Podcast Interview: Catherine Michael, Attorney at Law & Author

Catherine Michael, attorney & author

On November 4, 2020, I interviewed attorney and author, Catherine Michael, of Connell, Michael, Kerr, LLP, a special education law practice with offices in Indiana and Texas (https://cmklawfirm.com). Catherine’s book, The Exceptional Parent’s Guide to Special Education, will become available on December 1, 2020 and can be pre-ordered at https://amzn.to/38euWaD.

The following is the transcript from the interview (transcribed using Otter):

Anne Zachry 00:00

First of all, thank you so much for being on this podcast with me, I don’t get to interview folks very often, and it’s always fun when I get to. And it’s always very informative, because I think having all of us who do this kind of work, you know, talking these things through out loud, and just speaking to what’s going on and how we think that’s going to affect the the students that we work for, and the families that depend on us, I just think it’s a really constructive use of time. So I really appreciate you being here. If you could, just introduce yourself and give us just your background, your history of how you’ve come into this line of work and what it is that you do now.

Catherine Michael 00:33

Oh, yeah, absolutely. So, my name is Catherine Michael. I’m the managing partner of a law firm called Connell Michael Kerr. And we work in a multitude of states and have attorneys licensed in in several states as well. And what I do is, and for the past 20 years, I’ve worked in education, law or representation of children. And, and a lot of that involves filing educational due process cases against schools, personal injury, tort actions against schools, and sometimes group homes, residential facilities, and also advocating for children with special needs, for instance, the legislatures in several states, and at a national level. And, you know, I got into this line of work. My background had been in hospital risk management. And I got into this, because we were seeing a lot of children who had really substantial issues, whether they had a diagnosis of cancer, and we’re now getting cranial radiation or having a tumor removed. And we saw how uncooperative schools were. And back then it was really quite shocking to me that we would find a school district who wouldn’t want to provide a child a homebound program or a school district that would claim that cancer is not a disability, and this child doesn’t need to be eligible.

Anne Zachry 01:51

Oh, my gosh!

Catherine Michael 01:52

That was really – Right! That was really fascinating to me, because as someone who had not worked in education, at that point, and was working with hospital systems, that was really shocking, because I think all of us believe that our procedures, tools are supposed to be very pro child, they are there to ensure educational services for children. And, you know, the first case I took was a child who had cancer, and was just really, really surprised how hard it was to get that young man a program. And thereafter started taking cases involving children who had learning disabilities, and really finding how substantial a need this was. And it had a snowball effect and has kept me in it to this day.

Anne Zachry 02:36

Well, yeah. And a lot of us come into this, who are professionals from these paths where we encounter these challenges. And we’re like, “Wait a minute, what?” And then we see how the system is constructed, how it’s been designed, and what the rules actually are. And so I would imagine coming from a medical scenario, I mean, in the medical realm, you bought insurance billing rules, and all those kinds of things until there’s somewhat of a similarity in that you’ve got this compliance standard that has to be met, in order for things to happen. And when you look at what those rules are in special education, and, you know, and you understand what the intent may have been. But then, and you and I spoke briefly of this before we started the interview, that enforcement is really the question here. So if you could speak about that, that would be …

Catherine Michael 03:29

Yeah, enforcement is a huge issue. And I think that because there is so little enforcement of the laws on the books, we’ve have found that basically schools have run amok. And so for parents who are listening, the main law is the Individuals with Disabilities Education Act, and that is a federal law, which means that every state has to follow it. They can’t have a state law that restricts any of the rights under a federal law. And every state in the United States has basically what we call “codified” that law into their own state laws, the only thing that they can do is add additional rights for parents. For instance, the state of Michigan actually extended how long the student can be in special ed. So it is age 22 under the federal law. Michigan made it 26. Other states change, for instance, when a parent requests an independent educational evaluation. California, basically has that if a parent request an independent educational evaluation, that the school gets a reasonable time to respond. Other states like Indiana say a school has to respond within 10 days. So there’s some of these minor changes in the law that are that are supposed to in some states like Indiana or Michigan, give those parents additional rights. But also the way these laws are designed, is that the only enforcers of them are parents. That means the parents are basically their own private attorneys general; that parents are the equivalent of the cops on the road with the radar to catch the speeding cars. Your State Department of Education is not going to be looking over your child’s IEP and saying, “Wow, your child has a lot of issues and they only have one goal,” or “They’re not receiving any direct speech services,” or “They’re not receiving any direct special educational services,” or “Your child shouldn’t be in a special education room all day long; that there’s something called the ‘least restrictive environment,’ which says we need, to the maximum extent we can, have them with their general education peers.’ So what I think a lot of parents don’t realize is, your State Department of Education isn’t doing that. Your federal Department of Education isn’t doing that. No one has that obligation to enforce these laws, other than the parent bringing a private action called an educational due process complaint. So schools have all of these laws under IDEA. And just to give, you know, for parent, I’m sure if if you’re listening to this podcast, you probably have a basic overview of it. But IDEA has requirements for what’s called a free appropriate education. And that basically encompasses that your child is going to have an IEP, that has challenging ambitious goals, in light of their circumstances, that has related services. Related services would be counseling, social work services, parent training, speech therapy, occupational therapy, physical therapy. The least restrictive environment: That if your child needs a one on one aide in order to be in a general education environment, they’re supposed to do that versus moving your child to a resource room. If your child needs a therapeutic day placement or residential placement, that’s also to be provided by the school. There are all sorts of procedural safeguards. If a school refuses your request, let’s say for a one on one aide, or a specialized program for dyslexia, they actually have to provide you written notice saying what data they’re relying upon to deny this, everything they’ve considered, and they have to provide this to you in writing. So there are all these laws on the books, okay. And regardless of where you live, when we say IDEA, it’s that federal law, this applies to you, and it applies to your child in a public school. And as you know, going back again, but the only enforcer of this law, the only enforcer who can actually call a school to tap on it is you as a parent and that mechanism, as I said a second ago, it’s what’s called an educational due process complaint. And that’s a complaint that is filed with your State Department of Education, a state appoints a hearing officer to determine if that program is in place. And you know, something we discussed before we started as well is that most parents have no idea that they have these rights. And that most of these laws are right now not being enforced. There are some states where there is less than one due process case a year. So when schools are developing these IEPs, being that there’s no real enforcement mechanism, other than in some states like the timeline, they have to have it a yearly meeting, we’re seeing really horrible consequences of that, I think across the states.

Anne Zachry 08:27

Well and then now that with school closures and shutdowns, that certainly hasn’t improved things at all. And so what are you seeing?

Catherine Michael 08:36

It hasn’t.

Anne Zachry 08:36

What are you seeing now, that’s different than before the shutdown started?

Catherine Michael 08:40

I think the biggest problem I’m seeing is a complete lack of services. And that is where school districts, for instance, that have gone entirely virtual, have students who are just not able to access the services, they may be so cognitively impaired, they’re not able to do a computer program

Anne Zachry 09:01

Right.

Catherine Michael 09:01

In some of those cases, I’m seeing schools basically just throw up their hands and say, “Well, you know, when we come up with a program, we’ll let you know.” And that’s really contrary to law. And there are a lot of things that parents need to be doing right now. That is one of the biggest problems. The other one is where parents whose children are getting, for instance, speech therapy. The school’s saying, “Sorry, we can’t provide that right now.” And in fact, they really can. I mean, virtual speech therapy has been done for years and it’s something that should be being done.

Anne Zachry 09:35

Right.

Catherine Michael 09:36

And then lastly, I mean, we’re seeing schools where kids are coming back to school, but we’ll have a school that that, you know, I think for good reason has a mask mandate, but they don’t understand that there are clearly going to be children who cannot wear masks, right?

Anne Zachry 09:52

Right.

Catherine Michael 09:52

They are too cognitively impaired or they have really significant health issues. And I’ve definitely seen a lot of those issues crop up, which is really quite shocking to me. Because some of these situations, you know, quite honestly, when we look at a child who for instance, has a tube down their throat, the fact that a school would even argue with a parent as to whether they’re going to try and put a mask on this child is shocking.

Anne Zachry 10:21

Right.

Catherine Michael 10:21

They’ll tell a parent that a child can’t come to school. So that I think has been another one of the really big issues.

Anne Zachry 10:28

Yeah. And we’ve what we’ve run into out here in California is it’s hit or miss, it depends on the school district as to whether they’re going to do the right thing or not. And but we have some school districts that are just flat out refusing to do any in-person services at all, under any circumstances, even though we have the governor’s order that came out in April that said that any student that required in-person services in order to continue to learn and to receive educational benefits, just as a matter of FAPE, that those in-person services still had to be provided and the people who would do it would be considered essential infrastructure workers. But we have districts saying that, “Oh, no, there’s something else that came out in July that says we don’t have to do that.” And it doesn’t say that at all. And so they’re just waiting until they get court ordered to actually do it before they’ll comply. They’re waiting for somebody to pull that trigger. They’re not willing to assume the risk. It’s a risk management decision. They don’t want to assume the liability of choosing to do it, and then have somebody gets sick and say, “You made me go to work, and then then I got COVID.” And then they’re going to turn around and sue the school district as the employer. And so what we’re seeing is that a lot of it has to do with human resources issues, and unionized employees and, you know, rightfully insisting on safe ways of getting things done, and satisfaction not being achieved at that level, which then impairs the system’s ability to carry out its mandate, because the workers it relies upon, there’s no agreement as to how they’re going to do it. Until they get court ordered, they’re just not gonna. And so that’s what we’re seeing out here. And it’s weird. And I’ve also got OCR complaints and state compliance complaints as well pending because the due process system is now so flooded that, you know, the attorneys I work with can’t file anything new until March. And so it’s like, Okay, well, we got to find other avenues to still somehow enforce all of this and a compliance investigation, or an OCR investigation has a 60 day timeline. So at least that’s something.

Catherine Michael 12:27

Yeah, well, and I think that is, again, part of the big problem, here. It’s just when we have schools that they know that the consequences to them are going to be really minimal, that’s why we’ll often see them wait for court orders versus getting creative. So when I say getting creative, we’re seeing two are not able to serve, for instance, cognitively impaired kids, they have problems where they are not able to get the personnel in and not keep them safe. They can actually pay for a private therapeutic day placement, they can offer a parent sort of what we would call a continuum of services and placements …

Anne Zachry 13:02

Right.

Catherine Michael 13:03

… which is one of the requirements of federal law. And they can actually say to a parent, look, we do not have the infrastructure right now, or we don’t have the ability to serve this child, here are four or five private placements that we can contract with, if that’s something you’re interested in. So and we see that happen in some places, and we don’t see it happen in others.

Anne Zachry 13:22

We’re seeing that also with non-public agencies being able to provide in-home services like behavioral services.

Catherine Michael 13:28

Yeah.

Anne Zachry 13:28

Yeah, same thing.

Catherine Michael 13:30

Yeah, I’m actually a big fan of that happening. When I see school districts that are really willing to think outside of the box to say, “Well, we have an absolute obligation to serve these kids. How do we do it?” Right? Where they’re actually looking at it more along the lines of: “This is our job, this is our role, how do we perform it, even if we don’t have the personnel right now?”

Anne Zachry 13:52

Right.

Catherine Michael 13:52

And so when I, certainly when I see school districts going above and beyond like that, and situations where, you know, you can see how difficult it is. I mean, I’m looking at those districts and saying, you know, at least they’re making these attempts, but, you know, the, the problem we see over much of the country is school districts basically saying if a parent, if, after all this is done, brings a due process, our worst case scenario is we’re just going to have to provide compensatory education. So I’m seeing some school districts, really, you know, as I said a moment ago, not provide anything.

Anne Zachry 14:29

Right.

Catherine Michael 14:29

And so, you know, if you’re a parent who’s listening to this, and you’re saying, you know, my school district may be providing part of the program, or not any of it. I mean, the thing you need to be doing right now is documenting it.

Anne Zachry 14:41

Yes!

