a nursing home providing hands-on care to medically fragile and/or mentally compromised elderly people. All of us knew who the poop-throwers were. The one on my wing was also an Evangelical Christian who would sing church hymns while throwing her poop at anyone passing by and accusing them of being the Devil. The exception was the visiting Evangelical pastor who would stop by to visit the patients every week, but he would come down the hallway singing a hymn at the top of his lungs so she would know it was him before he walked into her room, or he would get it, too.

I encountered fecal smearing behaviors once again when I finished my undergraduate degree and started working as a job coach in the community with adults challenged by developmental disabilities. One of the young men on my caseload was a fairly capable individual with autism who, in spite of his many attributes that made him employable to bus tables, serve drinks, and perform general maintenance in a restaurant, would engage in fecal smearing whenever someone made him upset. What had started as a behavior when he was younger with less language abilities had become a deeply entrenched learned behavior that followed him into adulthood long after he had developed completely intact verbal communication skills.

The differences between these two examples from my own life were important to note. In the nursing home, the woman on my wing with fecal throwing behaviors was kept on laxatives so that her feces wasn’t solid enough to hold in her hand for throwing. Cleaning up bedpans was infinitely less work and trauma than jumping into the hazmat shower fully clothed and going home in scrubs from the supply closet because our own clothes had been ruined.

By comparison, the young man who struggled to hold onto a job and a group home placement because of this behavior was successfully broken of the habit through Applied Behavioral Analysis (ABA), Cognitive Behavioral Therapy (CBT), and psychotropic medication management to address anxiety and depression. Because he was verbal, he was able to talk with his therapist about the feelings he was having when he engaged in these behaviors and we were able to come up with a plan that helped him deal with those feelings appropriately, eventually extinguishing the scatolia altogether. He’s been employed every time I’ve encountered him since, mostly in the community eating at the restaurants where he has worked.

What we discovered based on what he was telling us is that, historically, he had found himself in situations where he couldn’t tell people what he was thinking for lack of language and, later, as the language started coming on, because he was afraid to complain about certain things for fear of retaliation or punishment. The degree to which he was correct in his perceptions about those past experiences is not as important as the fact that he was afraid to say anything with words, but he could express himself non-verbally through fecal smearing.

Fecal smearing behaviors tend to orient around protest, disagreement, and retaliation, based on what little research has been conducted on the topic so far. Most of the available research comes from mental institutions and long-term care facilities. I could find no research about fecal smearing happening in the general community, though such research may exist and I just couldn’t find it. So much of the research is hidden behind paywalls that it’s not accessible to everyday people, which is a topic of discussion all to itself for another time.

I brought this subject up in my book club last night (we’re currently reading The Gifts of Imperfection: Let Go of Who You Think You’re Supposed to Be and Embrace Who You Are, by Brené Brown, PhD, LMSW). One of the other club members shared that her home had been broken into years ago and robbed. The robbers also pooped on her wooden floors, ruining the finish, and she had to wait for a year-and-a-half to have the time and money to refinish her floors, with the damaged spot where the poop had been, serving as a daily reminder of the sense of violation she had experienced. Now that I think about it, the same thing happened to my grandparents in the 1990s while they were on an RV trip, only the poop was on their walls.

My book club friend stated the police officers who had responded to the call advised her that this was a common behavior witnessed among break-in robberies like hers. Law enforcement may be a better source of information about the prevalence of fecal smearing in the general community, which goes to the degree to which we have delegated the responsibilities of our mental health agencies to law enforcement. Behavioral researchers should look there for data about the frequency with which these incidents occur and how they are addressed.

Needless to say, there was no scholarly research I could find that was specific to the fecal smearing behaviors that happened during the Insurrection of January 6, 2021, at the Capitol of the United States of America. Only official records from the government and reports in the media capture the incident. I’m quoting the Trial Memorandum of the U.S. House of Representatives from the second impeachment proceedings against the 45th president of the United States, here:

Once inside, insurrectionists desecrated and vandalized the Capitol. They ransacked Congressional Leadership offices—breaking windows and furniture, and stealing electronics and other sensitive material. They left bullet marks in the walls, looted art, smeared feces in hallways,and destroyed monuments … [Emphasis added.]

This has been bothering me ever since it was first reported shortly after the Insurrection that fecal smearing had occurred during this incident as well. Based on what I already know about fecal smearing behaviors, what that tells me is that at least one person with profound disabilities was among the Insurrectionists.

Based on the other overt behaviors of the Insurrectionists, it’s safe to say that America’s mental health crisis reached an apex of sorts, though it isn’t done showing itself, yet, based on the continuing domestic terrorism threats we all still face. It’s an Extinction Burst of a sort, and one we cannot afford to reinforce. These individuals are seeking reinforcement for behaviors that were once rewarded and escalating their behaviors when the rewards are not forthcoming.

I think they’re all cries for help, but the behaviors are so off-putting to most other people that they are disinclined to help and eager to ostracize anyone engaging in them. I think ostracizing these people helps the rest of us avoid the unpleasantness of dealing with these behaviors, but it’s not a democratic response, much less an ethical one. We need a plan as a people on how to solve these problems, not punish people for having them. I’m not saying that people who commit crimes shouldn’t pay for them. I’m saying that the causes of criminal behaviors have to be addressed so they don’t happen in the first place. There is way too much money being made on incarcerating Americans instead of helping them.

The bigger concern for me, these days, though, is how many other people in positions of power actually understand the severity of our nation’s mental health crisis and choose to exploit these individuals rather than meet their needs, such as the 45th president of the United States, for example. Protest, disagreement, and retaliation are the usual communicative functions of fecal smearing, and the Insurrection-related fecal smearing doesn’t appear to be different in that regard. Everyone involved in the Insurrection was there to protest, disagree, and retaliate. What this specific form of communication tells us is that the people who engaged in it felt desperate enough to express their feelings through these actions rather than words, as if words had failed them and/or they didn’t feel safe to use them.

When people are mentally impaired and don’t fully understand everything going on around them, they can easily become confused, misled, and manipulated by others. They are often aware when others are mistreating them even if they don’t fully understand the hows and whys. They know when they find themselves in a disadvantaged situation and will harbor valid resentments about it, but they often don’t know who did what to make it happen, much less what to do to make things better.

When you have a right to be angry but you don’t know how to get out of the situation, and no one is stepping up to help you, it’s easy to become angry at everyone. You feel like the whole world is against you and there’s nothing you can do. At that point, you default to the highest stage of social emotional development you’ve completely mastered, which may be well below your chronological age depending on the degree to which your social emotional development was healthy or not. Once someone becomes so overwhelmed emotionally in the absence of a solution that they start freaking out, very childlike – even infantile – behaviors are likely to ensue.

In the name of “liberty” and “freedom,” we’ve absolved ourselves of any responsibilities for the welfare of our neighbors. Personal liberty becomes confused with narcissism. People pay lip service to the ideals of the Constitution while exploiting their neighbors for financial gain. Money is an imaginary construct that many people value more than human life.

Many of these same people claim to be true believers in Christ, effectively singing church hymns as they sling their poo at everyone else. I don’t recall any part of the New Testament encouraging that kind of behavior, but religious scholars who have studied the texts more closely than I have are welcome to correct me if I’m wrong.

Most of us understand that the people who got sucked into the 45th president’s own mental health crisis are also not well, but they also account for approximately one-third of our population. That makes them a dangerous minority that has now grown into a domestic terrorism problem. It puts the assertions by the majority of Muslims around the world that Islam is not a religion of violence into context, now that we’ve got our own violent religious radicals here at home calling themselves Christians.

The inextricable intertwining of religion and mental health problems in societies is yet another topic for a separate conversation, but I have to point out that there are many responsible faith leaders struggling to lead as many of their congregationalists abandon the teachings of Christ to follow every wolf in sheep’s clothing that steps into their path. American commercialism and its own brand of capitalism have created a competitive mindset about everything in our culture.

It’s “My high school football team is going to crush your high school football team.” It’s, “My church is made up of the chosen and all the other churches are full of people going to Hell.” It’s, “My neighborhood is the best and everyone else lives in a dump.” Where is this narcissistic drive to be “better” than everyone else coming from in a society that’s supposed to be democratic? Why do we feel driven to create a caste of “losers” to make ourselves feel like “winners”? How does hurting other people make someone a “winner”?

