Tag: eligible

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Referring Your Child for Special Education

Photo by Juliane Liebermann on Unsplash
CREATE & DOWNLOAD YOUR OWN PARENT REFERRAL LETTER

The decision to refer a child for assessment to determine if they qualify for special education isn’t one to take lightly. Do you err on the side of caution and assess, even if only to rule out the possibility of a special education need, or hope whatever is causing the child problems in school will somehow work itself out?

For a variety of reasons, it is often the case that general education staffs in a public school are hesitant to refer a child for special education evaluation, or don’t even know that they are required to do so if a child presents with signs of suspected disability. Many don’t know how to distinguish the signs of possible disabilities from other factors, so they don’t even realize what they are really looking at.

The implementing regulations of the Individuals with Disabilities Education Act (IDEA) make clear that parents also have the authority to refer their children for initial special education evaluations. Referral is the first step to determining if a child is eligible for special education and, if so, what an individualized educational program (IEP) will look like for that child.

Referral triggers an initial evaluation that is supposed to be conducted in all areas of suspected disability and unique student need. That evaluation is supposed to be sufficiently comprehensive to inform the IEP as to the student’s potential eligibility for special education and the student’s unique learning needs.

There are two prongs that have to be satisfied in order for a student to become eligible for special education: 1) the student has to have a disability, and 2) the disability has to create a negative educational impact of some kind that makes specialized instruction necessary that wouldn’t otherwise be provided to a general education student. It’s possible to meet the first prong, but not the second one.

If it turns out that the student has a disability, but not to such an extreme degree that specialized instruction becomes necessary, the student may still be eligible for accommodations pursuant to Section 504 of the Rehabilitation Act and the Americans with Disabilities Act (ADA). Unless the instruction has to be modified or supplemented in some way in order for the student to access and benefit from the instruction, an IEP may be overkill.

There are those kids who need just a smidge of help, not a full-blown program of individualized instruction. There are those kids who just need a smidge of special education. Some kids need more, and yet others need a whole lot more. What each kid needs can only be determined by competent, comprehensive-enough assessments.

The federal regulations leave the door open for a local education agency (LEA) to deny a parent referral for initial evaluation, but the denial must conform to the Prior Written Notice (PWN) requirements described by the federal regulations. If the parent referral is declined, the PWN is required to explain why, and it better be a really good reason or the LEA can set itself up for a lawsuit.

States have the authority to add protections for students that the IDEA does not require, however. For example, in California, State law simply states that an assessment plan must be remitted to the parents whenever a referral is received. There is no caveat that says, “Unless it’s from the parents, in which case the LEA can decline it with a PWN.” There is no option for declination. It’s a black-and-white matter of, “When a referral comes in, an assessment plan goes out within 15 calendar days.” California law lists parents as the first party authorized to make referrals for special education assessments.

Every school year, families totally new to the special education process find themselves bewildered and dazed as they try to navigate the system. It’s a journey unto itself just to come to the conclusion that special education may even be necessary, but it’s only the beginning.

CREATE & DOWNLOAD YOUR OWN PARENT REFERRAL LETTER

Federal law mandates that each State require its public schools to have a system of “child find,” which must actively seek out, identify, and refer those student who may need special education. But, I have shouldered my fair share of “child find” cases over the years where kids went on failing year after year but being administratively passed from grade to grade without ever being referred for special education, only to prove to have disabilities and be due compensatory education.

Parents and taxpayers cannot rely on “child find” to help the kids who need special education. The burden often falls on the shoulders of parents who start doing research and discover they can refer their children for assessment, but then it becomes about learning how to do it, and then learning about what comes after that. It’s involved and exhausting.

So, we thought that anything we can do to streamline the process and help parents advocate more effectively and efficiently would be a valuable thing to add to the growing body of online resources out there to help families of children with special needs. Our first tiny contribution along these lines is a free tool for parents to create a referral letter for their children. Now that we have the means to create tools like this, we’ll be adding more in the future.

Honestly, it was exciting to find out that our site would support this kind of functionality without a whole lot of work. This opens up a lot of doors for us to help a lot of people who we otherwise wouldn’t be able to serve.

The referral letter we created is basic, sticks to language that is legally applicable throughout the United States, and flexible enough to account for each student’s unique circumstance. We will be creating additional customizable downloads like this for other special education situations in the future. We’ll announce them here, though the blog and our social media, when we add them to our site.