Catherine Michael 14:42

Because you are absolutely going to have a claim for those compensatory hours that your child should have been getting. So if your IEP had your child receiving 124 minutes a week of what we would call sort of direct special educational services like we would expect to see it you’re talking about a child with a specific learning disability, who is getting some of that one on one reading intervention or math intervention, those are the minutes that are going to be ordered. If you have a situation where your child’s not receiving that, or they were in a resource room, and we’re talking about full time special ed placement, they’re not able to access a computer, what you’re going to want to do is just really document those hours that you’re missing. Email the school, your child’s school, and ask, you know, again, if your child’s not receiving anything, what options are available? You know, if they don’t have the infrastructure, are they going to offer a private therapeutic day placement or a home based placement at this point? And that’s, you know, sending it for instance, a registered behavior technician, or if your child has autism, a BCBA, or you know, another individual who’s trained in that, you know, behavior modification into the home to work on the child’s behavioral goals, social skills goals, academic goals. What is the school able to do at this point? And you’re certainly going to want to ask those questions. And you’re going to want to push because, again, it’s their absolute duty to be providing this right now. To the extent that they are unable, there are rural areas where, you know, there are no ABA centers are out there …

Anne Zachry 16:14

Right.

Catherine Michael 16:15

… no spec ial day placements, there are no private placements, quite honestly. And we have schools that are saying, you know, “We don’t have enough staff,” you know? It’s really a very, very problematic situation for families in those places. And that’s where the parent just really needs to be documenting to the best extent they can you know, what skills their child is losing how many minutes that their child isn’t receiving, what they’re doing, any costs that they are right now incurring. Like for instance, for parents who are having to go out and buy educational items, these are all things that you’re going to want to keep track of as a parent so that as things return to normal, you can sit down initially with your school at an IEP meeting and say, we need to plan for the compensatory services, number one. Number two, here are the costs that I had to privately pay that I’m asking to be reimbursed for,

Anne Zachry 17:05

Right! Well, and I don’t know how other states are doing it, but in California, one of the things that we had a Senate bill pass over the summer, that now requires all IEPs to have a contingency plan and emergency plan for his schools shut down for emergency reasons for 10 or more days. And so now, and hindsight being 2020, obviously, that should something else ever arise, like another pandemic, or whatever that would, or, you know, a natural disaster that would require a school closure for 10 or more days, that there is already a backup plan of what to do for each kid …

Catherine Michael 17:40

Yes.

Anne Zachry 17:40

… on IEP. And so I don’t know that other states have codified anything like that. But California has. And I think that’s very valuable. And the same body of law that produced that I believe, also produced a requirement that there’s going to have to be an analysis of how much compensatory education every special ed kid in California is due, because it’s assumed that everybody will have suffered in some kind of way, and that everybody will have …

Catherine Michael 18:04

Yeah.

Anne Zachry 18:04

… lost services. And so it’s, the IEP teams are now legally beholden to calculate that, once things, you know, once the shutdown is over. That …

Catherine Michael 18:12

Yeah.

Anne Zachry 18:12

… varies from community to community. And I, we now have like, I’m in Ventura County, where districts are not intending to open until January, at the soonest. And then you know, you go down into other counties, and they’ve already got campuses partially opened down in Orange County. And so and some campuses are reopening for their most severely impacted students who desperately need that in-person support. And so the families have to sign all kinds of waivers and everything, but then they can go back and they’ve got all of these empty classrooms that they can spread everybody out. Because not it’s just a small number of students. And then those kids can get that individualized support. But that is like, you know, how much of this was working on social skills? And if they’re all spread apart, can we really do that? You know, and so it’s, it’s still the challenge of how do we work on the goals. And what I’ve seen too, is some kind of distance learning program where, you know, the parents are expected to be the one-on-one aide and help their students login. And they do some kind of something on the internet, but it doesn’t have anything to do with anybody’s goals. It’s just something to do. It’s just to give them a sense of routine in the absence of, you know, an actual plan, and then they get very confused. And then eventually, the goals get worked in because enough people you know, make a fuss about it, then it starts to happen. And now you switched everything up on them again. Now, the instruction is a whole new novel experience, and you’re transitioning them again, into something new that is unfamiliar. And so it just seems to me that it’s very disruptive. And it’s disheartening to see that there’s this little coordination. I mean, as many milestones have been achieved, and as many things that have been accomplished with making some of the system work, this piece of it falling down is a real disappointment, you know? And …

Catherine Michael 19:53

Yeah!

Anne Zachry 19:53

… and it’s disheartening, but I think that parents need to know that there are people like you and me out there who understand it, and we’re trying to fight it, we’re trying to help them. And it’s not a lost cause; that there is help out there. If you could share about your practice, once again, that would be very helpful.

Catherine Michael 20:12

Yeah, so my law firm is Connell, Michael, Kerr, and I am licensed in Michigan, Indiana, and Texas. And our website is www.cmklawfirm.com, and I also have recently, and I believe it’s due out either in December or January, I’m not sure on the date. But I do know that we’re having pre-orders. That’s the Exceptional Parent’s Guide to Special Education, where I basically have, you know, put all of my advice on how parents should navigate this system in one place. Everything that I go over with parents in consultations, how the process works, I’ve put that together and created that as a book. And so that will be due out, again, it’s either in December or January, but parents can get it through Amazon, Kindle, I believe Barnes and Noble, a couple of the others. But I know that should be available shortly. And I’ll send a link for that as well. (Note: It will become available on December 1, 2020, at https://amzn.to/38euWaD.)

Anne Zachry 21:08

Very cool. Yeah, we’ll include the link with our post so that people can access that. That’s a good thing to know.

Catherine Michael 21:14

Yeah. Because I, you know, I think the thing that parents need to remember is that they actually have power. When, you know, when I use the term, private attorney general, that parents are basically acting as though, you know, that is the main message I want to impart to families is that most accountability is going to come from families standing up together and saying,”No, we are entitled to appropriate services for our children,” and doing their research and coming to unders tand the system and asking for the things they’re supposed to be getting.

Anne Zachry 21:47

Right.

Catherine Michael 21:47

And it’s only by asking for it, and schools really being held accountable that we’re going going to see the system change. And I think a lot of parents, right, and this is all of us, right? It’s difficult to challenge people that we want to like us and parents often want the teachers to like them, they want school staff to like them. And most people who go into teaching are very, very good people, but they’re not taught the education laws, they’re not …

Anne Zachry 22:11

Exactly.

Catherine Michael 22:12

… in a lot of situations, we find, you know, teachers don’t know how to design the school for an IEP, they don’t … You know, I had a teacher in a due process hearing last week, they they didn’t know that parent training, or counseling could even be part of an IEP. So it’s really important for parents to take the horse by the reins, and learn how to navigate the system and start asking these things in a way that’s diplomatic and kind. But at the same time is assertive enough that your child is going to get what they need, because quite honestly, you are your child’s only advocate in the system.

Anne Zachry 22:48

Right.

Catherine Michael 22:48

And unless you’re asking for these things, the schools simply aren’t going to provide them. And in many, many situations,

Anne Zachry 22:55

it’s just a sad reality of it. But I mean, this also goes to the fact that in a democracy, we’re of the people, for the people, and by the people, and the parents are the people, the students are the people and we shouldn’t be afraid to take ownership of that responsibility. It’s what we all agreed we wanted to live under. That’s …

Catherine Michael 23:13

Yeah.

Anne Zachry 23:13

… the model we’ve chosen. And so I think, for me, what makes me upset most about the way it’s designed, it’s not just that it forces parents into litigation, because that’s what the rules require, in order to resolve the dispute. It’s the attitude that parents get from the school district personnel when they actually exercise that right. And the “How dare you?” and “Oh, you think you’re …” you know, whatever. And all of a sudden, the parent becomes the bad guy for simply exercising a right and following the rules, because that’s the only mechanism available to them, not because they want to. Nobody wants to do that. But if they do, you know, as someone who works with families, if somebody comes to me and says, “I cannot wait to go to court,” I’m like, “Well, okay, I hope you find somebody to help you with that, because it’s not going to be me,” You know, it’s that you shouldn’t be eager to go to court. It should be the last resort. And so when parents are forced into that corner, and that’s the only option they have left, and they exercise that right, and then they catch grief for it, like somehow they’re the bad guy, I think that’s what bothers me the most. Because it’s like you …

Catherine Michael 24:18

Yeah.

Anne Zachry 24:18

… said, you know, that the parents can be made out as, “Oh, they’re just this this disgruntled person and they just aren’t happy with anything. They’re sad about being the parent of a special needs child.” I’ve heard that one a lot. “They’re having a hard time coping and they they’re angry and they need someone to take it out on, so they’re suing the school district.” No, you broke the law and you harmed their child. That’s why they’re suing you. You know, it’s frustrating.

Catherine Michael 24:46

Yeah, and, to that end, like, I want, you know, schools as well as parents to I you know, I would so love if we could even stop thinking of due process as litigation or suing or something like that, because these parents cannot get damages under IDEA claims.

Anne Zachry 25:04

Exactly.

Catherine Michael 25:05

What you can get, right? You can recover your attorneys fees. But in these cases, I mean, if we look at them in their most simplistic nature, it’s simply the parents asking their state Department of Education to appoint an independent hearing officer to make a decision as to the appropriateness of their child’s program.

Anne Zachry 25:23

Right.

Catherine Michael 25:23

A parent doesn’t need, although I certainly wouldn’t recommend it, but a parent doesn’t need an attorney. So, you know, I will often hear from schools that, you know, this is the litigious parent who filed a suit. And I’m thinking, number one, this person hasn’t filed a suit against you. Right? A suit, you know, traditionally is a claim we would file in civil or federal court.

Anne Zachry 25:46

Right.

Catherine Michael 25:47

This is an administrative action that they filed with an administrative agency. It’s not even … so, and then we hear, you know, “a litigious parent.” Parent’s not asking for money, you know. They may be asking for what we call an “in lieu of FAPE” type of agreement where they can actually get the funds to place their child in an appropriate program.

Anne Zachry 26:05

Right.

Catherine Michael 26:06

But I think that is a mindset that we really need to have get schools over and also get parents again, thinking that if you have a problem with Social Security, or you had a problem with your child’s Medicaid, you file an administrative action to get that corrected. Right? You file with, you know, your federal Social Security office, “Here, I need to get this adjudicated,” or somebody who’s disabled. We don’t think about it the same way.

Anne Zachry 26:31

No, not at all.

Catherine Michael 26:32

I think if we could … right? And so to me, that has always been fascinating as somebody who does this, when, you know, I have one that’s in a hearing right now, where the, you know, the parents, quite honestly only asking for an appropriate IEP, and then assorted related services for her child. And now, you know, when the school’s attorney is speaking to us, they’re saying, you know, this is simply a litigious parent. And I’m thinking, you know, she’s not asking for a dollar.

Anne Zachry 27:00

Right.

Catherine Michael 27:00

Just write an appropriate program. So I really want to even reframe how parents think about these things. Again, schools are basically performing a government function.

Anne Zachry 27:14

Yep.

Catherine Michael 27:14

When we ask for the enforcement of these laws, it’s an administrative action. And you’re asking, you know, someone from your state simply to make that decision. Certainly, they can be appealed to federal court. And there’s all you know, all of the things that you and I often see.

Anne Zachry 27:31

Yeah. Which Yeah, I’ve gone all the way to the Ninth Circuit on some of these things and it’s just like, “Are you kidding me?” And something that you had said before we got started, as well as that how much money school districts are sometimes willing to throw in attorneys that they would never throw at services, I mean, hundreds of thousands of dollars in legal fees to fight over a $7500 education service.