People have developed brand loyalties around things that aren’t actually brands. American consumerism and its obscene obsession with the pursuit of material wealth has grossly undermined the uniform message of every great faith. Wanting more than what one needs while others go without contradicts every pious teaching of every great religious leader the world has ever remembered. We’re all supposed to be collaborating with each other, not competing with each other, to survive as a species.

Raising children from birth under conditions that deprive them of developmentally necessary opportunities to reach adulthood physically, mentally, emotionally, and spiritually intact, is an uphill battle. The science is clear that the type of family support system an individual has is irrelevant; what matters is whether they have any type of support system at all.

Children growing up in homeless shelters with after school tutoring, social services, higher education and job placement services for parents, etc., remain as academically intrinsically motivated as children living in traditional family homes with access to resources. The gender identity and sexual orientations of parents have zero bearing on the quality of their parenting. Parenting becomes poor when it fails to nurture childhood development, regardless of the gender or orientation of the parent.

What we can safely deduce from witnessing current events as it relates to the known science is that being raised in economic extremes, whether extreme poverty or extreme wealth, deprives children of developmental opportunities that undermine their mental, emotional, and communicative growth. Extremely wealthy children are at risk of never learning how to do anything for themselves and will implode the minute they have to deal with serious life challenges. Extremely poor children are at risk of malnutrition, homelessness, and other hardships that make mere survival the priority without the opportunities to work on any other part of their development.

As the middle class in America continues to disappear, we’re at risk of more and more people ending up at one economic extreme or the other and their children growing up thinking that humanity is truly divided as a matter of nature into two classes: the “haves” and the “have nots.” If that’s all they see growing up, the divide becomes a hard and fast expected part of society. What do you think happens to a society that is made up entirely of people who failed to reach developmental maturity? It goes Lord of the Flies pretty quickly, after that.

In my ever-worried imagination, under such circumstances, humans will return to the trees if we survive as a species at all. I keep thinking, “Maybe the bonobos will have a better go at sentience than we did.” It makes me want to teach them sign language just so I can tell them all the mistakes we’ve made and what to avoid. The first thing I’ll teach them is, “Use your words, not your poop.”

Returning to the present issue of poop-smeared threats to our democracy wrapped in Confederate flags, I have a theory about one particular aspect of the problem that I haven’t seen discussed in the news about the Select Committee’s investigation into the Insurrection of January 6, 2021. In my line of work, the Americans with Disabilities Act and Section 504 of the Rehabilitation Act come up quite frequently. When I see things that do not appear to conform with their requirements, they jump out at me.

Given that were clearly dealing with people struggling with mental disabilities of one type or another, and given that social media has been instrumental in feeding them misinformation while giving them the tools to organize, it appears to me that the social media algorithms are not coded in a manner that reasonably accommodates users with the types of mental disabilities that make them vulnerable to misinformation and recruiting tactics of foreign adversaries and domestic terrorists.

If anything, social media’s absence of reasonable accommodations in its coding for users with these types of mental issues is creating more domestic terrorists than we already had in the first place, suddenly taking them from the fringes of our society to a sizable, dangerous minority of violent people bent on overthrowing the government. In the absence of effective mental health interventions, the manipulators swooped in and weaponized our own neglected mentally impaired citizens against us.

What we don’t take care of will take care of us. That’s the whole reason that “being careful” is so important. “Being careful” isn’t about avoiding problems, it’s about being full of care. Being caring means being responsible for your community as well as yourself and your immediate loved ones. It takes a village, as they say, but if you neglect your village, you cease to be part of it.

We’re all different for a reason. Whether you’re a person of faith and see it as a component of our Creator’s Great Plan or you’re a secularist who sees it as a function of nature and evolution, or you’re like me and think that nature and evolution are parts of the Creator’s Great Plan, it’s an obvious fact that we’re all meant to be different by design.

The failure to appreciate the role that diversity serves for the balance of everything has led to efforts by a few unstable individuals who manage to acquire power and try to remake humanity over into a monolith, casting out those who, by design, cannot conform to their invented social hierarchies. This is the essence of discrimination. It’s what causes people with disabilities to be regarded as less than human.

Anyone who is discriminated against for any other reason should be empathetic to the discrimination experienced by people with mental disabilities that affect their behaviors, but our knee-jerk reaction is to be repulsed by the most extreme behaviors in which we see these people behave. These behaviors, while often intolerable and highly inappropriate, are still cries for help, we need to see them that way, and we need to collectively demand our elected officials to enforce the ADA and Section 504 when it comes to social media algorithms.

My theory is that, if we use the existing language of the ADA and, where applicable, Section 504, to compel social media platforms to stop preying on the weakest minds among us, it will not only create jobs for coders knowledgeable of the law, but also enforcement officials knowledgeable of the code. Rather than looking at the daunting task of coding the Code into social media platforms as an insurmountable challenge, it should be seen as a significant step towards true democracy that creates desperately needed jobs.

The solution would solve more than one significant problem in this country and serve as an example of adult-level problem-solving for the rest of the world. Marketing research tells us that customer loyalty is greater after a vendor has had to work with a customer to solve a problem than if there was never any problem at all. It’s not a source of shame for America to trip over its own feet and experience growing pains as it sheds the hypocrisy and anti-democratic practices of the past; what makes it shameful or not is how we respond.

If we can bounce back from the threats our democracy is facing right now with science across the board in every domain of need, including our nation’s ongoing mental health crisis, and enforce the ADA and, where appropriate, Section 504, on social media platforms, no additional regulations are necessarily needed. If any other regulations of social media become necessary above and beyond that, so long as the First Amendment is still protected while also preventing troubled people from getting sucked down the rabbit holes of conspiracy theories, we’ll redeem ourselves in the eyes of the world. At least, that’s my theory.

“Consequences” Doesn’t Mean “Punishment” in ABA

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34 CFR Sec. 300.320(a)(4)

Premack Principle

From Emotions to Advocacy

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Transcript:

Hi, it’s Anne with KPS4Parents. And I’m here again with one of our Quick-Fix videos, and today’s topic is consequences don’t mean punishment in ABA. And, what I want to focus on is a problem that I keep encountering in the field. And even though I’m able to successfully deal with it on a child-by-child basis, the systemic issue doesn’t seem to be going away. And so I think it’s something that all of us collectively need to be working on, just to make sure that the legal and scientific principles that apply are actually being applied in that our children are benefiting from the application of both.

And so I want to just get into this today. And hopefully, if you have any questions, of course, post comments, direct messaged us, send us an email, whatever, to ask your questions of us. And we’ll be happy to answer them to the degree that we can and refer you to other resources. But let’s go ahead and get into this.

So there’s two key considerations here that we really need to think about. And one of it is the legal side of it. The other side is the science side of it. And in terms of the legalities of it, it really I want to talk about what the law requires in terms of applying the science. And because that’s something that doesn’t get enough attention, I think in special education, but it’s at the heart of what the issues [are] that I encounter regularly.

So I know I brought up this particular piece of regulation in our other videos and in other posts and things we’ve done, but it’s because it’s so important. And it certainly is applicable here. And so I want to just recap it, and it’s Title 34, Code of the Federal Regulations, Section 300.320(a)(4). And specifically, what we want to look at, is this is the the part of the regulations that describe what’s supposed to go into an IEP. And, by no means is this everything that’s supposed to be going into an IEP. This is the part I want to focus on with respect to the issue I’m raising right now.

Basically, what this particular regulations requires, is that, in the IEP, you’ve got a statement of the services that the child is going to get; the specialized academic instruction, as well as the related services like speech and language, transportation, whatever. All of it has to be delivered according to the peer-reviewed research to the degree that is practicable.

And I don’t want to belabor the point of what “practicable” is supposed to mean, because honestly, there is no legal or professional standard. You can basically take the word to mean that you know that it can actually be done; you know that it’s achievable within the school setting. And so, when you’re talking about services that a child might need that are scientifically based, it’s specific to what’s going to give them equal access to education as that given to their peers who do not have disabilities, and so that’s what we’re focusing on here.

There has to be a scientific basis for the interventions being given. It has to be an evidence-based program. You just can’t have people in there making stuff up and saying, “Oh, yeah, this will work.” No! You need to be able to use stuff that has been proven to work, and is supported by evidence. That’s basically what 34 CFR, Sec. 300.320(a)(4) means; it’s that you’re applying the known science of what has been proven to work in order to teach children.