Once you’ve created and downloaded the PDF, just print and sign it. Then you can remit it to your LEA by some method that give you proof of delivery. We like Certified mail – you get a tracking number so you don’t need a return receipt and it’s the least expensive method we’ve found for getting proof of delivery on correspondence that trigger timelines or are otherwise important enough to need to remember when they were received.

Be sure to keep a copy of the signed version for your records, along with the proof of delivery. If mailing it Certified isn’t convenient, you can also print and sign it, then make a copy of the signed letter, and walk both copies into your child’s school. Have the person at the counter stamp yours received with the date and, if possible, their initials, and leave the original with the person at the counter. You can also deliver it this way to the LEA’s administrative offices.

So long as you have proof of when it was received, you’ve preserved your evidence. We wish you the best in your endeavors to advocate for your child and hope this tool proves to be useful to you.

CREATE & DOWNLOAD YOUR OWN PARENT REFERRAL LETTER
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Podcast: Understanding Special Education Eligibility

On December 7, 2008, we originally published “Understanding Who Is and Who Is Not Eligible for Special Education.” As we move through the beginning of the new school year, KPS4Parents is recording many of our past text-only articles as podcasts so that busy parents, educators, and interested taxpayers can download them and listen to them at their convenience.

As always, feel free to comment on our content. We appreciate the input of our readers and listeners to bring you the information you seek. You can either comment below or email us at info@kps4parents.org.

Click here to download the podcast, “Understanding Who Is and Who Is Not Eligible for Special Education.”

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California SLPs Sometimes Confuse Legal Requirements

Today’s posting will hopefully lay to rest a misunderstanding that seems to plague special education in California. I can only presume that, like many other “urban myths” that root themselves in special education lore, at some point in time, somebody somewhere in California conducted a training seminar on speech-language assessment and services within special education and miscommunicated something that has now led to speech-language specialists throughout the state making improper conclusions to the detriment of some children in need of speech-language services.

The problem is this: the distinction between who is found eligible for special education on the basis of a speech-language impairment (“SLI”) and who qualifies for speech-language services as a student already eligible for special education under any other category. Eligibility for special education as SLI is not required in order for a child otherwise eligible for special education to receive speech-language services in order to benefit from his/her IEP.

The critical piece of legislation, which gets erroneously cited in speech-language assessment reports all the time, is 5 CCR  3030(c). Title 5 of the California Code of Regulations Section 3030 describes all of the criteria for each of the eligibility categories under which a student may qualify for special education and related services. These categories include Specific Learning Disability (“SLD”), Other Health Impaired (“OHI”), Emotionally Disturbed (“ED”), and many others, including SLI. The critical thing to understand here is that the 3030s describe who can receive special education and on what basis, not what services they will get.

What ends up happening, though, is a child will be assessed for special education purposes and a speech-language assessment will be conducted. In the course of the overall assessment, even though the child is found eligible under some category other than SLI, because he did not score below the 7th percentile on two or more speech-language assessments, the speech-language specialist will determine that he doesn’t qualify for speech-language services according to 5 CCR   3030(c). It is a complete and utter misapplication of this Code, which deals strictly with eligibility under SLI and not what services an otherwise eligible child should receive.

A typical example of this would be a child who is eligible for special education pursuant to 5 CCR   3030(g) for autistic-like behaviors (in special education in California, a medical or psychological diagnosis cannot be made by the school psychologist, so this section of the code provides alternative language and defines the criteria by which a special education eligibility category can be identified for a child exhibiting the symptoms of autism), but who is relatively verbal. While his scores may hover just above the 7th percentile on the speech-language tests he was administered, they are still very low and his low language functioning compounds his other problems arising from the other needs arising from his handicapping condition.

In this example, anyone in their right mind can see that the child needs pragmatic (social) language intervention and help with idiomatic and figurative (non-literal) language. He doesn’t have any friends, he doesn’t get jokes, and he doesn’t understand clichs and colorful sayings, such as “Clear as mud.” This makes it difficult for him to participate in group projects with peers and understand the writings of Mark Twain. He needs goals that address these areas of need and speech-language services in order to benefit from his IEP.

No subsection of 5 CCR  3030 drives the selection of services that any child gets, only whether or not a particular child is eligible and, if so, under what category. The IDEA mandates that children who are eligible for special education, regardless of what category they qualify under, receive whatever supports and services are necessary in order to afford them a FAPE.