Catherine Michael 27:50

Yeah. And you know, I’ve even seen that when a parent requests an independent educational evaluation. In most states, those can go for around $3500. Some states that we’re looking at California and New York, it can be higher. So I’ve seen schools go through an entire due process, arguing that their evaluation is appropriate, where they spent triple, quadruple, what it would have cost them to provide the parents the evaluation. And when you look at that, you’re really what you’re seeing is a school district saying, “We want to make this process so hard on parents that they don’t even bother to ask.” And they talk to their friends and they’re like, “Yeah, this is what happened.” And that’s not the role of a government entity, right? We shouldn’t have government entities making it so difficult for individuals to get their, you know, their legal rights met.

Anne Zachry 28:23

Right. Right.

Catherine Michael 28:38

They don’t even want to start that process. And that’s why I think it’s really important for parents to feel empowered, and to realize that what they’re asking for is supposed to already be being provided to their child. And again, it becomes their job to enforce that. And you can do so in a diplomatic way.

Anne Zachry 28:55

Exactly.

Catherine Michael 28:56

There are a lot of you know, yeah. And there are a lot of things you can do even outside of due process. But I don’t want parents to be afraid of due process.

Anne Zachry 29:03

Right.

Catherine Michael 29:03

And, I want to reframe their thinking on that topic.

Anne Zachry 29:07

I think that’s a really healthy perspective. I wish we could reframe the thinking of the folks from the school district who come in and deliberately try to make it toxic in those instances where they do. And you know, when it isn’t always that case, you’re right. I have been in situations where we’ve had to file for due process. And it’s almost one of these things where everybody in the IEP team knows that it was coming, and nobody’s surprised by it. And they’re waiting to see what happens. And it’s almost like the administration is hoping the parent will file because then they can go to the school board and say, “Look, now will you listen to me?” And because, sometimes it’s not that the department doesn’t want to do it, it’s that their hands are tied by, you know, whoever holds the purse strings, who’s not part of the IEP process, even though the team is the one vested with the authority to make those decisions. So, the politics that are going on behind the scenes become a toxifying effect. And …

Catherine Michael 29:59

Right.

Anne Zachry 29:59

… then you Have the attorneys that these individuals will hire and certain individuals, you know, birds of a feather flock together, and you’ll find people who are like minded in their view of these things. And I know that for from what I’ve seen the socioeconomic status of the community where the school district is, can have an influence over whether they will comply or not. In a school district where they don’t have the money to throw at lawyers, they’ll go ahead and pay for the service, they’re not going to fight over it …

Catherine Michael 30:27

Yeah.

Anne Zachry 30:27

… because they can’t afford to. But you get into an affluent community, especially when you’re talking Southern California where you got these little pockets of nouveau riche and their big McMansions. And they’re feeling all special because they have money and the school district people will tell them, “Oh, well, you don’t want to go through public special education services. That’s like a welfare service. You would do much better if you pay privately for the services yourself. You’ll get much better results than what we can give you because ours is publicly funded.” And so they play that …

Catherine Michael 30:58

Yeah.

Anne Zachry 30:58

… that mind trip on these wealthy parents whose identities are all wrapped up in their their newly accomplished wealth, and they play on that and these parents are taken for a ride, because then these parents are paying out of pocket hundreds of thousands of dollars for all of these specialists who were hovering, like vultures just waiting because they know it’s coming. So you’ve got, you know, you’ve got all of these parties that are financially invested in enabling that mechanism to play out the way that it does. And then you have parents who suddenly realize after, you know, they’ve broken the bank, and they don’t have all that money anymore, because it went all to private school and residential placement costs and things and to come to find out that they could have gotten all of that from the school district. But there’s …

Catherine Michael 31:40

Yeah.

Anne Zachry 31:40

… only a two year statute of limitations and they’ve been paying out of pocket for the last 10 years. And so not until they’re bankrupted by it that they realize the error in their judgment, and then they can’t go back and fully recover. And it just there’s all of these different games being played by people who seem to be similarly motivated to not serve, while taking public dollars to hold a public service position. And I think that this is as much a taxpayer issue as it is a parent issue, because like you said, we’ve already paid for these services to be provided. Those are our tax dollars. And in those are the laws that our Representatives passed in order to provide for these children. And yet, this is what we have instead. And so I think …

Catherine Michael 32:22

Yeah.

Anne Zachry 32:22

… that one of the parent advocates that I met a few years ago said she went up to Sacramento with a group of parents and sat down with state assembly members or state Senate, I’m not sure who all she met with. It was state officials, representatives. And said, you know, “When you take into account all of the people in California who have disabilities, and their immediate family members, like their parents, or you know, a spouse, do you consider them a constituency?” And he said, “No, the number is too small.” And she said, “Well, okay, what about all the people who are employed to support all of these people with disabilities and their families and their extended families? When you add all those people in, does that become a constituency to you?” And he said, “Yes …”

Catherine Michael 33:08

Yeah.

Anne Zachry 33:08

“… at that point, now you’re talking about a significant number of people.” And so what that really communicates is all of this divisiveness that we’ve been seeing in our culture where, you know, we’ve got people being pitted against each other for different ways of thinking about things and the things that make them unique from each other. And disability is no stranger to that experience. And what we’re starting to realize is that the people who are trying to divide us are a minority. And they’re easily identified, we all have a common group of individuals who are all trying to pit us against each other and turn us into special interest groups, when really we’re just the majority. And if we all …

Catherine Michael 33:49

Yeah.

Anne Zachry 33:49

… weave ourselves together and collectively advocate for each other, then we’re a constituency. And I think that …

Catherine Michael 33:57

Yeah.

Anne Zachry 33:57

… that is where we have to start thinking about these things now that it’s not, “Oh, my disability rights versus your LGBTQ+ rights.” It’s not my “My race rights versus your gender rights.” You know, it’s not a “versus.” It’s no, everybody. Everybody has equal rights. And that’s the whole point.

Catherine Michael 34:16

Yeah.

Anne Zachry 34:16

And so I think that our dialogue needs to shift in that direction. I know that I had this conversation in an IEP meeting the other day with a team, I had to file an OCR complaint. I’m like, “Look, this pandemic is not the apocalypse, you know? Zombies are not at the door.”

Catherine Michael 34:32

Right.

Anne Zachry 34:32

“Democracy has not fallen, the rule of law still applies. And at no point did public health usurp civil rights, they are equally important. So what are you guys gonna do?” And they’re just like “Uhhh!” because they don’t know. I mean, but they understood why I filed a complaint. They weren’t mad at me. They’re probably … they’re actually they’re like waiting to see what comes of it because maybe now they’ll be given permission to do their jobs. You know?

Catherine Michael 34:56

Right.

Anne Zachry 34:56

Nobody was angry about it. It was like “Okay, well, yeah,. That logically makes sense. We’ll just have to see what happens.” And so I’m not necessarily, in my situations … and of course, I have relationships with a lot of these people, because I see the same people in IEP meetings for different kids over the span of decades. So we all know each other. So it’s not like …

Catherine Michael 35:17

Yeah.

Anne Zachry 35:17

… you know, I’m going into a novel situation, and then some stranger coming in and telling them what to do. Because that can be, you know, people can become defensive and adversarial when that happens. So I have rapport, but, you know, even still, you know, the fact that I can say something like that, and everybody’s like, “Yeah, you know what, you’re right. We still are not empowered to do what you’re asking us to do.” And so that that, to me, is very frustrating, because I know that there’s people who want to do the right thing, and they can’t; they’re not being allowed to.

Catherine Michael 35:45

Yeah.

Anne Zachry 35:46

And I think that parents need to understand that too, that, you know, not everybody’s the enemy, but you got to be paying real close attention these days. I mean, would you agree, I mean, the parents just need to be …

Catherine Michael 35:56

I would.

Anne Zachry 35:56

… very discerning about who they can trust?

Catherine Michael 35:58

Well, absolutely. I think it’s, again, it’s being discerning. And it’s also it’s being educated as to what your child needs are, what you’re asking for. And then also, you know, again, understanding that you are going to be the only one who really has your child’s true best interests at heart. That’s not to say that there aren’t, you know, within school systems there are really dedicated teachers, dedicated administrators who are doing their very, very best to ensure children are being educated appropriately. But at the end of the day, and I don’t necessarily like that expression, but it really does come down to, you are always going to know your child best. And it is going to be up to you to enforce these laws.

Anne Zachry 36:43

Right.

Catherine Michael 36:43

You know, you may have a great teacher one year and not another. And again, the school’s interest isn’t going to be the same as yours, right? Theirs is going to be on their budgeting, the union, you know, everything going on, your interest is going to be on “Is my child getting an appropriate program?”

Anne Zachry 36:51

Exactly. Right. And, I mean, in terms of checks and balances, that’s why the parents are such an important part of the team, and are afforded so many rights and the protected right to meaningful parent participation and …

Catherine Michael 37:11

Right!

Anne Zachry 37:12

… informed consent. I mean, all of those privileges and rights are there, because that’s meant to be a check and balance against the rest of the system. And so, you know, if they if the parents are being bamboozled, and they are signing documents that they don’t actually understand, then those enforceable rights are not being honored. And, you know, it’s parents have to understand that they have recourse and they need to educate themselves as to what what that is.

Catherine Michael 37:36

Right.

Anne Zachry 37:36

And ask! I mean, my favorite thing is when parents say, “Okay, well, what are my rights under this circumstance?” and put it back on the school people … … to explain what their rights are, you know? And I think that that’s a good strategy, because it is the burden of the school district to explain to parents what their rights are. They’re supposed to be able to do that. And so you know, if they’ve put you the parent on the spot, the parents should feel comfortable saying, “Well, you know, what, I need to turn this around to put you on the spot for a minute, because I don’t understand my right. And I’m not sure what I can do here.” If you’re savvy enough to know, in some states, you know, how the rules play out are different. In California, all you have to do is give 24 hour written notice, minimum, and you can audio record your child’s IEP as a parent. You can’t video record, but you can audio record, and the school district can’t say no, but they also have to record as well so that there’s a backup copy. And you know …

Catherine Michael 37:42

Yes!

Anne Zachry 38:23

… just for authenticity reasons. So different states have different rules about audio recording, but, you know, I audio record every IEP meeting. One, because I have ADHD myself, and I don’t want to miss anything. And so it’s just a … it’s more of a safety net, because I very rarely have to go back and listen for …

Catherine Michael 38:23

Yeah. Yeah.

Anne Zachry 38:38

… my own account. But just to know that I can make me less anxious during the meeting, but also because, you know … … it ends up getting introduced into evidence if we do have to go to a due process hearing. And it’s been a very powerful tool.

Catherine Michael 38:44

Well, yeah. Right. And you can be clear as to what you asked for, why you asked for it, what the school’s response was.

Anne Zachry 38:58

Exactly,

Catherine Michael 38:59

I think that can be extremely helpful.

Anne Zachry 39:01

And if, you know, when you go into an IEP meeting and you do have the, you know, you’ve legally made it okay to audio record – given written notice or whatever is required – and you’re doing it lawfully, and then you go in and say, “I don’t understand my rights under the circumstance, please explain them to me,” and then the explanation they give you is either going to be a good one, or it’s going to be a bad one. And if it’s a bad one … … you know, the backup, you know, it’s like, “Okay, well, I didn’t get the right answer, but I got proof that they don’t know what they’re talking about. And I’m not crazy.” And so it becomes evidence and I think the parents and, certainly as an advocate, when I go into the to the IEP process, I’m trying to solve the problem for real in the moment but I’m also making the record along the way in case it doesn’t get resolved …

Catherine Michael 39:24

Yeah. Right.

Anne Zachry 39:28

… and so that by the time we arrive at due process, the trail … the evidence trail is clear. If when they say no their explanations are, you know, are whatever they are. And, going back to what you had said earlier about prior written notice one of the things that I’ve noticed out here is that I would say, a good third of the time when I get a prior written notice, in response to something I’ve submitted for a family, it won’t make a lick of sense. It will say prior written notice according to 300.503, blah, blah, blah …

Catherine Michael 40:14

Right.