And that that shouldn’t be that complicated, but in this day and age of science denial and an abandonment of the rule of law, usually by the same individuals, it becomes a problem, especially if they’re employed within the education system. That’s why I keep, I think, running into this is because we definitely do have those folks who are deeply entrenched, and part of, you know, reforming public education is to get those people out of there.

So let’s talk about the applicable science, now that we know the law requires the science to be applied, and we actually know which law requires the science to be applied. Let’s talk about what the science actually is, when you’re talking about this terminology.

And so in this instance, we’re talking about Applied Behavioral Analysis now. ABA has become somewhat controversial in special education, because a lot of people don’t really understand what it is, least of all judges who try these cases.

And so let’s be clear on what ABA is. ABA is not a behavior program. ABA is not a intervention for children with autism. ABA is a science that applies to anything that behaves. That could be sea slugs; that could be computer programs; that could be your mother in law; t could be anything. It’s anything that behaves. You can use Applied Behavioral Analysis to figure out why a behavior has happened and the function that it serves. It renders behavior down to ones and zeros.

And so, the “one” is to get something and the “zero” is to get away from something or to escape something. And so, there’s only two sides to any behavior: acquire/attain or escape/avoid. That having been said, how do we figure out what’s happening, whether it’s an escape of behavior or an attainment behavior?

And so, one of the methods that’s commonly used in ABA is called ABC data collection. And this, in special education, is usually where I see things go immediately off the rails, when you’re talking about behavioral interventions for kids with special needs; that this ABC data collection is skewed because people are not properly using the terms as they’re meant to be used.

According to the peer reviewed research … according to the applicable science … everybody seems to get the “A” and the “B” of ABC, right, because there’s nothing that might contradict it or conflict with it. There’s not alternative definitions of these terms otherwise being bandied about in public education.

But when you get to the word “consequence,” in the public education setting, this is where people get really super confused. Because when you’re looking at the traditional punitive disciplinary model of how school districts have historically dealt with behaviors among students; it’s all very punishment-oriented. And so, a consequence is something that gets meted out by staff. It’s something that gets delivered by the personnel in response to the student’s behaviors. Like, “If you don’t do that, the consequence is going to be detention … or suspension … or you’re going to have to write 100 sentences … or there’s always some consequence delivered by some other person, and that’s a punishment.

That’s not what ABA is talking about at all. In an ABA, you have to remember, as a science, it’s using terms in a very neutral kind of way. And so, for example, “positive reinforcement” and “negative reinforcement” do not mean what most people think it means when you’re talking about ABA.

It’s like batteries; “positive” and “negative” don’t mean “good” and “bad,” when you’re talking about a battery. When you’re talking about the poles of the earth, you have a positive pole and a negative pole. That’s not good or bad; it’s just that they’re opposites of each other.

In ABA, when you’re talking about positive reinforcement, what you’re talking about is the presentation of something that’s going to encourage a behavior to happen, again; a reward of some kind for the behavior. And when you’re talking about negative reinforcement, you’re talking about taking away something unpleasant that increases the likelihood of a behavior happening.

So, for example, let’s say that you’re a child sitting in a classroom and there’s an alarm going off of some kind, and that alarm is very distressful to you. The moment that alarm gets turned off, that aversive stimuli is eliminated, and now the environment has become much more rewarding for you to be in, because that bad thing has gone away.

So negative reinforcement is taking away something you don’t want … a zero … escaping/avoidance. And, positive reinforcement is giving you something you do want … a reward of some kind … so, that’s the one. Again, either you’re getting something or you’re getting away from something; there’s the one or a zero.

And so bearing that in mind, “consequence” also does not mean what most people think it means in ABA. It’s not what other people do in response to the behavior. What other people choose to do in response to a behavior is called a “reactive strategy.” Now, whether it’s effective or not is a-whole-nother conversation, but someone else’s reaction is not automatically what the behavior seeks.

So, the consequence is what the individual is trying to make happen with that behavior; whatever it is that reinforces the behavior is the consequence they’re seeking.

So, for example, if you have a toddler climbing on the kitchen counter trying to get to the top of the refrigerator to the cookie jar, the function of that behavior is to acquire a cookie inside that cookie jar. And, they’re engaging in this dangerous behavior to get something that they want, without even realizing they could be risking their own safety, because they’re little and they don’t know any better. They’re just trying to get what they want; that’s all they’re thinking about.

So, the function of the behavior, the consequence that reinforces the behavior, is the acquisition of a cookie. “I’m going to climb among counter and I’m going to acquire a cookie. And that cookie is my reinforcement for having climbed on the counter.” Climbing on the counter is the behavior.

So, what triggered the behavior? What caused the child to say, “Hey, I could climb on this counter and get to this cookie jar and get a cookie out of it, if I really wanted to”? Well, usually, it’s being able to see the cookie jar; knowing that it’s up there. And so, the antecedent is witnessing the presence of the cookie jar, or proximity to the cookie jar, or observation of the cookie jar. It’s something that exists in the environment that when they see it, they’re like, “Oh! I want a cookie,” and then that behavior of counter-climbing starts. And if they get a cookie, that’s the consequence they were seeking that reinforces the behavior.

So, in ABA, “consequence” means the payoff that the behavior is intended to make happen, whether it’s escape/avoidance, or its acquisition/attainment.

And so, when you’re looking at a behavior intervention plan in an IEP, and they’re talking about, “What are the consequences of this behavior?” and it starts listing all the things that the personnel on the school do in response to that behavior, that’s not right. That’s not what “consequence” means in that context. That’s not the application of the science.

What they’re describing are the reactive strategies. “This is what we do when we see this behavior.”

Now, ideally, when you’re doing a behavioral intervention, the consequence the person is trying to engage in … the student … is not being delivered. It’s being met with a reactive strategy, instead, to redirect them to something else … to have them use a more appropriate behavior, like asking for a cookie instead of climbing on the counter.

You’re trying to replace that behavior. You try to teach a replacement behavior so that the need is fulfilled, or whatever that function is that they’re trying to meet, they’re using a more appropriate behavior to make that happen than the one that you’re trying to mitigate, if they’re, especially if they’re engaging in something that’s dangerous, or, you know, ii could compromise their safety. You want to teach them an appropriate replacement behavior.

Or, if they’re being disruptive in the classroom, because they’re getting up and running around. And, maybe what they really need to do is request a sensory break; they hold up a little break card, and they tiptoe over to the sensory area, or the sensory room, or they have some kind of, you know, fidget at their desk or something, that they can get their wiggles out without running around the room and disrupting everybody else.

First of all, you just want to make sure the consequence they’re seeking isn’t delivered. Because if the reinforcement they’re seeking is not forthcoming, then that behavior is not going to work for them anymore, and they’re gonna have to replace it with something else. But if you don’t teach them what to do, instead, whatever they come up with, and stuff, on their own, instead of what was is no longer working for them, if all you do is withhold reinforcement, there’s a really good chance, they’re going to find some other maladaptive behavior to replace the one you were trying to get rid of in order to still gain that outcome. And so you need to teach them a replacement behavior that’s more socially acceptable in that setting, to meet whatever want or need it is that they’re trying to … you know, to address.

And if, for some reason, the behavior is seeking something that’s inappropriate during that time, then it’s about teaching them how to delay gratification and wait until later, and they can work towards it. They can earn it, like, if what they really want is to play a game on their iPad, then that’s something they have to earn by doing something you want them to do. And then you use what’s called a Premack Principle, which is a first-then strategy where, “first you do this, and then you can have what you want.”

And so, you get them to wait until later to acquire that reinforcer that they’re seeking and the only way they can actually obtain it is by doing what you want them to do, rather than running around, you know. You don’t want them acting up in the classroom, what you want them to do is to engage in this replacement behavior and earn whatever it is they’re looking for that they find reinforcing. If it’s something like, you know, a tangible, like a food item, or a toy, or a game, or if they need a break, if their sensory system is overwhelmed, and they truly need a break, you want them to ask for it appropriately and not just get up and run around the room.

And so, it’s about teaching them skills to still see their needs met. It’s not about leaving them hanging and say, “You know that behavior is inappropriate. I don’t care why it’s happening. Whatever your needs are that you’re trying to address, just stop it.”