Specifically, the federal regulations found at 34 CFR  300.320(a)(2) state that IEPs must include for each child measurable annual goals, including academic and functional goals designed to meet the child’s needs that result from the child’s disability to enable the child to be involved in and make progress in the general education curriculum and meet each of the child’s other educational needs that results from the child’s disability.

An eligible child is a child who requires, as a result of one or more handicapping conditions, special education and related services in order to receive educational benefit. 34 CFR  300.39 “Related services” is described at 34 CFR  300.34. In none of this is there anything that suggests that the only way that an otherwise eligible child can receive speech-language services is if he is also found eligible as SLI.

In fact, 34 CFR  300.304(c)(6) states that, when evaluations are conducted for special education purposes, they must be “sufficiently comprehensive to identify all of the child’s special education and related services needs, whether or not commonly linked to the disability category in which the child has been classified.” Congress understood when it crafted the IDEA that you don’t individualize a child’s program by resorting to “cookie-cutter” strategies that are based on a kid’s eligibility category.

The IDEA is the skeleton of special education law. It establishes the basic framework and minimal standards. It is left to the states, if they want any federal special education dollars, to add the flesh to the bones by creating their own state-level legislation that explains how each state will implement the requirements of the IDEA. While states are free to add more obligations to their schools than what the IDEA requires, they are prohibited from reducing the protections offered to students and parents under the IDEA lest they sacrifice their funding.

What this means for speech-language services to special education students in California is that the IDEA basically says each eligible child must get whatever he/she needs in order to receive educational benefit, regardless of what type of services are required and regardless of the applicable eligibility categories. That’s the whole concept of individualizing a child’s education plan based on his/her unique educational needs.

There is nothing at the state-level that reduces this federal mandate, nor could there be unless California were to choose to go it alone to cover its special education costs and we all already know that California can’t pay its bills even with the federal funding it receives. It absolutely cannot afford to give up its federal special education funding.

We’re curious to know if there are any other state-level debacles involving misinterpretations of the law happening elsewhere. Readers are encouraged to post comments to this posting about such misinterpretations that may be occurring where they live.

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Understanding Who Is and Who Is Not Eligible for Special Education

Eligibility is a very confusing concept for most parents trying to negotiate their ways through the bureaucracy of special education. It’s an unfortunate reality that special education has to be regulated in order to make objective determinations as to whether students benefitted from their services or not, but the regulations create what is to some parents seemingly insurmountable barriers to entry.

 

This is further compounded by an industry-wide (and I am considering public education an industry, here) initiative to intervene before students are so far gone that they actually need special education. On the surface, this sounds like a good idea. If acted upon in good faith, it’s a great idea. Why wait until a child is so far behind that he/she may never catch up Why resort to labeling the child as “disabled” when what’s closer to the truth is that he/she was never taught the way he/she actually learns?

 

However, far too often, in the name of preventing an unnecessary referral for special education, strategies are attempted in the name of “regular education accommodations” and “Response to Intervention” that aren’t successful. In the end, it becomes apparent in these instances that these “strategies” were nothing more than bad faith delay tactics used in the hopes that the parents would reach the conclusion that their children were beyond help and simply give up.

 

After all, teaching children who are struggling to master certain concepts is really, really hard. It’s a lot easier simply to not. The employees of the education system get their paychecks either way. This is a deplorable situation for parents and educators who truly care, alike.  Good teachers are constantly fighting an uphill battle to do the right things.  After a while, it’s easy to burn out and give up, leaving behind all the people who are inclined to take the easy path and just not do much of anything.

 

That said, when it comes right down to it, who is really eligible for special education? It is a misconception that the presence of disability automatically qualifies a child for special education. It does not. A disability must be present in an eligible child, but that by itself is not enough.

 

There must be a negative educational impact caused by the disability – it must interfere with the child’s learning or participation at school to a significant enough degree that specialized instruction, modifications, accommodations, and possibly related services such as speech-language services and occupational therapy are necessary in order for the child to receive educational benefit.

 

For more than two decades, everyone has been carrying on about the abysmal standard established by Rowley. Or, more accurately, Rowley has been misrepresented by public schools as meaning they don’t have to do a whole lot. Amy Rowley was passing her classes without the sign language interpreter her parents wanted and could get around school just fine, in spite of her hearing loss.  That really doesn’t speak to the circumstances of a child with learning disabilities and ADHD who is reading three grade levels below his current grade.