Anne Zachry 40:14

… and have all that legalese at the top of it, and then they … it’s like a form and they’ll populate the form with a bunch of gibberish that’s just nonsense. It doesn’t even explain why they said, “No.” There’s no real explanation. I’m like, “Okay, well go ahead and make the record that this is what you’re sending out on a PWN form, and this is what you’re going to represent as PWN,” … because substantively, it is embarrassing. And just because you put “PWN” at the top, and you cite the code that you’re supposed to be following, the fact that you didn’t is reflected the document itself. And it just, it blows my mind what people will put into writing because they think they’re so clever. And it’s like, “Okay.” And so one of the things that I think is really valuable, that’s helpful for parents to know, too, is that the regulations, it’s 34 CFR section 300.320(a)(4) mandates the application of the peer reviewed research to the design and delivery of special education. When you have a bad IEP, you can say, “I want to understand the science that underpins this IEP. What peer reviewed research did you rely on to inform …”

Catherine Michael 40:34

Yeah.

Anne Zachry 41:20

… you know, and of course, they don’t have anything. And then when I ask for something specific, and I know, I can reasonably anticipate that they’re going to balk at it, because it’s something they’ve not done before. And it’s going to require them to create something new. I will cite the science that backs up the request that I am making and say specifically, the regulations require you to apply the peer reviewed research to the degree that it’s practicable. So if you’re not going to do this, when you send your prior written notice, please explain what it is about the science that is not practicable.

Catherine Michael 41:20

Yeah. Yeah.

Anne Zachry 41:23

And then they’re, they’re stumped, because they don’t know how to reply to that. And again, it goes back to the fact that they don’t actually have access to the peer reviewed research. I’ll go ahead and …

Catherine Michael 42:02

Yeah.

Anne Zachry 42:02

… spend $70 on an article just to make my point, because I can …

Catherine Michael 42:06

Yeah.

Anne Zachry 42:06

… you know, but I shouldn’t have to do that. And that’s the problem, is that we have this paywall between our educators and the science that would tell them what to do. And what is the politics behind that? Why is there a paywall between our educators and the research that will tell them how to teach our kids right? How is that not part of the public domain? Why do teachers not have access to that? And then, especially when you have a legal mandate that requires it, you know?

Catherine Michael 42:31

Oh yeah, and …

Anne Zachry 42:32

It blows my mind.

Catherine Michael 42:34

It goes to the fact that, yeah, that because the laws are not enforced, right? We’re just not seeing, for instance, when we look at health care, right, we have, you know, standards of care, best practices, we see checklists for everything with the doctors getting weekly reports on different new procedures, medications, right? We don’t see that in education, because, again, there’s so little penalty. We’re not seeing teachers, sort of, you know, given a weekly mailer, you know, here are some of the programs that we’re seeing coming out. Here are some of the best practices for working with a specific learning disability, you know, can you update off on how you’re implementing this in your classroom? We don’t see that because, again, there’s so little importance level. Yeah, I really haven’t felt the need to do that.

Anne Zachry 43:23

Yeah, well, and I’m thinking we’re overdue for a reauthorization of the IDEA. And one of the things that I would like to see in there is beefing up of that enforcement arm because they’re supposed to be what 10 year audits or something like that? That we have some kind of audit procedure in California that every once in a while somebody pulls the short straw and ends up getting audited. And of course, every time they go through there and examine all the IEPs, it’s just a disaster, but then nothing ever gets fixed.

Catherine Michael 43:48

Right.

Anne Zachry 43:48

And so it doesn’t change anything. It’s like, Oh, they just documented that it’s a disaster and moved on to the next one. And nothing got rectified. And we need to speak to that. I mean, is we’re looking at all of these broken systems that are just cracked open and expose raw and wide for the whole world to see now that there’s no covering up that our social programs are flawed, and that we need to overhaul them. And we need to bring them kicking and screaming into the 21st century with best practices and not just best practices in teaching, but in best practices in operational standards, and efficiency, and … … and security and privacy. And I know I worked in IT for a few years in these huge enterprise class computing environments like Walmart and Sanyo, and Volkswagen and all of these big huge computing environments, where you have these global wide area networks in these supply chain automated pieces. Back in the day, I’m talking like 25-30 years ago, this technology has been around for a long time. And if you look at the degrees of efficiency, and the cost savings and the reduction in overhead that is experienced by the industries that adopt all of this ISO standards and these automated supply chain things and and the internal and the way they automate their internal business operations, that California is starting to head in that direction with respect to individualized person centered planning. That there is a pilot program that’s being developed. And I don’t know when exactly it’s going to be deployed. But I know Ventura County as part of it, where, whether you’re Department of Rehab, or you’re special ed, or you’re county mental health, or you’re welfare, or you’re food stamps, or you’re Medicaid, or whatever, it’s one individualized plan, one caseworker, and your plan calls out to all the different funding sources. So the consumer is not having to chase after the funding, the funding is following the consumer through a single individualized plan, which is only common sense. But it was only achievable by marrying all of these computer systems together, that all of these disparate agencies were working autonomously with, and making them able to talk to each other. And so now we’re getting to the point where we can stitch all of our our computing resources together to create this inter woven supply chain so that we can streamline how we deliver public services and do it more cost effectively. But then what that also means is that there are no there are no dark shadows to hide in where funds can be misappropriated. There will be such a stringent degree of accountability that the cronyism and the back scratching that has gone on will no longer be enabled. It won’t be possible. And so that also will free up a lot of resources. And that is another aspect of increasing the efficiency and the fiscal responsibility of the system and the fiscal management of it. And so there are people who financially benefit from the system being antiquated and broken right now. And they don’t want those kinds of changes coming in. Because there goes all of their opportunities to exploit. We’re starting to see that public service is going through this transformation that private industry went through when this happened decades ago, as these technologies come in. And as the public pushes for a greater accountability. And as we repair and we overhaul our systems, we’re going to be using the most modern tools we have. And so I think that we can be encouraged that the future does hold a lot of potential for a lot of corrective action, and a lot of prevention of things like this happening again in the future. But we are not there yet. And I think it takes … it’s going to take all of us pushing for those reforms. Because as much as each parent needs to advocate for their child on a child by child basis, and not be afraid of the due process mechanisms, if that’s what it takes, you know, but not think that it’s like, you know, the panacea, like it’s going solve every problem, we also need to be pushing collectively as a community of people for reforms that will fix the system in a way where these are no longer the problems we have to deal with. And that we have to repair the broken system, not only on a kid by kid basis, but we also have to make it better than it was in the first place. And so that the next time catastrophe comes, we’re better prepared to roll with it. I mean, sadly enough, this was long overdue, where the system needed to be confronted on its failures. But I think that parents can take hope that we’re part of history right now we’re part of fixing it, we’re part of making this better for our kids with special needs, because all of its going to have to be reformed, we can’t just tape it back together and go back to the way it was. So I think that …

Catherine Michael 44:23

Yeah. Right.

Anne Zachry 44:54

… you know, there’s, there’s a lot of encouragement in what’s going on here, there’s a lot of opportunity, and we don’t need to be so terrified of the changes that are coming. And we need to really embrace them, because it’s our opportunity to make it better, I think. And it’s going to take people like you and me going in there and one kid at a time, you know, saying, “No, this is … these are the rules, and this is how they apply to this one child. And this is …” ” … the individualized program, and and the individual person matters. You know, it’s like every vote matters, every child matters. And whether that child has a disability or not, should not be a defining criteria of whether that individual matters or not, it shouldn’t even be a question.

Catherine Michael 48:39

Right! Yeah.

Anne Zachry 48:55

And so I think that what we’re doing is a very powerful thing. This is a very prescient area of civil rights law right now. And, you know, I think that, you know, regardless of how things play out with what other people do, what people like you and I are doing, we’re on the right side of history with this, you know? We’re enforcing civil rights. We’re …

Catherine Michael 49:13

Yeah.

Anne Zachry 49:13

… we’re enforcing democracy. It’s we are of the people, for the people by the people doing the work to make sure the people are protected. And I think that families need to understand that they’re not alone, that there are folks like that, like us out there. And we’re not that rare, you know, and the fact that you’re licensed in multiple states goes to the fact that you recognize the degree to which there’s not enough representation in some places, and that you’re making it …

Catherine Michael 49:36

Yeah.

Anne Zachry 49:36

… happen anyway. And so that’s really powerful. I think the parents need to … and I know that there are other attorneys who are licensed in multiple states as well. One of the attorneys I work with here in California is also licensed in Alaska. And let me tell you, going out into the middle of Alaska in the middle of nowhere … … and enforcing special ad law is not an easy thing to do. You’re coming in on a like a bush plane and landing in, you know, somebody field, you know, and going to a one room …

Catherine Michael 49:53

Yeah! Right.

Anne Zachry 50:04

… school house to say,” Okay, this kid needs speech and language. How are you gonna make it happen?” and they still got to do it. And so, you know …

Catherine Michael 50:09

Yeah.

Anne Zachry 50:09

… parents need to understand that even under the most bizarre and difficult circumstances it can be made to happen. There’s always a way.

Catherine Michael 50:17

Right.

Anne Zachry 50:17

You know, and that it’s not a hopeless situation. So I think that talking about this with you has been very enlightening and very encouraging. And I think that you’ve given us a lot of really good information. I do want to remind everybody that I’m going to include a link to your book with all of our, you know, the stuff below on the … because what we’ll do is we we do the podcast, but we also do a corresponding text only post …

Catherine Michael 50:39

Great!

Anne Zachry 50:40

That way, all the links for everything are embedded in the transcript …

Catherine Michael 50:44

Yeah.

Anne Zachry 50:44

… so we’ll have all of that and then …

Catherine Michael 50:47

Oh, that would be fantastic!

Anne Zachry 50:49

Yeah, and that way folks know how to get ahold of you. And this has been a really good discussion, I really appreciate you doing this with me.

Catherine Michael 50:56

You know, you’ve done a great job, as well, at trying to keep parents aware of their rights and helping them feel empowered. And I think that’s the biggest thing that they need to know is that they have a lot of power in their hands. They just need to know that there are lots of us on their side trying to help them along the way.

Anne Zachry 51:13

Right. And it means the world to us to be able to do it. It’s such an honor to be able to be part of making somebody’s life something that you know that they’re they’re happy and they’re fulfilled and they’re not living in misery …

Catherine Michael 51:26

Yes!

Anne Zachry 51:27

… or in crisis, you know, that that we can help people turn those kinds of corners with the kind of work that we do. I mean, it’s an honorable thing that we do and I’m proud of what we do. So thank you, and thank you for doing this and for sharing your information with us and hopefully we’ll get to do something like this with you again soon.

Catherine Michael 51:44

Yeah, I would love it. And thank you again, so much and for all that you do.

Parents Who “School-Hop” Risk Making Things Worse

Image credit: Alan Levine

One of the situations I commonly encounter in working with students with special needs and their families in the public education system is a phenomenon that I’ve come to refer to as “school-hopping.” Sometimes, parents who do not understand why their children are struggling assume that the problem is with the school, and, very often, there is a problem at school. But, quite often, the real issue is that the school is responding poorly to a disability-related need experienced by the student, so it’s not just that there is something wrong at the school, there’s something wrong with how it is responding to a special need that requires unique accommodations.

Put another way, there are two problems to resolve: 1) how to address the student’s unique needs in an educationally appropriate and legally compliant way, and 2) how to address the internal problems at the school that are preventing this from happening. Parents will sometimes jump from a charter school to a district-run independent study program to a home-school group to a … you name it … trying to find the right fit for their child.

The problem with doing that is, unless a parent knows what specifically to ask any school to do for their child, they’re just rolling the dice with every school change and hoping this one will finally be the one that fits. The whole purpose of special education is to impose structure on how education is tailored to each individual student. That way, it shouldn’t matter so much where they are so long as the supports and services described by the student’s individualized program are being delivered in that setting.