Well, how would you like it if somebody told you to stop meeting your needs? And why would you do that to a child and who’s doing the best they can with what they have to work with, especially if they’re disabled, and they’re struggling even harder to figure out what the right thing to do is? That’s why you’re there. You’re there to teach them that.

This is how “consequence” gets misused in the special education context, when you’re talking about assessing behaviors, because you can’t figure out the function of the behavior unless you understand what is trying to make happen. What is the outcome the individual is trying to achieve by acting that way? That’s going to tell you what the replacement behavior should be. So if a behavior … if a child is rolling around on the floor holding his stomach because he’s in stomach pain, then the replacement behavior is a verbal request of some kind, or some kind of request that’s not rolling around the floor and screaming and yelling, and asking to go to the nurse’s office.

But, if they’re rolling around on the floor, because they just don’t want to do the work, well, how you react to that is going to be very different from the kid who really does have a stomach problem and needs to go to the nurse’s office. And so, it depends on what they’re trying to make happen. If they’re calling attention to the fact that they’re in pain, that’s quite a different thing than if they’re just throwing a fit because they don’t want to do the work. And so your reactive strategies are going to vary depending on the function of the behavior.

And you can’t determine the function of the behavior until you ascertain the consequence they’re trying to achieve by engaging in it in the first place. What you’ll find are individuals in the public education system who are used to using the term “consequences” to talk about what they’re going to do to you if you don’t act right. That is a punishment model; it’s very punitive; it’s very authoritarian. And it’s not about teaching anybody anything. It’s just about throwing your weight around and showing them who’s boss, which, you know, do we really need one more asshole in the public schools?

That’s not how that’s supposed to be used. And if anybody’s doing that, then it’s highly inappropriate and it does not conform with the science and, therefore, does not conform with the law. So explaining those distinctions, I think, is really important here. “Consequence” does not mean “reactive strategy.” It’s not what you do as a staff person in response to the behavior; it’s the outcome the individual is trying to achieve.

So based on that, I mean, have you seen this in your child’s IEP, if your child has a behavior intervention plan, or has had one in the past? Does this sound familiar at all to you?

So let’s look at an example, because I think that that actually can be really helpful.

Okay, so here’s what I want you to look at. In this document at the very, very top, it says, “[Student] is [sic] very compliant and pleasant young man. [Student] is not currently displaying behaviors that are interfering with others [sic] learning.” So here we are with this behavior plan and, first of all that, you know, when we’re talking about an operational definition, why would you have a positive behavior intervention plan for a student who is not currently displaying behaviors that are interfering with others learning? That’s not the point.

The point of any behavior intervention plan is to address behaviors that interfere with anybody’s learning, and here the student’s behaviors are being off task and not engaging in the instruction. How that doesn’t interfere with learning is beyond me. And, while it’s true that other people’s learning may not have been disrupted by him staring off into space, that doesn’t mean that it wasn’t because that can be distracting when you got a neighbor who’s, you know, rubbernecking as he’s sitting right next to you, and you’re trying to focus. But, more to the point, it was his learning that was being disrupted. And that was the whole point of all of this.

So here we have, you know, some really vague descriptions of what exactly is going on with him and how it affects him. And the reality is his behaviors didn’t disrupt other people because he has a 1:1 aide who’s sitting in there making sure they don’t. And so again, they’re trying to treat the reactive strategies … the ameliorating effects of the mitigating strategies they’re using to somehow negate the fact that he has behavior challenges. He does have behaviors; that’s why he has an aide. What is this person doing with him that makes learning accessible to him, and prevents him from being disruptive to other people? And this document didn’t capture that.

The thing to notice here, too, is that there’s nothing listed with respect to consequences. The box there says, “Describe: Include antecedent/consequences as appropriate.” We have some information that describes when the behavior happens, or the conditions that sort of gives us a clue as to antecedents, but there’s nothing here listed with respect to consequences. And we had to fight tooth and nail to get the district’s BCBA to apply Applied Behavioral Analysis, and, even still, this was’t it. This was just a terrible document.

And so what you see here is not just the document itself, but also our feedback on behalf of the parent as to what it was going to take to fix it and make it right. We ultimately did get that resolved, but when you are being given IEP content as a parent, and they’re requesting your signature to authorize it, and, you know, you’re supposed to be signing off on this as somehow was beneficial to your child, and you consent to it, if what they’re giving you isn’t even sensible, it doesn’t make a lick of sense, and it’s not scientific, you shouldn’t be agreeing to it.

And, in California, which is one of a number of consent states where parent parental consent is required to even so much has change an IEP, much less, you know, authorize it for implementation, this is something where a parent can come back and say, like, “I’m not going to agree to this. This doesn’t even make any sense. Here’s what’s wrong with it, and here’s what you need to do to fix it.”

And so, this goes just to the point that you can’t automatically trust that the documents being prepared say what they need to say, even if the people who are preparing them have all these fancy degrees and credentials that supposedly make them experts. Again, this piece of garbage was written by someone with a BCBA. This person was board certified to apply the science of Applied Behavioral Analysis to the design and delivery of IEPs for special education students in conformity with 34 CFR Section 300.320(a)(4), and this is the crap we got.

Knowing that, you can’t just automatically go in and trust that these people are going to give you expert advice or guidance, or conform with the science that their expertise supposedly makes them experts in. You have to be very critical as a parent, that, you know, if you’re going to … if they’re going to do this, they need to be doing it in conformity with the law, which requires them to do it in conformity with the science. And so it’s as simple as that.

And yet, if you as a parent don’t know what the science is, much less what the laws are … and you’re the one responsible for enforcing the law, unfortunately, because that’s the way the law is written … it becomes your burden as a parent to learn these things so you can protect your child, as unfair as that is. This is a circumstance we currently find ourselves in and until the IDEA gets reauthorized in a way that makes parents not the only entity responsible for enforcement, this is the boat we’re in.

So, it’s not enough that they use the right form. That may be procedurally compliant, up to a point, ut it’s not substantively compliant because it doesn’t give the child what the child actually needs. As a parent, just because you see things coming across on official forms and letterhead, don’t automatically assume that they say what they need to say. That … you need to be able to go in and actually dig into the document … the language of the document … and make sure that it actually gives your child what it’s supposed to.

And so hopefully, that helps you understand this issue and what “consequence” means in terms of Applied Behavioral Analysis versus a disciplinary model of behavioral intervention. As you’re pushing for your child to get appropriate interventions in school through the IEP process, you make sure that you’re using the right language and you’re asking for the right things. And, you know, when somebody is blowing smoke, and you’re able to call them on it … in, of course, as dignified and respectful way as possible. But, you know, you’re not obligated to take a bunch of guff off of these people either.

So, hopefully that’s been helpful and we look forward to seeing you in our next Quick-Fix video. If this was helpful, please like, share … if you haven’t already, subscribe to our videos here on YouTube. And, if you want to be able to access this video after it expires off of YouTube, it will live on forever ad-free on our Patreon channel, which I’ll have links to everything below. So again, thanks so much for watching, and we look forward to seeing you again in a future video.

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Recent Uptick in Behavioral Challenges

Now that the Fall 2021 half of the regular school year has come to an end and all the students on my caseload are on Winter Break, I’m taking advantage of the break from back-to-back Individualized Education Program (IEP) meetings to reflect on the most serious issues I’ve had to deal with so far during this first half of the current school year.

While I’ve had to deal with a lot of different challenges, it is the impact that the lack of appropriate services during shutdown, from March of 2020 to August or September of 2021, that has hit hardest. It’s been the absolute most hardest on my students with intensive behavioral services in their IEPs who have suffered the most regression and lost educational benefits. School districts all over Southern California, and likely elsewhere throughout the State and beyond, refused to provide in-person services to children on IEPs who required them in order to continue learning during shutdown.

This was in spite of explicit changes to State law that mandated in-person services for those special education students who needed it and compensatory education for any special education students who lost educational benefits during shutdown. Not only were in-person services denied, compensatory services are still being denied as school districts act like their students’ regression has nothing to do with the fact that the districts failed to provide in-person services to these children during shutdown.

What was done instead? Aides employed originally to provide direct, in-person support to these students in the classroom setting were put on Zoom, Google Meets, Microsoft Teams, or whatever else platform their employers were using for distance learning as remote participants. How in the Hell an aide on Zoom was supposed to provide the supports necessary to facilitate the student’s participation in online learning via Zoom was anyone’s guess. It consistently failed to work.