 

There is another case, Mercer Island, in which the appellate decision declared that the Rowley standard of “some educational benefit” and “a basic floor of opportunity” is dead. Rowley was decided in 1982 in light of the predecessor of the Individuals with Disabilities Education Act (“IDEA”), the Education of Handicapped Children Act of 1975 (“EHA”). The EHA was meant simply to give children with disabilities access to the public schools. Prior to the EHA, at least a million children with disabilities were denied enrollment and there was often no programming to meet their educational needs even when they were permitted to attend school. They simply stayed home or spent pointless hours in regular classrooms with no supports waiting for the day when they could drop out.

 

In 1997, the EHA was replaced with the IDEA. With it came much stronger language about what kinds of outcomes are to be expected. I concur with the findings in Mercer Island for the very obvious reason that the purpose of any education system is to teach students what they need to know so they can take care of themselves as much as is reasonably possible when they grow up. That’s what benefits the children and their families the most. That’s what benefits society the most. (See our posting, “The Big Picture – Special Ed Issues Impact Everyone“.)

 

The need for specialized instruction in order to receive educational benefit (setting aside for the moment how “educational benefit” is exactly defined) on the basis of a handicapping condition is what drives eligibility for special education. This could be something as relatively benign as an articulation disorder that prevents the student from speaking clearly enough to participate effectively in group learning activities with peers, read aloud in class, and/or effectively communicate personal needs or lack of understanding to instructors.  It could be something as severe as quadriplegia that prevents the student from independently navigating a school campus. There are a million ways to be disabled.

 

However, let’s say we have a child with quadriplegia who has mastered the use of his electric wheelchair and can get anywhere on campus he wants, is intellectually intact without any learning disabilities or emotional problems, and is able to hold his head upright and turn it sufficiently to follow instruction in the classroom. He grasps what the teacher is saying.  And, at most all he needs in his academic classes are accommodations, such as a set of books at home, a set of books at school, note-takers in class, access to a computer with dictation software on it, and assistance using his materials in the school setting in order to participate. Does this child require special education?

 

I’d argue that for a kid like this, PE is the only part of the curriculum he can’t participate in without specialized instruction and he would qualify on that basis alone, requiring Adaptive PE as his specialized instruction.  I’d also argue that for self-help needs such as eating and toileting, he would probably need a properly qualified 1:1 aide as a related service.

 

For a child with a disability that impacts his/her receipt of an education and/or participation at school, but who does not need specialized instruction, the solution is a 504 Plan. That’s another blog posting in and of itself. I’m not going to explain 504 right now.

 

The point I’m trying to make here, particularly to parents, is that special education really is meant for a specific group of kids.The federal regulations are found at 34 CFR 300.8.? Each state has its own additional language, as well. In California, for example, it’s 5 CCR 3030.

 

There are some parents who think that getting their child into special education will solve everything. That may not be so.  I’ve encountered parents who were simply looking for something to blame- a defect in their child – rather than their own incompetence as parents for their child’s problems.  Sometimes children are just responding to, or role modeling themselves after, the adults around them.

 

I’ve also encountered parents whose children did have mild problems that fell just short of qualifying them for special education. That’s the thing with the regulations. Somebody is invariably going to almost, but not quite, qualify for special education. The line has to be drawn somewhere. Those are the kids whose parents need to turn to Section 504 and learn as much about it as they can.

 

But, I’ve also encountered education agencies that didn’t want to admit that they had failed to conduct “child find” for years running, resulting in a failure to find a child eligible who should have been found eligible long ago, thereby denying the child a Free and Appropriate Public Education (“FAPE”). Because these agencies didn’t want to admit fault and were hoping to avoid being held responsible for providing compensatory education to these children, they lied and said these kids weren’t eligible at all and never had been.

 

A fair amount of litigation arises over eligibility issues. The important thing for parents to understand is that the regulations spell out who and who is not eligible for special education. You need to understand the rules before you go charging off on a mission. State law usually hones the federal law on this issue.

 

For example, if a clinical psychologist has given a child a DSM-IV diagnosis of dyslexia, that doesn’t mean the child will qualify for special education as having a learning disability, even though dyslexia is a type of learning disability; what matters is that there is a discrepancy between achievement and ability or the child has failed to respond to scientifically research-based interventions in the regular education setting because of the dyslexia, which is a processing disorder. On that basis, the child can qualify for special education as having a learning disability.

 

Educators need to appreciate that parents often don’t understand this subtle distinction and be kind and helpful to them as they try to navigate the system. Mocking them for not knowing this is simply inappropriate. Being compassionate to the needs of the student and the angst of the parents who are worried about their child’s academic performance is very appropriate.