The guidance to the school site personnel as to how to do this comes in the form of a legally enforceable document called an Individualized Education Program (IEP). An IEP is created by a team of individuals described by federal law (34 CFR Sec. 300.321) according to specific criteria, also described by federal law (34 CFR Sec. 300.324). What the IEP says it what the responsible public education agency must do for the student for whom it is written.

It doesn’t matter how many times a student with special needs changes schools if the IEP that follows them is garbage. Even when a student changes to an entirely different public education agency, the incoming IEP is what informs the new school team as to how to support the newly incoming student with special needs. If the IEP does not describe appropriate supports and services, then the new school is legally obligated to implement the garbage that the IEP describes, instead.

My point, here, is that changing schools under these kinds of conditions tends to just make things worse. Every school change means at least some part of a kid’s file, if not the whole thing, gets lost in transit between one public education agency and the next. Assessment reports and old IEPs disappear from the record with frequent moves and school changes, so those items aren’t there to inform a records review like they normally would as part of a new assessment conducted by a new education agency.

That makes it very hard for the new school to know where to begin with a new student with special needs. The parents are hoping the new school will somehow magically fix everything but each successive new school gets put further and further at a disadvantage as to where to even begin every time a new change in schools happens and records have to be shuffled around again.

I have yet to figure out why so many people start at the end rather than the beginning when it comes to individualized student planning. Placement – that is, the type of classroom setting(s) in which a special education student receives instruction – is determined by the IEP team as the last matter of properly conducted IEP planning for very important, logical reasons. There are a whole lot of other decisions that have to be made, first, before a placement determination can be made.

IEPs start out with identifying a student’s present levels of performance, which seek to answer the questions, “What can the student already do?” and “What does the student still need to be taught relative to the grade-level standards and/or developmental norms?” On the basis of the answers to those two questions, goals are written that target measurable, annual outcomes.

The goals describe what the IEP is supposed to make happen. Until you know that, you don’t know what all you need to actually educate the student.

For this reason, the IEP team next determines what services are necessary to see the goals met. On the basis of the frequency, duration, and location of the services necessary to meet the goals, in combination with the student’s right to experience the least amount of segregation away from the general education population as possible, educational placement is then determined.

Parents who school-hop interfere with how the federally mandated process is supposed to work, usually without realizing the harm they are doing. Until the IEP describes goals in each area of unique student learning need in meaningfully measurable ways, it doesn’t matter where the student goes to school; following a bad IEP in a new, good setting will still go wrong.

That said, I’ve seen plenty of situations where changing schools, even moving to entirely new school districts, has saved a kid’s life. The challenge, though, was to get the IEP as good as we could get it before the student changed schools so the new, receiving school had something worth implementing once the student started attending there.

And, in California, where I do most of my work, whether a special education student moves during the school year or summer break has bearing on what is enforceable in terms of a transfer IEP. This added layer of complexity, which isn’t the same in all the other States, makes the timing of everything that much more imperative when it comes to changing to a different school district or charter school. Parents who school-hop in California can do even more harm than they realize because of the odd State laws about transfer IEPs.

What’s often more heartbreaking are families that are school-hopping because their child has never been offered an IEP and when they’ve asked about it, they’ve been shot down by school personnel who insist that their child would never qualify. In reality, it can be the case that the school personnel are just waiting for the family to pick up and move the student, again, at which point whether or not the student needs an IEP won’t be that particular school’s problem, anymore. There are unfortunately those in public education who will facilitate eliminating a problem rather than solving it, even if it comes at the expense of a child.

Parents who school-hop can call unnecessary attention to themselves as easily exploited by school staffs who would rather see them move along to the next school than stick around and insist that the current school do its job. At some point, school-hopping parents have to figure out that the school-hopping isn’t working and, instead, they need to stand in one spot, dig in their heels, and get a decent IEP from whatever agency is responsible right at that moment. That might mean filing a lawsuit just to get an initial assessment, but if that’s what it takes, that’s what it takes.

Without a legally enforceable IEP document that describes something worth enforcing, no placement can be made to work. Federal law mandates that the education rendered to a special education student be in conformity with that student’s IEP (34 CFR Sec. 300.17). If the IEP is garbage, then the school is legally obligated to implement the garbage until such time as the IEP can be made more appropriate.

As a parent, your number one objective when it comes to advocating for your child with special needs is to make sure that the services and supports provided are actually appropriate to your child’s needs. Just having a document that says “IEP” at the top of it doesn’t magically bestow educational benefits onto anybody. The contents of the document matter and, as a parent, you need to know how to look out for language in an IEP that could undermine your child and any exclusions of language that are important to meeting your child’s needs from the IEP. More harm can be done by what is left out of an IEP than what is put into it.

Once you understand why placement is the last decision that should be made by an IEP team, you can understand why changing placement when things aren’t going right doesn’t always make sense. Unless you’ve got an amazing IEP and the people at the school site just aren’t implementing it as written, there’s a really good chance your problem is with the plan more than the placement.

Plans of any kind fail for only one of two reasons: 1) design flaws, or 2) implementation failures. Design flaws can sometimes only be identified when you try to implement the plan and something goes wrong. If you never implement the plan according to its design, you’ll never know if the design was flawed or not because you weren’t following it in the first place. If the design is great, but no one is following it, what’s the point?

This analysis of plan success and failure came to me by way of my training in Applied Behavioral Analysis (ABA), which, by the way, is a science, not a treatment methodology. There are a lot of ABA-based treatment programs out there, but those programs are not what actual ABA is. They are based on ABA, some with more scientific rigor than others. The actual science of ABA can be applied to anything that behaves, including animals, plants, and computers.

From the absolute, parsimonious perspective of ABA as a science, everything is based on objectively identified behaviors, only, which are framed in quantifiable terms and rendered into emotionally neutral pieces of data. Further, not only is data taken on how the individual responds to efforts at changing its behaviors, data is taken on the fidelity with which those implementing the plan are actually adhering to it.

Taking data on the fidelity of the implementation of the program design is one of the most critical pieces of the science that often gets left out of school-based ABA-type programs. It’s my assumption that this is for political and/or preemptive legal defense purposes because no school district that I know of wants data taken on the degree to which their staffs are actually adhering to any part of the IEP.

That’s way too much accountability on the record and way too much risk of it capturing somebody doing it wrong that could then be used to prove a denial of a Free and Appropriate Public Education (FAPE) in hearing by the parents and achieve an order for compensatory education to make up for the lost instruction. Even though the science is abundantly clear that ABA data collection methods, when followed according to the science, are the most accurate, reliable, and valid data collected in the public education system for special education students (Drasgow, Yell, & Robinson, 2001; Kimball, 2002; Yell & Drasgow, 2000), I have yet to see that degree of scientific rigor applied to any part of a student’s IEP in the public schools, whether it’s through their measurable annual goals or any behavior plans that their IEP might contain.

As parents, your primary goal has to be the quality of the IEP’s design because, if it doesn’t describe what your child actually needs, it doesn’t matter where you try to implement it and no placement will just magically fall in love with your child and imbue them with knowledge through emotional osmosis. Hope is not a strategy. Pursuing a scientifically informed, legally compliant IEP is a strategy that gives you way more likelihood of having a meaningful say in the quality of your child’s education, regardless of where they attend school.

References:

  • Drasgow, E., Yell, M.L., & Robinson, T.R. (2001). Developing legally correct and educationally appropriate IEPs. Remedial and Special Education 22(6), 359-373. doi: 10.1177/074193250102200606
  • Kimball, J. (2002). Behavior-analytic instruction for children with autism: Philosophy matters. Focus on Autism and Other Developmental Disabilities, 17(2), 66-75. https://doi.org/10.1177%2F10883576020170020101
  • Yell, M. & Drasgow, E. (2000). Litigating a free appropriate public education: The Lovaas hearings and cases. The Journal of Special Education, 33(4), 205-214. doi: 10.1177/002246690003300403


The Basics of Special Education Assessments

Most people new to special education are quickly blindsided by the processes and procedures that have to be followed. Many parents new to the process don’t exactly understand that customizing school for their children with special needs is what special education is supposed to do. Often they will say that they don’t know what special education will be able to do for their children, in large part because they don’t understand what special education actually is or how it works.

There is a huge need to demystify the special education process for those who don’t fully understand it. The process starts at the very beginning with a referral for assessment, but before I launch into a discussion of special education assessments, I first want to map out the special education process in general so the role that assessments play in that process becomes clear.

Because special education can only be given to students who meet specific eligibility criteria, a process had to be developed to determine who meets those criteria. The basis for a referral for a special education assessment is “suspected disability.” If the parents, teachers, or other involved professionals have a reason to suspect that a disability might be responsible for why a student is struggling in school academically, communicatively, socially, physically, and/or behaviorally, it’s enough to trigger the assessment process.

Sometimes, special education assessments end up ruling out disabilities and identifying other challenges that are interfering with student learning that require solutions other than special education. It is never a bad thing when a child who is struggling in school gets help, regardless of what types of help may be needed.

Federal law mandates that public education agencies conduct a process called “child find” in which they actively seek out and identify those students who can be suspected of possibly needing special education (34 CFR Sec. 300.111). A great many special education lawsuits have been filed over the years on behalf of students who were never identified through “child find,” but should have been.

I have worked as a paralegal on several cases in which there was enough evidence to suspect a disability was responsible for a student’s struggles but it failed to trigger the “child find” process. When students who are eligible for special education are denied eligibility, including from a failure to conduct “child find” that denies them the chance to be found eligible in the first place, they are usually due compensatory education to make up for the education they should have gotten but didn’t. “Child find” failures are no small things, but they occur systematically everywhere.

Very often, children of color, children from households with low incomes, children in single-parent families, and children who have immigrated here from other countries are the ones most often missed by “child find.” In many instances, they are instead blamed for their challenges and end up funneled into the juvenile justice system, thereby greasing the wheels of the School-to-Prison Pipeline.

It often takes a parent referral to see a student properly identified for special education. Struggles over homework, tears shed over grades, disciplinary problems at school, and other obvious signs of trouble will prompt many parents to look into their options for help from their local schools and some will stumble upon some basic information about special education and the referral process. If it makes enough sense to them, they will write a letter requesting that their child be tested for learning problems that might require special education, which triggers the assessment process.

Depending on what State parents are in, the laws vary as to whether their local education agencies are legally obligated to act on their referrals for special education assessment. Some States give parent referrals equal weight to those made by school personnel and other States do not. The federal laws leave it up to the States to decide, by default making it such that education agencies can decline parent referrals for assessment with Prior Written Notice (PWN) explaining why the referral is being declined (34 CFR Sec. 300.503).

California law, however, gives parent referrals equal weight to those made by education agency personnel (EDC 56029) and mandates that an assessment plan be provided to parents for their consent within 15 calendar days of any referral for assessment being made (EDC 56043(a)). States can add protections to the IDEA, they just can’t reduce them to anything below the minimum standards of the IDEA. Not all States provide the same kind of protection of parent referrals that California provides.

Even when a parent referral is accepted, many school districts will still limit assessment in a way the parents don’t realize is happening in order to prevent students from being found eligible for special education and thereby prevent special education expenditures and a host of additional legal obligations. For far too many families, just getting that initial evaluation can become a legal battle, but then the question becomes whether the assessment they got was any good.

I want to focus on what happens once the assessment process actually gets going, though. Eventually, most families of eligible children who are pushing for appropriate services will get an initial assessment that is used by the IEP team to determine whether the student is eligible for special education or not. If the student is found eligible, re-assessments will then occur at least once every three years, or triennially, to update the data available to the IEP team for ongoing IEP development.

The purpose of special education assessment is to determine 1) if the student is eligible for special education and, if so, 2) what the content of the student’s IEP should be. Needless to say that if the data gathered by the assessment is inaccurate, incomplete, or incompetently interpreted, things can go horribly wrong. And, they do. A lot of special education litigation arises over education agency failures to competently assess in all areas of suspected disability.