Further, even though the new laws clearly made it an option, only one of my students’ districts hired a non-public agency (NPA) to provide in-person behavioral support services in the student’s home during distance learning so the student’s behaviors could not be permitted to allow him to escape/avoid the instruction. Instead, they rewarded his participation and prompted him to return to task when his attention wandered, so he was able to make excellent academic progress during distance learning.

What he wasn’t able to work on was his social skills with peers and adults in normal everyday settings. When he returned to on-campus learning, his classroom behaviors became increasingly challenging and the behaviors of the other students in the class became escalated in response. It eventually got so bad that the other students in his non-public school (NPS) classroom assaulted his NPA behavior aide because they blamed her for keeping him in their class. He triggered them that badly.

We ultimately changed his placement right before Winter Break started and a due process case for the involved district’s utter failure to offer or deliver a Free and Appropriate Public Education (FAPE) for the last two years is now pending. Settlement is entirely possible, which I can’t discuss in detail, and the IEP team has come up with a strategy to hopefully salvage his education for the moment, but this is a student who is able to meet academic standards in spite of his grossly impaired social skills.

Our concern is that he will graduate with a diploma and get arrested the next day for acting out in public. His behavioral needs have been exacerbated by shutdown because he didn’t get any instruction or practice in behaving in socially appropriate ways when in-person with peers or adults at school. In part, this was because the NPS he had attended had a “philosophy” that failed to conform with the evidence-based scientifically valid practices of the NPA that was providing his behavioral interventions.

As such, NPS staff regularly failed to abide by the Behavioral Intervention Plan (BIP) in the student’s IEP, much to the frustration of the NPA experts who had designed it and much to the danger of the Behavioral Intervention Implementation (BII) staff who was assaulted by my student’s classmates because he made them so upset. Rather than work collaboratively with the experts hired to address his behaviors using methods proven to work by science, the NPS staff would engage in ad hoc interventions based on whatever ideas popped into their science-denying minds in the given moment, none of which worked.

Most of the students in the NPS had mental and emotional health needs, many of which arising from past trauma, but our student had autism and just didn’t know how to read the room. It was dubious as an appropriate placement from the outset, but the ecological factors of the on-campus setting weren’t a problem during distance learning.

It wasn’t until our student, who not only has autism, but also ADHD, started attending on-campus, which required him to be in transport between home and school for a total of five hours per day, and then attempt to behave in a socially appropriate manner among other students with serious mental and emotional health needs, that things really fell apart. He might as well have been put into a rocking chair in a room full of long-tailed cats.

The harm was inevitable. And, as always, he’s being blamed and vilified while no one from his school district offers something appropriate to his needs. We’re hoping the interim placement he has for now will benefit him more than where he’s been, but it’s still less than ideal. It may take a judge to figure it all out.

I’ve had two other students on my caseload face expulsion just within the last few weeks. One student’s case just recently settled after the involved school district attempted to assert that behaviors that were clearly associated with the student’s disabilities somehow magically were not, during a Manifestation Determination (MD) IEP meeting.

The only way for a parent to appeal an MD IEP meeting outcome is to file for due process. Because the student is facing expulsion, the hearing is automatically expedited. This gives parents very little time to prepare for hearing, much less find adequate representation.

I was able to refer this family to an attorney right away who was able to handle the MD appeal via due process. We were lucky to find a really good attorney who could take the case right away and handle it. Most of my attorney colleagues are overwhelmed with the volume of cases they are getting, right now. The violations are everywhere, evidently, and this failure to provide in-person services during shutdown when they truly were needed seems to be a recurring theme.

This case settled because we were able to move quickly through the process and find a good attorney who could handle going to an expedited hearing if necessary or otherwise negotiate an appropriate settlement. Not everybody is having that same experience, these days. This family was lucky. The violations in this student’s case were pretty egregious and the attorney was able to convince the involved school district that it wasn’t worth going to hearing.

My other student facing expulsion still awaits a decision from school site administration as to whether the principal should just let the IEP team effect a change in placement for special education reasons rather than subject this student to expulsion proceedings. Again, the involved school district tried to claim that the student’s disability had nothing to do with the behaviors, which was simply ridiculous.

The student already had behavioral interventions built into his IEP to address the very kinds of behaviors for which he was in trouble. He had a history of escalating to the most outlandish behaviors he could think of to come right up to the line and just barely cross it enough to get himself kicked out of school to avoid the instruction. He hated it that much.

He had transitioned to his current placement in a Special Day Class (SDC) for special education students with behavioral challenges from a special school where all the students had behavioral challenges at the start of the 2019-20 school year and had been largely successful for most of that school year, until the shutdown started in March 2020. During that time, his targeted behaviors of work refusals and avoiding the classroom setting altogether were entirely reinforced by being stuck at home on the computer while the aides from his SDC were also in their own homes using their district’s online meeting platform.

There was no one in his home trained in the interventions that were necessary to compel his compliance with teacher directions. There was no one who could make him even login. He had a baby sister at home and his mother was not about to have him triggered into angry outbursts in the home by trying to convince him to participate in the instruction with a baby in the house. Further, his mother was medically fragile and required multiple surgeries throughout the shutdown and afterwards. She was in no position to handle the angry outburst of a frustrated teenager with no impulse control due to ADHD struggling with the work because of a co-morbid learning disability.

We have a complaint pending before one of his school district’s regulatory agencies in response to its mishandling of his behavioral needs to date. He is now pending expulsion for a behavior we’re fairly convinced he engaged in so as to be kicked out of school. We don’t believe he ever had any intent to hurt anyone, but he did enough wrong for someone who doesn’t understand the function of his behaviors to think he might pose a credible threat. Law enforcement determined he posed no threat. It appears that district personnel may have exaggerated the severity of the behavior on purpose to justify expulsion.

All that said, the expulsion case may be dismissed if the district agrees to simply let the IEP team refer this student back to his previous placement at the special school. It was successful in preparing him for his transition to a comprehensive high school placement before shutdown; it should be able to return him to that state and help him transition back, again, with success. We also have a ton of new assessments pending to figure out what the most appropriate IEP for him should be, going forward.

This situation may deescalate before it has time to turn into a full kerfuffle. If we can all just agree to work together to address this student’s serious behavioral regression through the IEP process and avoid the expulsion process altogether, particularly given that this district is being looked at very closely by one of its regulators right now for failing to adequately support this student thus far, already, we can implement a solution that will eliminate the parent’s need to pursue accountability.

The goal isn’t to nail the school district’s hide to the wall; the goal is to get the student appropriately served as quickly as possible. Nailing hides to walls should only take place if it’s absolutely necessary to get a student appropriately served as quickly as possible. It’s a last resort option.

I have yet another student whose case is pending settlement, hopefully. It would be foolish on the part of his school district to allow it to go to hearing. I can’t discuss much about it while it’s pending settlement, but suffice it to say his school district totally blew it by failing to provide in-person behavioral services and supports during shutdown.

He has a host of learning challenges including partial vision loss, severe autism, intellectual disability, a seizure disorder, extremely limited communication skills, and self-injurious behaviors that frequently result in property damage in his home. His windows now have Plexiglas® panes and the dry wall in his home has been replaced so often, his family has lost count. He has made frequent trips to the emergency room and urgent care for medical treatment after hurting himself during an outburst. He has hurt his petite mother by accident.

He’s now a young adult who is still eligible for special education and he’s had these behavioral challenges his entire life. He’s been a student of the same school district his entire public education career. It’s not like they don’t know what he needs. Before shutdown, he received intensive 1:1 and 2:1 behavioral supports throughout the school day to keep him safe and engaged in the instruction. He got none of that at home during shutdown.

His mother was left to be his 1:1 aide support during distance learning over a computer while his actual aide support staff stared back at him from the screen from their own homes. He was immediately triggered into violent outbursts because he didn’t understand why he wasn’t at school with these people instead of looking at them on a computer screen. His participation in distance learning had to stop immediately for his own safety and that of his mother. It’s been a struggle ever since to get an offer of appropriate services in his IEP as a prospective matter of FAPE, much less with respect to all of the compensatory remedies he’s due.

This student’s case has been referred to a different attorney than the one mentioned above, but also an amazingly talented and smart one. Because settlement terms are still being discussed, I can’t speak much further to the matter, but I think the point is made that this is happening way too much. We’ve got too many kids who didn’t get what they needed during shutdown who are now owed compensatory remedies and they have until March 2022 to file for due process on their claims.

Special education attorneys who represent families are working at capacity with respect to their caseloads. That said, there have now been enough cases litigated and settled since the increase in claims began that openings are starting to come on many caseloads. Others are bogged down by appeals, which are largely occurring in the federal District Courts.

Some attorneys are having an easier time these days than others, just depending on whether they get good judges at the due process level, or have to work the appeals system before they get to someone willing to take the time to really listen to the arguments and examine the evidence relative to the rule of law and applicable science. That’s always the chance that attorneys take with these cases, and it’s not fun to work the appeals, I promise you.

I’ve provided paralegal support on cases all the way up to the 9th Circuit Court of Appeals, and there is nothing more tedious than a Table of Uncontroverted Facts, because there are always facts that become controverted between the parties. The back-and-forth between the parties about what facts were agreed to, which ones were disputed, and all the references to the evidence and testimony on the existing record from the original due process case and previous appeal to the District Court that supposedly supported each party’s asserted facts, became one of the most exhausting exercises I’ve ever engaged in as professional. I have ADHD – Inattentive Type, myself, so trust me when I say it was grueling.

Litigation should always be the very last resort to solving a special education problem, but these days it’s been necessary. For those of you finding yourselves in similar circumstances, I’d like to share a decision from the California Office of Administrative Hearings (OAH).

I downloaded the PDF of this decision just in case it ever gets taken down in the future, and have uploaded it to our site. Click here to download the PDF of this due process decision from California in which the Administrative Law Judge (ALJ) found in favor of a student who was deprived of educationally necessary in-person behavior services during shutdown, if the link to the OAH site doesn’t work. In this case, the ALJ ordered compensatory services as remedies to the student.

If this decision can help you argue for resolution to your own child’s lost educational benefits during shutdown, whether via due process or just a sensible discussion with your school district’s representatives, it will have served its purpose as a persuasive authority on the subject. If you find it necessary to hire an attorney to file for due process over shutdown-related deprivation of educational benefits, be sure to share this authority with your attorney. They may have very well already seen it, but if you can relate the facts of your own child’s case to the facts of this due process case linked to here, you will help bring your attorney up to speed regarding your child’s claims, so you can timely file your case before March 2022.

You may also choose to use this decision to support your arguments as you advocate for your own child in the IEP process as a parent. If you share this decision with your school district’s IEP team members and relate the facts of your child’s situation to the similar facts in this due process case, presuming your child’s case follows a similar pattern of a denial of behavioral services from his/her IEP during shutdown, your school district may be compelled to work with you rather than have you lawyer up and then have to deal with the costs of a legal action.

Parents’ attorneys’ fees and costs can be recovered from the offending school districts as a condition of settlement or upon prevailing in due process or appeal. School districts are smart to work things out through Informal Dispute Resolution (IDR) Agreements or Confidential Settlement Agreements, if they can. The costs of due process and any subsequent litigation are far too great for taxpayers to fund when those dollars could be spent on educating children, instead. Spending education dollars on fights over the deprivation of educational benefits just adds insult to injury, honestly.

The evidence is increasingly making clear that far-right politics have way too much influence on public education at various levels of government, from local to state to federal education agencies. This is how public service was infiltrated at its weakest point. Extremists would get elected by an uniformed or misinformed electorate, then hire their cronies to work for them within their agencies, undermining the efficacy of local government while mishandling the finances in order to “prove” that government doesn’t work while arguing for increased local control and reduced regulatory oversight.

Then they pay themselves more than they’d ever earn in the private sector where job performance matters as they slash resources to those expected to actually deliver on the agency’s mandates who work beneath them. This is the climate in which special education violations occur. This is why public agencies defy the regulations to the detriment to some of our most vulnerable children, many of whom coming from low-income households whose parents are often at a loss as to how to fight back. Most parents won’t do anything because they don’t know what to do and don’t realize how badly their children are being hurt in the long run.

If you are a parent whose child did not get appropriate services during shutdown, and who has regressed and may require compensatory services to be brought back to where he/she should be in school, right now, you’re not alone. Whether you negotiate resolution on your own with you local education agency or hire someone to help you, know that many other parents have already started to fight this same fight before you, and some really helpful decisions are coming out of the various venues that can help bolster the arguments you and/or your representatives make on behalf of your child.

I hope this helps you put your own child’s situation into perspective and gives you some ideas on how to go forward in the most constructive and least adversarial way possible. I can only imagine the other families’ stories that out there similar to the ones I’ve described and the case captured by the decision linked to above. All of you are in my heart and I’m praying for you all.

#specialeducation #disabilityrights #disabilities #childrenwithspecialneeds #positivebehavioralinterventions #positivebehavioralsupports #appliedbehavioralanalysis #evidencebased #evidencebasedpractice #regulatorycompliance #compensatoryeducation

An Appeal to My Colleagues

I have a million other things I need to be doing right now, but this is one of those moments where if I don’t stop and purge these thoughts from my mind into print, they will torment and distract me until I do, so the sooner I finish this post, the sooner I can get back to work without continued torment and distraction. I wasn’t intending to post, right now, because my caseload is blowing up and my other endeavor, The Learn & Grow Educational Series, is starting to require more of my attention lately as it continues to experience its own growth and expansion. My plate is full, but it’s the reasons why it’s full that prompt me to stop what I’m doing and post this today.

In the course of analyzing the incoming bombardment of data that is my life, I’m seeing the connections between the specific issues I’ve chosen to take on with my professional skills and the turmoil being experienced by the world at large, right now. I’m seeing common allies and culprits across issues, and recurring themes and trends that can be generalized from the work I specifically do to the work that needs to be done overall to cure the defects of reparable systems, and overhaul and replace systems that no longer serve us.

Today’s post is an appeal to my colleagues to think beyond the bubbles and silos in which you may exist as professionals and recognize the need for your respective skills to contribute to much larger solutions on a much simpler scale. Capable, ethical, and responsible people each making what contributions they can along they way, just in the course of doing what they were already going to do, can reshape society into a healthier version of itself. We need to see our everyday activities as substantial contributions to the world that exists around us and appreciate that every little decision we make really does matter. If enough of us are thinking right and making the smart, ethical, and responsible decisions, we can help influence those around us who are less capable, thereby loving our neighbors as ourselves and being our brothers’ keepers when necessary.

We each help make the world we live in be what it is through our individual actions with each other. Those actions and their outcomes become woven together into complex relationships that evolve into established systems supported by nothing but learned behaviors. We don’t do them because that’s the way things work; the reason why that’s the way things work is because that’s the way we do them. That being the case, we have every reason in the world to believe that enough smart, ethical, altruistic people can facilitate healing throughout society to a more powerful degree than a minority of fear-based thinking, hate-mongering cowards can try to destroy it. It comes down to mindfulness and living a life of purpose that serves the common good while also serving oneself and one’s immediate loved ones in healthy and constructive ways.

One of my favorite theorists from human development research is Urie Bronfenbrenner. The lame graphic below is one I created in graduate school so as to avoid a copyright infringement by grabbing someone’s more professional graphic off the internet, but it illustrates the model. Follow the above link for more information about Bronfenbrenner’s model, if you’re not already familiar with it or need to brush up on it. It’s quite sobering in light of current world events.

Bronfenbrenner realized that, while nature had a certain degree of influence on the raw materials with which each person started out in life, it was the environment in which that person was raised relative to those raw materials that dictated the unique development of that individual person. No two people who have ever existed, exist now, or will exist in the future will ever be entirely identical to each other because, regardless of genetics, actual life experiences that shape people through learning are never identical from one person to the next.

Genetics provide for a whole lot of variability, but they’re still technically finite in spite of their vastness. Environments are ever-changing; they must be adapted-to in the moment via individuals’ behaviors and over time via genetic mutation of the species.

For those of you among my colleagues in special education and related fields who are expected to individualize programming according to the unique needs of each constituent served, this shouldn’t be a leap of logic for you. For people unfamiliar with what it takes to truly individualize something for another person, particularly another person with diminished capacity to communicate their needs, it might as well be alchemy or voodoo.