For example, if a child is verbal but can’t read people’s facial expressions or tone of voice, there still needs to be a speech-language evaluation that looks at not only articulation, receptive language, and expressive language, but also at pragmatic (social) language. Pragmatic language includes the ability to read nonverbal body language, facial expressions, and tone of voice.

Children with autism tend to be very literal with words and miss the nuances that tone of voice, facial expression, and body language can contribute to conveying someone else’s communicative intent, so they may misunderstand sarcasm or idioms and cliches. They can similarly struggle to make their own faces match what they are trying to say in a way that makes sense to most other people. Students with other types of handicapping conditions can also have similar challenges for various reasons related to their disabilities.

This isn’t all people with autism, of course, but pragmatic language deficits are commonly occurring features of autism. It stands to reason that any child assessed for autism should also have a comprehensive speech-language evaluation that includes pragmatics. I’ve lost count of the number of students on the autism spectrum I’ve represented over the last 28+ years who have had huge problems with interpersonal communication but had never had their pragmatic language tested until I asked for it. It’s one of those obvious things that shouldn’t have to be specifically requested, but I often end up having to request it, anyway.

And, this example goes to why it’s important that parents understand the critical nature of assessments and getting them done correctly the first time around, if at all possible. What happens if assessments are bad is that whatever IEPs are produced from them will also be bad. This can include an inappropriate denial of special education eligibility altogether at the initial IEP, as well as students being found eligible but then given weak IEPs that don’t actually address their needs.

Simply giving a student a document that says “IEP” on it does not magically bestow educational benefits upon that student. The contents of the document matter and they should be informed by scientifically valid data in all areas of suspected disability and unique learning need. The IEP is supposed to be the blueprint by which the special education student’s education is delivered according to that student’s unique learning profile, which can only be ascertained through valid and sufficiently rigorous assessments that include teacher and parent input.

What tests should be administered to a given student depends on the student. Just as the special education program developed for each student must be individualized, so must the assessments conducted to inform that program. If a student doesn’t present with any evidence of hearing loss, it makes no sense to test in the area of hearing. However, if a student reports that the words swim on the page when the student attempts to read, an assessment of visual processing is entirely in order.

Similarly, if the primary areas of concern are social and classroom participation but the student’s grades are otherwise fine, you can conduct all the IQ and academic achievement tests in the world, but they will fail to give you relevant data about the actual source of the problem. At best, academic achievement testing may tell you the degree to which the social/behavioral challenges are interfering with classroom participation and work completion, but social/emotional and behavioral assessments are necessary to get to the bottom of social and classroom behavioral challenges, including lack of participation.

It is not uncommon for individuals with autism and/or anxiety disorders who are otherwise verbally and intellectually intact to do well in their academics, at least in the lower grades, but have a truly difficult time being a member of a classroom and/or being socially integrated with the rest of the students. School is supposed to teach more than academics; it’s also supposed to give students the opportunity to learn and rehearse social skills that will ultimately allow them to become gainfully employed and fully functional within society in adulthood.

The thing to understand, here, is that a student does not automatically have to be struggling academically to need special education. A student needs to be struggling in any aspect of school as a result of a disability to such a marked degree that individualizing the student’s educational experiences is necessary in order for the student to have opportunities to learn that are equal to the opportunities given to same-grade peers who do not have disabilities.

Our students with anxiety and depression will often miss a lot of school due to psychosomatic illnesses. This prevents them from accessing education altogether, but is not directly reflective of a specific challenge with academics. Very often, these kids can handle the academics okay, but they can’t handle all the other people at school. That’s a different special education problem to solve than accommodating dyslexia or an auditory processing disorder.

I can tell you that, as an educational psychologist and behavior analyst, there are student-specific lines of inquiry that an individualized assessment of each student should pursue. No two assessments should look exactly alike from one student to the next. The federally mandated requirement placed on schools is to assess in all areas of suspected disability and unique student need on an individualized basis (34 CFR Sec. 300.304).

That means social/emotional functioning, pragmatic language, and behavior are probably going to feature more prominently in an assessment of a student suspected of autism or certain types of social/emotional disorders. Measures of cognition and academic achievement, analysis of classroom work samples, parent and teacher interviews, and classroom observations are going to be more useful in troubleshooting a potential learning disability. Physical therapy, occupational therapy, and adaptive physical education evaluations are going to be important for a student with an orthopedic impairment that impacts how the student navigates the school campus.

There is no “one-size-fits-all” assessment procedure in special education. There should be no “one-size-fits-all” anything in special education. The whole point of it is individualized instruction, which can only be individualized to the student if the IEP is informed by individualized assessment data.

The importance of individualizing assessment cannot be overemphasized, and I have an example from my past to drive that point home: Many years ago, a couple of years or so after I first became a paralegal, I was working a due process case in which, between the testimony of the school psychologist and the district’s director of special education, it became clear that the only reason the school psychologist had used a particular verbal IQ test on our 7-year-old language delayed client with Down’s Syndrome was because the district kept those tests in bulk in the supply closet, and it would take longer than the 60-day assessment timeline to order a more appropriate test through the district’s purchase order process, as overseen by the special education director.

It is my recollection that the administrative law judge who tried the case had his own blistering line of questioning after those facts made it onto the record. He basically eviscerated the special education director for sneaky, underhanded abuses of the system to save a buck at the expense of assessment accuracy. The judge ended up ordering the school district to fund an outside assessment done by an expert who used the right kinds of tests.

The dad had already paid to have the outside expert assessment done, so we had it as evidence of how to do it right in hearing, plus the outside expert testified credibly as to his methods and findings. The district ended up having to reimburse the dad for the outside assessment and there was a huge training initiative throughout that district’s special education department shortly after that hearing decision was published. Heads rolled and policies changed for the better, but it took exposing what was really going on in a hearing to effect significant changes.

The function that assessments serve in the special education process is to set it all in motion and inform all the other steps that will follow. An IEP must include a statement of a student’s present levels of performance at the time the IEP was written, thereby establishing baselines. An IEP must also include annual, measurable goals that target learning outcomes to be achieved in one year’s time from the date the IEP is written that move the student forward from those baseline positions in each area of unique learning need.

There is no way to realistically identify the target outcomes to be met with one year’s worth of work in each area of unique student need without valid assessment data to inform that analysis. How much is realistic for an individual student to learn in a year’s time comes down to a combination of variables that should have all been measured and described by the assessment data.

Goals target the outcomes intended by a student’s IEP. What services are included in an IEP, including the frequency, duration, and location of those services, are determined on the basis of what will be necessary to meet the IEP goals. Placement is the last decision made by an IEP team and is determined by what is the least restrictive setting or combination of settings that allows the services to be delivered such that the goals are met without unnecessarily segregating the student away from the general education population.

You can’t decide where a special education student can be most appropriately educated until you first determine what you’re going to have to do in that setting or combination of settings. What needs to be done is determined by what you want to make happen. You don’t know what to make happen until you understand where things already stand and what you are still missing. You don’t know what is already intact and available, or what is missing, without first doing an assessment.

So, everything in the IEP process depends on the assessments being done right in the first place, or the entire IEP process falls apart from the outset. If an assessment is done badly, there aren’t adequate baseline data to inform an IEP’s present levels of performance or inform decisions about how aggressive each measurable annual goal should be in terms of its targeted outcomes. Further, if it’s done badly, there’s no guarantee there’s enough data to identify all the areas in which goals are actually needed.

“What can the student already do in a given area of need?” and “What is realistic to expect from this student after one year’s worth of work in this given area of need?” are the two key questions that have to be answered by special education assessment reports. That’s because those two very questions have to be answered when crafting a new IEP.

If you can’t get that far with the data from the assessments, you’re off to a really, really bad start. If you can’t lay a proper foundation, your whole construct will fall down. Competent, reasonably thorough assessment is the very foundation of a sound IEP, so it is important for parents to take this step of the IEP process very seriously and hold everyone else on the team to their respective professional standards.

Federal law mandates the application of the peer-reviewed research and the professional standards of any experts involved to the delivery of special education (34 CFR Sec. 300.320(a)(4)). That includes during the special education assessment process. Any standardized tests used must be administered and scored according to the instructions provided by the producers of each test, which must be scientifically valid for the purposes for which they are used (34 CFR Sec. 300.304(c)(1)). The enforceable law does not skirt the applicable science, and there is no legally justifiable reason why any publicly funded education agency and/or any of its contractors should be skirting it.

This can be difficult for many parents who have no background in science or law. However, an interesting phenomenon is starting to occur on a societal level that is worth noting.

Millennials are becoming an increasingly represented generational cohort among parents of children with special needs. They use their smartphones ubiquitously to call BS on a host of issues by looking up the truth, and collaborate with each other to address shared concerns. Special education advocacy today is becoming something entirely different than what it was when I started 28 years ago.

When I was a young, beginning advocate, I represented a number of housewives who could bake some mean cupcakes but would nearly faint at the presentation of a bell curve graph and deferred to their husbands on any big decisions. Now, I’ve got young moms and dads taking their own behavior data, charting it, and presenting it to their kids’ IEP teams with a written list of questions, concerns, and requests, all based on their own common sense with no formal prior exposure to the applicable sciences or law.

Where things get interesting is how school district administrations are currently configured. Many of the old-timers that I’ve been dealing with over the last two decades or more have retired and run off with their pension money before there isn’t any pension money to be had, anymore. Millennials are now starting to take the retired old-timers’ vacant job positions and, where that has happened, I’ve found that I don’t have such an uphill battle when making scientifically research-based requests in conformity with the regulations on behalf of my students and their families.

The biggest challenges I’m seeing now are Millennial parents armed with knowledge attempting to advocate for their children to public education agencies still run by the old-timers. The old-timers run things according to cronyistic politics, by and large, which has no scientific support whatsoever. In fact, cronyistic politics have been supported by a great deal of science as being impediments to the implementation of effective educational programming (Coco, G. & Lagravinese, R. “Cronyism and education performance,” Economic Modeling, Feb 2014, 38 443-450; Shaker, P. & Heilman, E. “The new common sense of education: Advocacy research versus academic authority,” Teachers College Record, Jul 2004, 106:7 1444-1470) and the impetus behind the mishandling of education dollars that take money out of the classroom that could otherwise fund effective instruction and undermine a community’s investments in education (Eicher, T., García-Peñalosa, C., & van Ypersele, T. “Education, corruption, and the distribution of income,” Journal of Economic Growth, Sep 2009 14:3 205-231).

When knowledgeable parents go up against cronyistic old-timers, the old-timers resort to their familiar bag of power-mongering tricks. But, trying to intimidate a mom who was educated under the Common Core to use math and science to solve real-life problems is a world apart from trying to intimidate a housewife whose science and math skills are limited to following recipes in a cookbook and balancing a checkbook.

I’m watching old-timers retire in droves nowadays because their weapons of choice against parents aren’t effective anymore and the courts are increasingly relying on the applicable science to inform how the law applies to each special education student on an individual basis. Law is supposed to be evidence-based, as is science. Education science allows special education law to be as black-and-white as possible. Everything else, particularly in a cronyistic system, is subjective opinion and hearsay. The environment no longer reinforces the old-timers’ behaviors like it used to, and their behaviors are starting to become extinct.

So, parents going forth into special education, especially those of you who know how to use your smartphones to look things up and fact-check, fall back on the science and lean on it hard, starting with the assessment process. When you are first given that assessment plan to sign, don’t sign anything until you understand what it means and the language of it is clear.

Very often, assessment plans will say vague things like “social/emotional evaluation by psychologist,” which can sound a whole lot like a mental health evaluation by a clinician to a lay person. In reality, what it usually means is rating scales filled out by parents, teachers, and sometimes the student that are scored and interpreted by a credentialed school psychologist, not a licensed clinician. Rating scales scored and interpreted by a school psychologist is not the same thing as a mental health evaluation by a licensed clinician.