The bottom line is that everybody thinks differently and has relative strengths and weaknesses. You can’t assume that just because it’s obvious to you, it’s obvious to everyone else. But, you also can’t assume that just because it doesn’t make sense to you, it doesn’t make sense to anyone else, either. The sword of understanding cuts both ways for each of us.

We’re each good at some things and not so good at others; that’s normal. Some people, however, are not so good at recognizing when they’re not so good at something. This goes to another body of psychological science, the Dunning-Kruger Effect, but that’s a whole discussion unto itself that I’ll link to but not delve into, right now. One lay person’s less-than-kind distillation of it, once it was explained to them, was, “So, basically, dumb people are too dumb to know that they’re dumb.”

The point is that those of us who get it have to carry the weight of those who don’t and/or can’t. It’s the opposite of authoritarianism, which demands the compliance of coerced individuals; what is called for, here, is the responsible stewardship of public service agencies to actually serve the public according to their mandates in conformity with the professional ethical standards of their involved professional disciplines.

For those of us supporting the needs of individuals with disabilities, we understand that the situation sometimes requires helping people exercise their informed choices as independently as possible. Other times, our responsibilities require us to protect the rights of those who are incapable of making fully informed choices without our help and are otherwise helpless and vulnerable to exploitation. We understand this better than most people and we need to recognize that we are collectively unique as a result. It’s not that big of a stretch between the issues of conservatorship abuse and voter suppression and nullification laws.

A whole lot of science in the areas of psychology, sociology, communication, behavior, instruction, organizational planning, leadership, and related disciplines has been conducted over the last 100 years. Many of us have access to that research but don’t make the time to follow it. I encourage every one of my professional colleagues to create a saved search for a specific body of peer-reviewed research and, whenever you are able to grab a free moment, take the time to run the search and read something new from the science that tells you something you didn’t already know, then think about ways to incorporate it into what you are doing in your work and follow through on applying them.

What small change in a routine task can you make that applies the knowledge you’ve gained for the better? Over time, how much better will things incrementally get with each little new thing you tweak after reading from your saved search? Is it a relevant authority to something you are currently writing? Does it help you better understand how to individualize a particular constituent’s goals and services? Is there another colleague who you think might benefit from the information with whom you can share it? Can you share your thoughts about it on LinkedIn and/or other professional online platforms in a constructive way?

Nothing exists in a vacuum. The more we recognize and honor the logical connections among our respective professions and how the science applies to out constituents and their service needs, the more we realize that Bronfenbrenner was right.

J. V. Wertsch, who worked with Bronfenbrenner, states in his 2005 review of Bronfenbrenner’s book, Making Human Beings Human,”Starting with the assumption that ‘to a greater extent than for any other species, human beings create the environments that shape the course of human development’ (p. xxvii), Urie has argued that it is incumbent on all of us to create decent, nurturing environments for human development.” [Emphasis added.] In my opinion, that’s something we have yet as a species to do; ants do a far better job of this than we do.

Unfortunately, because we still are not proactively applying Bronfenbrenner’s science as an ongoing element of how our society functions, we still do not love our neighbors just as we love ourselves and we are not our brothers’ keepers when our brothers go astray. We blame and punish people for having weak minds rather than remediate the effects of their shortcomings. As a species, humans generally treat their abilities as unfair advantages and use them to exploit others. They should be humbled by the responsibilities that come with their gifts and use them prudently with good intent, but in the absence of informed, deliberate planning, what has naturally been allowed to come to fruition is a society that rewards abuses of the rules more richly than compliance with them.

Those of us trying to facilitate functional independence among our most vulnerable children and adults know all too well that there aren’t enough of us with the necessary expertise to change the maladaptive behaviors in every bad situation that is collectively poisoning society, right now. The most we can do is the most we can do in our respective situations. We have to hope people will start copying our strategies that work when they see our successes. We need to start generalizing our successes into other areas where the same degree of expertise is not available, just as a matter of making sure our democracy thrives and functions as it should according to what can be proven true and responsibly effective for everybody.

Further, we as a society have historically regarded those individuals on the cusp between “can’t” and “could with learning” as an acceptable shade of gray on the spectrum of social involvement, but now they have become an outspoken and increasingly violent minority of individuals who cannot successfully function with independence in the quickly evolving world. They don’t know how to adapt but they can still wreak havoc on their way down the tubes.

The only difference between “can’t” and “could with learning” is the provision of instruction. The outcomes of both are the same if no instruction is made available; there has to be the “with learning” part in order for the choices of the person who can learn to differ from the choices of the person who can’t.

The problems we are seeing in the world today from misinformation being spread on the internet goes to the degree to which many internet users have no idea how search engines and social media algorithms indulge subjective biases and feed them whatever will increase their engagement without regard for how those choices impact the individual user or society on the whole. When all of our individual choices put together collectively shape the fabric of society, an artificial intelligence that only reinforces user engagement with neutral disregard for the quality or nature of that engagement will, by design, radicalize the most violent of the weakest minds into acts of terrorism. It weaponizes a previously harmless sub-population by turning them against us in irrational, violent ways and selling them the products to do it.

At the end of the day, humans are again proven to be part of nature and not something separate from it. The natural consequences of poor choices eventually catch up to people, one way or another. Sometimes other, innocent people become collateral damage along the way, and its in the interest of minimizing those numbers now and ultimately eliminating them as soon as possible that those of us who already work in professions helping people with disabilities need to generalize our skills into other aspects of human need where possible. What those of us working with individuals challenged by mental health issues already know can be imperative to addressing domestic terrorism.

As an example of generalizing one’s skills beyond one’s professional area of focus, while I still represent students with disabilities and consult with their parents as a lay advocate, provide paralegal support to attorneys representing students with disabilities in various legal proceedings, and design and implement compensatory programs for individuals with disabilities who were wrongfully denied services by publicly funded agencies, I also created something else using my knowledge and skills.

I created the Learn & Grow Educational Series to address food insecurity and sustainable living issues. The science of instruction is also the science of marketing, and social media can be used just as effectively to push learning as it can be used to push sales. In many cases, content creators push both, with the sales funding the instructional content and the instructional content driving the sales in a synergistic way; if it were organic, it would be considered symbiotic. The science I rely upon to determine appropriate educational goals and services for my learners with special needs is the same science I rely upon each time I create a new Learn & Grow learning experience for my online and in-person learners.

Through Learn & Grow, I’m able to teach people everywhere how to grow their own fresh fruits and vegetables anywhere using free and/or inexpensive materials, even if they have no open ground for growing. I use evidence-based instructional practices to teach them how to make self-watering containers from buckets for patio, balcony, fire escape, and rooftop gardening.

These containers are water conservative, using as little as one-tenth the amount of water of in-ground growing, and self-regulating, meaning the soil is never too wet or too dry so long as the reservoir beneath it doesn’t run dry. These containers are portable, meaning renters can take their gardens with them when they move. I’ve moved my own garden five times since I first started it in June of 2013, and the goji berry thicket I started from seeds when I first started the garden is still going strong in its original container, giving me two crops of berries per year.

The design of these containers is totally open-source, public domain knowledge. What is unique to Learn & Grow is the body of evidence-based instruction and project ideas using this gardening method that I provide in person and which lives online through Learn & Grow’s website, Facebook page, Instagram account, and video channels on YouTube: Food for Thought and Learn & Grow with Emmalyn. This is where I was able to apply my skills normally used in special education and disability resources to address other types of challenges the world is currently facing, specifically food insecurity and climate change. In October 2020, I expanded the Learn & Grow curriculum to include sustainable living methods, starting with alternative energy sources and gray water recapturing.

I’ve most recently started conducting online Meetups using Zoom and Prezi for urban gardeners in the greater Los Angeles area who can benefit from Learn & Grow’s instruction regarding self-watering bucket gardens. Without any marketing, my online classes are getting bookings and my Meetup group continues to grow in membership. Once I start marketing it, I expect to reach a larger number of learners who want to be able to grow their own food in their apartments, condos, mobile home parks, and other limited growing environments. This is an adaptation to their environments I can help them make, a lá Bronfenbrenner, to create a greater quality of life using sustainable means in a very healthy way. If they get their buckets used from local restaurants or bakeries, they keep that plastic out of landfills and reuse it for something entirely purposeful.