But, how is a parent unfamiliar with the process supposed to know that? Would any reasonable layperson just assume this language meant a mental health evaluation by a clinician? I’ve seen this happen more than once involving youth with significant mental health issues for which consideration was being requested by the parent of the rest of the IEP team of residential placement via the student’s IEP. The parents would be given an assessment plan that said “social/emotional evaluation by psychologist,” think they were getting an evaluation to explore residential placement, and only find out 60 days later that they had been given the run-around while their child continued to fall apart. Residential placement is the most restrictive placement possible through the special education system, but it is possible for those students whose needs are that dire.

In these cases, the students’ needs were absolutely that dire and the responsible school districts attempted to delay the costs of residential placement by first doing rating scales by their school psychologist as part of a 60-day evaluation process, who then recommended a mental health evaluation, sometimes including a residential placement evaluation but sometimes not, thereby triggering a new 60-day assessment timeline. If a residential placement evaluation was not included with the mental health evaluation, the mental health evaluation could then conclude that the student should be considered for residential placement, triggering yet another new 60-day evaluation timeline.

Or, worse, the mental health evaluation could be silent on the issue of residential placement, leaving it to the parents to know to keep asking for such an evaluation; but, by this point, most parents erroneously conclude that residential placement isn’t an option so they drop it. There are youth in immediate crises who need instant mental health services, and their school districts are stalling the process by adding an unnecessary layer of assessment that gives it another 60 to 120 days before it has to act on the data (i.e., foot the tab for services).

Each of the students from my caseload who have shared this experience, in different school districts mind you, ended up either hospitalized and/or incarcerated at some point before finally getting the help that they needed. In most of those cases, the issue had to be forced with lawsuits that ultimately resulted in confidential settlement agreements. In each instance, the unnecessary delays in receiving immediate help contributed to self-injurious behavior, attempted suicide, and unlawful conduct that could have otherwise been avoided.

In my first case like this, I actually took it to due process myself back in the day when advocates could do that in California, and prevailed. In that case’ decision, the hearing officer made it clear that it defies the entire purpose of the IDEA, which requires that children with qualifying disabilities be identified and served via IEPs in all areas of need as quickly as possible, to subject our most vulnerable children to double or triple the amount of assessment time of a normal special education evaluation before getting the help they need.

I don’t know of any authority that has come out since then that contradicts this interpretation, though it was a long time ago and I’m not an attorney, but I think most people will agree, that it was not likely Congress’ intent to make our most severely impacted students suffer without appropriate supports and services for months longer than it takes other special education students to get what they need. These include, but are not exclusively, students with tendencies towards violence, running away, property destruction, self-injurious behaviors, and other non-social behaviors that require a great deal of expert intervention. These are not the students who should be waiting twice to triple the time to get the services they need to keep themselves and everyone else safe and focused on learning at school.

If it looks like a critical area of need is being excluded from your child’s assessment, don’t sign the assessment plan until the public education agency adds what is missing. If the agency refuses to add it, note on the assessment plan that you are consenting to what is offered, but you still think the assessment is deficient based on what they are excluding, which you should list in your note. That way, the record is clear that you aren’t delaying the other testing by withholding your consent, but you’re also not agreeing it was appropriate to leave out what you requested.

If the matter ever goes to hearing, the fact that you documented your disagreement with the exclusions on the actual assessment plan will become part of the evidence and the agency will have to explain its refusals of your requests to a judge or hearing officer. I’ve seen agencies change their minds after parents have written such feedback on assessment plans because the agencies don’t want to have to explain those documents to judges or hearing officers down the line.

Often, the best way to prevent litigation is to prepare for it. The parents who understand the value of making the record in the right way are the most successful self-advocates out there. But, there are still enough cronyistic old-timers still entrenched in the system who think they can still get away with intimidation tactics, lies, and subterfuge. It’s getting harder and harder for them to get away with these behaviors, and parents who push for the truth from the very beginning, starting with the assessment process, have a greater chance of getting appropriate services for their children than not.


Fee Shifting in Special Education

Photo credit: 401kcalculator.org

I’ve had several cases in the last few years that have made apparent to me an unseemly practice that is evidently being used by some school districts: fee shifting. Fee shifting occurs in special education when a school district passes the costs of students’ needs onto other agencies by unscrupulous means.

There are two types of fee shifting that I have repeatedly encountered over the years. One takes the form of the School to Prison Pipeline in which the behaviors of students with disabilities are criminalized and prosecuted rather than addressed through positive behavioral interventions via the Individualized Education Program (“IEP”) process. The other takes the form of the misidentification of students, usually those with Autistic Spectrum Disorders (“ASDs”) and/or Attention-Deficit Hyperactivity Disorders (“ADHDs”), as children with serious mental health disorders who are then referred to their local County mental health agencies for treatment of disorders they don’t actually have and neglect of their actual conditions.

One of the eligibility categories for special education is “Emotional Disturbance” (“ED”), which is meant to address the needs of students with mental and emotional health disorders. While emotional problems will surely occur among students with other disabilities whose needs go unmet, this is a response to circumstance, not an innate disorder unto itself. In both of the fee shifting scenarios I’ve repeatedly seen over the years, the emotional challenges my law enforcement-involved and/or misidentified students have are largely the consequences of not getting support for their actual handicapping conditions.

That isn’t to say that none of my students are legitimately ED, but many of them didn’t start out that way. Post-traumatic stress disorder (“PTSD”) can arise from traumatic experiences in and out of school, but still can qualify a student as ED. What breaks my heart are the kids with other conditions who acquire PTSD from repeated neglect and/or abuse in response to their original conditions, particularly at school.

One school district in which I have been supporting students has a history of misidentifying little boys with ASDs as having mysterious mental health disorders that their local County mental health agency can’t quite seem to identify according to diagnostic criteria. This same mental health agency openly admits that it doesn’t diagnose or treat ASDs.

This is made further evident by their assessment reports because they clearly have no idea what they are looking at and render non-specific diagnoses, like, “Unspecified emotional disorder of childhood and adolescence.” This is basically a catch-all term for “We have no idea what is going on with this child,” when the ASD is plainly obvious to anyone who knows autism. In one of my cases, the student had already received a DSM-5 autism diagnosis and the County mental health agency still missed it.

For our children and youth that end up in our local juvenile hall, the moment they are incarcerated, they usually immediately cease to be students of their districts of residence, which is based on where their parents live, because California law causes students’ local education agencies to change whenever they are placed outside of their local communities by the courts. For example, in Ventura County, California, it is the Ventura County Office of Education (“VCOE”) that operates the schools in juvenile hall. So, the moment a student is locked up, that student ceases to be a student of the district where that student’s parents live and becomes a student of VCOE.

That creates huge complications for students who were in the process of being assessed when they became incarcerated or for whom referral for assessment was made while they were incarcerated but they get released before the 60-day assessment timeline has run. Switching local education agencies while mid-assessment is a bureaucratic nightmare. The procedures may have to be started all over again.

We hope and pray as advocates when working with criminal justice-involved students that we can get them through the 60-day assessment timeline before they “reoffend” and get locked back up again, once again disrupting the timeline and potentially starting it over with VCOE. Unless we’ve involved an attorney and litigation is pending, this can quickly turn into a vicious loop.

Most of the local school districts will partner with VCOE to finish any assessments that have been started in one location or the other because it is usually anticipated that the student will return home in a matter of weeks or months, at which point, the student will live within the attendance area of the school district, again, which will resume responsibility. Nonetheless, making this work takes Herculean effort and with as many kids as there are passing through the system, the time necessary to provide Herculean effort to each of them isn’t really available. It most often happens when people like me and my colleagues show up.

The motivation for fee shifting is obviously money. Special education is grossly underfunded, but like all the rest of public education, it’s also poorly managed. High paid administrators strip resources out of the classroom and then give themselves raises to reward themselves for how smart they’ve been about saving their school districts’ money. Every teacher who buys supplies for their classrooms out of their own pockets each school year knows exactly what I’m talking about.

What money the public schools get should be mostly spent on students. School district administration exists to support the instruction, not usurp its funding, but some statistics reflect that there is usually one administrative position for each teaching position, and I have yet to meet a teacher who has a personal secretary, so that’s obviously not how administrative resources are being used.

Fee shifting schemes very often target children from low-income households that can’t afford to hire attorneys to hold their local schools accountable. There are not enough attorneys who represent low-income parents of students with special needs to meet the demand, even though they can recover their fees from the offending school districts upon prevailing in hearing or as a condition of settlement. Those who take on these cases have overflowing caseloads that they can barely manage.

Because of this, it is often children from single-parent households, families of color, immigrant families, and families with parents who also have disabilities that are targeted by these fee-shifting schemes. This means that children with disabilities who were already disadvantaged by their actual disabilities and socio-economic situations are then further abused by a system in which their needs get misidentified in order to shove them off onto other agencies. The interventions they receive, if any, once they get shifted to the wrong agency are inappropriate to their needs, and nothing in that breaks the cycle of poverty.

Basically, fee shifting happens in special education because public education agency administrators get away with it far more often than they get caught, and they avoid getting caught most frequently by targeting children from families who they think won’t fight back. When parents do try to advocate for their children to get appropriate interventions in these situations, they are met with resistance from public education agency administrators and their lawyers. Public education may be underfunded, but a school district is far better financially equipped to wage war against a low-income parent than a low-income parent is usually equipped to fight back.

The consequences of this dynamic disproportionately fall on children of color, who are already marginalized by institutionalized biases that incline them to more likely live in poverty. But, affluent children of color get targeted in affluent school districts simply because of their color, which is made worse if they also have handicapping conditions, particularly those that affect behavior, or have been educationally neglected for so long that they have developed psychological problems around school that eventually lead to problem behaviors.

All behavior is communication, so what is a kid who has behavioral challenges at school trying to communicate? Is it that the curriculum is too demanding? The instruction doesn’t make sense? There are other things going on in that kid’s life that are taking a higher priority than school, such as homelessness and/or hunger? Is the child the victim of abuse? Is it something else? What is really going on?

There are a million reasons why a child may behave inappropriately at school, and disordered thought brought on by trauma, impairment, and/or duress is frequently involved, which is paired with the fact that we’re talking about children who are not mature enough to reason like adults. Without proper assessment, how can we know what the appropriate response is to a student’s challenges?

Many people also don’t understand that the costs to taxpayers caused by fee shifting are greater than the costs of doing the job right in the first place. For the price of one student’s tuition and board for a 4-year Harvard undergraduate education, you can incarcerate one youth in California for one year. Even if you had to put such a student into residential psychiatric treatment for a year as a matter of special education, that’s a quarter to one-third the cost of incarceration for the same amount of time and with a much higher likelihood of success.

It’s not just about how much money is spent; it’s also about how many benefits the money buys for students, families, and taxpayers. Getting more benefits for less taxpayer dollars seems like the most reasonable outcome to pursue, but many public agencies have this “not out of my budget” mentality that takes performing their mandates right out of the equation and makes it about how little money actually gets spent.

Those students with ASDs and/or ADHDs who are initially misidentified as having mental health disorders will very likely develop mental health disorders and the behaviors that go with them. This is a consequence of being surrounded in their programs by people with legitimate mental health disorders who model inappropriate behaviors and treatment programs that are inappropriate to their actual ASD- or ADHD-related needs. Poor social role models in addition to a lack of ASD-specific instruction on social pragmatics and behavior, paired with therapeutic techniques that are ineffective in the treatment of ASDs, compound to ruin lives, tear families apart, and undermine the cohesiveness of communities. Similar programming deficits improperly impact students with ADHDs.

It’s the students in juvenile hall and Department of Juvenile Justice (“DJJ”) facilities who are often in most need of mental health services as a matter of special education, but are least likely to get anything sufficient to their needs. The lack of adult mental health treatment facilities resulting in our jails and prisons taking the overflow is already a known problem in this country. What is less commonly known is how early the process of shifting mental health costs onto the criminal justice system actually starts with diverting kids out of special education services, very often those meant to address mental health issues and/or behaviors, and into the School to Prison Pipeline.

I certainly don’t endorse the idea that fee shifting is behind every special education violation. Fee shifting is behind some special education violations. Violations occur for a plethora of reasons; fee shifting is just one of many ways things can go wrong. But, parents, advocates, and educators need to be aware of practices that can create fee shifting, even if by accident.

In truth, a great many school-site professionals have no idea what their employers’ legal obligations are to students with disabilities and just do what they’re told in exchange for a paycheck and benefits. They care about their students, but they are often largely in the dark about what they can actually do to meet their students’ needs and they are unaware of the resources they are supposed to be making available to these students per the law.

They can’t incur the costs of intervention if they don’t provide intervention, so if they don’t know about interventions, they won’t make them available, thereby avoiding the costs of intervention. It’s often those who hold higher positions within the public education agency who are aware of the agency’s obligations but decide not to promote certain things among their staffs in the name of cost control that undermines the learning of children with disabilities.

It is in this climate that a School to Prison Pipeline develops. School site staff are unfamiliar with the actual rules of special education, particularly “child find.” Alternative methods of intervention will often be tried without success under the premise that having to refer a kid to special education is tantamount to failure and all other options must first be exhausted.

It’s actually the other way around. You at least rule out disability by conducting comprehensive assessment on the basis of suspected disability. Assessment will otherwise identify that there is a disability and why it’s causing so many problems. If it’s not a disability, assessment will prove that; competent assessment will explain what is actually going on, which will help parents and educators decide together what can nonetheless be done even if the student doesn’t qualify for special education.

The bottom line is to figure out what is really going on so the parents and educators can find the right solutions, whether they are special education or something else. You don’t make kids languish in a hokey, half-baked rip-off of Response to Intervention (“RtI”) for years until they psychologically break and then prosecute them for truancy when their school anxiety becomes so great that the thought of going to school makes them sick every morning.

Every year, we get new kids on our caseload who are hugging porcelain or sitting on it for extended periods every morning because the school-related anxiety rips their digestive systems apart. And, in almost every case, truancy proceedings are involved for untreated symptoms that are causing health-related absences. Panic attacks are treated as criminal acts.

Students and parents can be fined and placed on probation for truancy; public education agencies want their average daily attendance (“ADA”) dollars and they don’t get them if kids aren’t there. They use their local District Attorney’s (“DA’s”) office to prosecute kids with disability-related absences and their parents, which ushers kids with disabilities into the School to Prison Pipeline and away from quality education.

Some school site administrators will refer students to truancy proceedings without even asking themselves if there may be a disability involved that warrants immediate special education assessment, instead. They either can’t grasp or don’t care about the harm they are doing. They are eliminating costs and headaches from their own agencies, and that’s evidently as far as their analyses go.

It is very important that parents and advocates in these situations choose their actions carefully to make sure that any assessments that are needed to figure out what is really going on and what to do about it are actually done. If they are done poorly, skewed to support the argument the public education agency has been asserting all along, or are missing vital components, the parents will likely have grounds to disagree and request outside assessments, Independent Educational Evaluations (“IEEs”), at public expense, which is to say at the cost of the public education agency.

Basically, the district has to pay for outside second opinions if the parents disagree with the district’s assessments for any reason, which the law does not require the parents to explain. The only way that the public education agency can decline requests for IEEs is to send Prior Written Notice (“PWN”) declining the request (basically a letter to the parents explaining why the request is denied), filing for due process, and proving to a judge that the education agency’s assessments are good such that second opinions aren’t necessary.

Sometimes it’s not second opinions so much as getting additional testing done that the education agency failed to perform when it should have. Those are still IEEs. The point is that, in any situation in which you suspect fee shifting may be happening, assessments – good assessments – will tell you what is really going on with enough detail that a group of reasonably intelligent adults with intact ethics and morals can figure out something that will make sure a kid learns, regardless of what type of obstacles may be in the way.

It is my hope that, by shining light on public education agency administration “fee shifting,” the public becomes informed and more diligent about holding public servants accountable to spending taxpayer dollars on services that actually benefit the public in conformity with the law. This is something to be taken up town-by-town, county-by-county, and state-by-state by voters who expect public agency accountability to the taxpaying public and further expect agencies to legitimately serve the purposes for which they were created and funded. It’s also something important for parents and advocates to understand when pursuing appropriate outcomes for individual students.

Listen to this post as a podcast:


 

The Return of our Blog

Image Credit:
Christian Schnettelker

In 2008, I launched our first blog, writing about special education regulations, case law, education research, and my experiences over my career as a lay advocate, which started in 1991, and paralegal, which I also became in 2005.

Over the years that our blog was online, the laws changed, new case law was published, new research came out, and I was eventually faced with the daunting challenge of curating all of our old blog articles and updating them according to all the things that had changed over time.

Then our web host changed us to a new server early last year and we had to overhaul our site, so I took our blog down until I could get to it, again. Coming back to all that old blog content and updating it was easier said than done. Also, in the last few years, a lot of other things changed with our evolving organization.

Continue reading “The Return of our Blog”

Podcast: Emotions Part 1 – Parents

On November 12, 2008, we originally published “Emotions Part 1 – Parents” as the first in a series of text-only blog articles. As we begin to move into the new school year, KPS4Parents will be recording many of our past text-only articles as podcasts so that busy parents, educators, and interested taxpayers can download them and listen to them at their convenience.

We are starting with “Emotions Part 1 – Parents” and will continue through the series by recording and making available audio versions of many of our other text-only articles. As always, feel free to comment on our content. We appreciate the input of our readers and listeners to bring you the information you seek. You can either comment below or email us at info@kps4parents.org.

Click Here to download the podcast, “Emotions Part 1 – Parents.”

Emotions Part 4 – Students

In the last three posts, I discussed the emotions of the adults involved in the IEP process, not because the adults are the most important, but because they are the most responsible. How the adults in the situation choose to behave and the decisions they make affect the course of the lives of each individual child who requires special education forever. And, I really mean forever. 

No child is served by ignoring how the special education process directly impacts him or her. In fact, the impact that many of the decisions made by the adults in the IEP process have on children is required under the law to be measured. Measurable annual goals, as required by 34 CFR 300.320(2), look to determine whether the interventions and approaches decided upon and agreed to by the IEP team resulted in success. For the most part, the law is very student-centered.

Assessment can be a very grueling process for a child, particularly a young child. The nature of the suspected disabilities being assessed also plays a role in just how much standardized testing a child can tolerate in one sitting. Children with low motor tone can fatigue easily when being asked to perform paper/pencil tasks. Children with severe attention deficits can’t stay on task more than a few minutes at a time. Children with autistic spectrum disorders often have a hard time with the fact that the testing is not a normal part of their routine and the disruption to their predictable schedules can sometimes be enough to provoke non-compliant behaviors or tantrums, compromising the assessment process altogether.

By and large, children do not want to be disabled. The severity of the disability and the cognitive abilities of the child both impact the degree to which the child responds aversively to being “different” from his/her peers. Children with low cognition may not really comprehend just how different they are.They may come to terms with their circumstance rather quickly, regardless of whether they fully understand their situations or not.

I once worked as a job coach for developmentally disabled adults, providing supported employment services. One of my consumers was a fairly capable man who lived on his own in an apartment and had a full-time job working maintenance at a local driving range. He was very mildly cognitively impaired. He suspected that he had been brain injured in vitro during an incident of domestic violence, as his father regularly beat his mother throughout their marriage, including when she was pregnant. We were talking about life in general one day and he revealed this fact to me and the fact that he sometimes wondered what he would have been like if he hadn’t been disabled. He shrugged and summed things up by saying, in so many words, that he’d probably be living in his own place and working a full-time job, so really he didn’t think he had ended up in too different of a situation than where he would have otherwise ended up. I thought what he said was brilliant.

One of the attorneys I work with told me of a friend of his whose son was born with Down’s Syndrome. Intervention had been so successful for this young man that he lived independently, had a job, and easily accessed public transportation and all the entertainment and cultural enrichment opportunities that exist in the Los Angeles area. He could be frequently found taking the bus to work or some local attraction or point of interest. He was so confident in his abilities and proud of his own personal growth that he would tell people that he “used to be retarded,” judging himself against his own personal accomplishments more than anything else. What an example! 

But, I’ve also worked with kids who started out with learning disabilities that went unserved for years only to develop serious emotional health problems after years of academic failure. These feelings of low self-esteem bled over into other aspects of their lives, undermining their friendships, family relationships, and responses to life in general. 

A learning disability is quite unlike a cognitive impairment. People with learning disabilities have normal to above-average IQs. They just have a hard time processing certain types of information. A visual processing disorder means the person has a hard time making sense of what he/she sees. An auditory processing disorder means the person has a hard time making sense of what he/she hears. That has nothing to do with intelligence.

When perfectly intelligent children fail at something that other perfectly intelligent children can do without even thinking about it, it can make them feel bad about themselves. They often don’t want other people to know about their disabilities. They’re embarrassed by their shortcomings. Parental attitudes about these kinds of things can have a huge influence on how the kids respond.  Parents who are more interested in “keeping up with the Joneses” rather than true quality of life are more likely to be ashamed of having a child with learning disabilities than parents who don’t.  Parents who are constantly worried about what other people think can do a lifetime worth of harm to a child with a disability. But, I know many perfectly grounded parents who have made it perfectly clear to their kids that they love them no matter what and the rest of the world can go jump in a lake for all they care and their kids are still emotionally hung up over being “different.” 

Age has a lot to do with this, too.  Younger children are more forgiving and the younger kids are, the less they all know and the less children with disabilities (particularly “hidden” conditions like learning disabilities) appear to be different from their peers. But, as children get older, the expectations placed on them academically and in terms of social sophistication increase. The kids with disabilities will start to lag behind their peers in some ways and the gaps will start to widen.  It doesn’t take long for kids to realize that this disparity is happening.

If the friendships formed in the early years have been nurtured and fostered into a healthy support system, the children with disabilities are more likely to continue to be accepted by their peers for who they are.? But, kids who end up moving away or who never really formed solid friendships in early childhood (which really speaks to the degree that the adults in their lives facilitated their friendships in a healthy way) can end up losing their friends as the differences become more apparent.

It is common for children with disabilities to feel like their lives are spiraling out of control. If the adults involved in their lives can’t achieve a collaborative energy amongst themselves and there are evident disputes amongst the adults about how the child’s needs can best be tended to, that feeling that life is in an out-of-control tailspin is greatly heightened. Children rely on the adults in their lives, particularly their parents, to be their rocks and foundations.

How issues are approached is vitally important. I absolutely hate going into situations where justifiably frustrated parents have hired attorneys to take their school districts to due process and the next day the kid goes to school and tells his/her teacher off, ending with “My parents are going to sue you!” That helps absolutely nothing.

Because the decisions adults make will change the course of a child’s life forever, when IEP teams are working together well, I believe it’s important for the children to sit in on at least a part of their own IEP meetings. As they get older, it’s important that they participate as members of their own IEP teams. 

Parents have to be careful with this, though. If the purpose of the IEP meeting is to resolve disagreements about what should be in the IEP, it can be upsetting to children to be present during those discussions. It depends, though. I’ve seen various situations over the years where it was appropriate to have the kid there to settle the dispute once and for all while in other situations, kids had been reduced to tears or their parents held back on advocating for what they believed in because they didn’t want to upset their children (and, in the latter instance, that was the whole reason the school staff had insisted that the children participate).

Ultimately, the adults involved have to remember than an IEP is all about the child for whom it is being written. Not only do the adults have to respect each other, they have to respect the child and how their decisions will emotionally impact the child both in the short- and long-term. The child may have to do something he/she finds unpleasant in the beginning because it will lead to successes that will ultimately allow him/her to feel good about him-/herself. It’s up to the adults to make sure that the proper supports are in place so that the child’s initial aversion to the task does not undermine the overall goal, which means being attentive and properly responsive to the child’s emotions.