For me, achieving increased food security, recycling, water conservation, and portability with a single solution is too good of a thing not to share. It’s not directly related to publicly funded services for individuals with disabilities, but it relies upon the same sciences to be successful. I can generalize what I already know from what I’ve been doing professionally for the last 30 years to tackle an entirely different area of need, and it’s not that hard. It’s not any harder than representing a child with special needs in a federal complaint or supporting a child’s attorney in due process, and I can do those things.

Plus, I’m taking advantage of online tools to automate as much of my Learn & Grow content as possible, so the planning phase is followed by the scheduling phase which is then followed by an automated implementation stage that frees me up for months to years at a time to focus on other things, like the individuals on my caseload. I can drip instruction just as easily as I can drip marketing messages using the same online tools.

I also recently rejoined my local Kiwanis club, which is a community service organization. I’m helping the club use Learn & Grow to provide self-watering bucket gardens to community-based programs, like adult day cares and preschools, as well food insecure individuals through local food pantries, hunger relief programs, and shelters. I’m able to address food insecurity through a more direct means by partnering with my local Kiwanis club, which has ample volunteers and existing trusted business partners willing to invest in the right community service projects with their donations. This is a win-win-win for all involved, and it only happened because I went outside of my normal professional duties to tackle another social issue in ways that only someone with my unique skill set could.

All of us have skills and expertise that can be generalized to another problem in the world other than the one about which you spend most of your time thinking. I promise you that finding some other way to express yourself and apply your skills to something hugely constructive towards making the world a better place will open your mind in ways that makes you a better thinker back on your regular job and give you a healthier outlook on life.

Food shortages and economic collapse were the unknowns I most feared back when I started Learn & Grow in 2013. That was only made more real when Learn & Grow was discovered by panicked Venezuelans in 2016 when their country’s economy collapsed and their government subsidized food supply collapsed along with it, leaving them with no food in their stores and no more coming any time soon. I’m not afraid of that, now. My garden has grown to sixty-one self-watering containers and I have four laying hens who give me eggs throughout the year. Come what may, I’ll be okay for food.

The shortages in the stores at the start of the pandemic and the supply chain shortages happening right now have only been slight inconveniences compared to what could happen if the whole supply chain were to collapse altogether. Most people have become dependent upon it, and that’s dangerously unhealthy. If the commercialized food supply collapsed tomorrow, what situation would you be in?

As much as I live and breath special education and disability resource science and law, I can’t have figured out a way to dodge the bullet of a collapse of our commercialized food supply, have the ability to teach people according to their individual capacities to learn, and not use my skills to teach other people what I’ve figured out to survive a very dire time of food insecurity in this country. And, I know I can’t be the only one.

I know there are others of you out there who see issues with social justice, public health, climate change, domestic terrorism, and/or the ongoing threats to our democracy that would benefit from your unique perspectives and skills. Something horrible happening in the world today has factors in common with a problem you’ve already solved. Your solution translates into something that can be generalized to solve other serious world problems. Don’t keep it to yourself.

I’m not special; I’m just specialized in my knowledge and skills, and they can be applied to more than one context. That doesn’t make me unique; it makes me a member of a unique sub-population of individuals with relevant skills.

You, my professional colleagues, can do something about society’s ills today without it being political. Helping people everywhere grow their own food doesn’t take sides in anything. Everybody needs to eat. Food is a basic survival need no matter what somebody chooses to believe. Individual food security is a highly personal and universal topic with which every person can relate. So is access to clean drinking water, safety from violence, affordable housing, and a host of other issues begging for your expertise.

Most cultural disputes are about access to resources, and the United States is experiencing a cultural civil war, right now. It is fueled by misinformation meant to tear our country apart being published online by bad actors exploiting the capable hands of people with weaknesses of the mind who fear losing what they have to imaginary threats they believe to be real. People who can’t or won’t face their real problems will imagine things to be their absolute worst without confirming whether they actually are. They catastrophize things. It’s a symptom; it’s not healthy. It’s a feature of anxiety, which is always about lacking predictability. They cling to the familiar because they can’t predict anything else and their fear of the unknown is greater than any discomfort they may feel, if any, in their predictable routines.

People who can’t actually understand what is really going on have no sense of predictability about what is about to come. They will pin their expectations to what they want to happen next as opposed to what the facts dictate will happen next. They can’t follow an evidence-based thought process, so they substitute it with wishful thinking, but unrealistic expectations are just preconceived resentments. When things don’t turn out according to their wishes, they get mad at reality and insist that it bend to fit their fantasies rather than adjust their expectations according to what actually is. They don’t understand everything going on, so they can’t adjust their thinking according to all the relevant facts.

How can you, as a professional, interact with people who exist in this state without demeaning or condescending to them? Can you interact with them fully understanding that, like many of the individuals with disabilities we serve, these people are doing the best they can with what they have and they need our loving, responsible guidance to find their ways to the right side of things? If we just help them address their needs in more pro-social ways, they won’t feel compelled to attempt to meet them in anti-social ways. It’s basic ABA.

I’m asking my professional colleagues to please strongly consider using your knowledge and skills to address any of the many nonpartisan issues that are currently challenging the human species, right now, that are outside of your normal area of practice. See if there is a Kiwanis club in your local area that could use your help. Identify an unmet need in your local community and find out what is needed to address it, then find other people who have the necessary skills that you lack and start your own thing. Just find a way to contribute, even in a small way, to a nonpartisan issue in your community that isn’t currently getting enough attention.

The technology available to us today is a tool, but, like a hammer, it can build or kill depending on how it is used. I’m with Urie Bronfenbrenner on this one; we should use our knowledge and resources to make the world a place that meets everyone’s needs, rather than a place that meets the needs and wants of those who know how to exploit and take advantage of those who don’t. The tools now available for people to collaborate and get things done remotely, thanks in no small part to the necessities that arose with the pandemic, are phenomenally powerful and easy to use. The tools to create online content decrease in cost and become increasingly rich in features over time, and most people only need a few good features to make stellar content. Learn more about the ways you can participate in your citizenship in nonpartisan ways by studying the research on servant leadership.

If you find yourself in an environment in which acting in the short-term for immediate gain comes at the cost of considering the long-term consequences, and you can’t be a positive influence for more responsible thinking and planning, get out. You’re wasting your precious gifts on people who will never appreciate them and would use them to harmful ends if you let them. There are other places you can go where your gifts will be appreciated and put to proper use, where you can earn a decent living and live with yourself in peace. You just have to take the time to find it or create it. That’s not always easy, but it’s always worth it.

There is no way to memorize a script for every possible thing that could happen in the future in order to be prepared for if/when it happens. Nobody can remember that many scripts, much less predict every possible future in advance and develop a script for it before everything changes and new scripts are needed. Living a life that follows the same specific script in order to keep it predictable is a symptom, not an adaptive strategy. That’s not participation; it’s approximation. It’s parallel play.

The only way a collective of people can work together towards a common goal is to act according to common guiding principles. For example, if everyone helping with Learn & Grow agrees with and abides by the guiding principle of, “Make sure everyone can grow enough healthy food to survive, come what may,” whatever decisions they face along the way will come down to whether or not their choices facilitate everyone growing enough food for themselves, come what may. If you have a fixed outcome in mind, it’s the next best thing to having a script for every possible contingency. Having that fixed outcome limits the number of actions you can take, so it whittles down your choices to a more manageable list of alternatives. The more ethical conditions that have to be satisfied by the solution, the narrower the options, meaning the easier it is to decide.

What makes leadership and decision-making so overwhelming for most people is the sheer number of possibilities and figuring out which one makes the most sense. By using a consistent, agreed-to guiding principle as a “North Star” for decision-making, team members can be consistent among each other with their choices and actions towards achieving the common good. We don’t need a savior to swoop in and save us. We just need to be mindful of how our actions throughout the day shape the world around us and consciously choose actions that promote the things in the world we want to see based on what we’ve learned from all of our life experiences, including those most commonly associated with work, even if at only the tiniest level. It all adds up in the end, and every little positive contribution matters.

This is mindfulness meeting purposeful action, and I hope you’re inspired use your gifts to help in impactful, constructive ways that remind everyone you touch that we only get through these terrible times by working together. Because of your professional skills, you’re in a unique position to help humanity survive this time of upheaval and transition and thrive once the worst of it has passed. I look forward to seeing what truths each of you end up speaking to power over the next few years and appreciate the efforts of all of you who choose to contribute in ways you can towards a better tomorrow for everyone.