Emotions Part 2 – School Site Staff

Parents are not the only ones who have emotional reactions to things that happen in the special education process. Special education is a very complex undertaking that involves a lot of people, each with his/her own perspective.

Teachers and related service providers (speech-language specialists, occupational therapists, etc.), being in the trenches as it were, are the people most in a position to see the educational impact of a child’s special needs first-hand. What they don’t know can hurt a child.

Parents who jump to blaming teachers and providers without considering all of the factors that these professionals have to deal with, however, don’t help the situation. That isn’t to say that teachers and providers are without responsibility and shouldn’t be held accountable. But, things have to be done the right way.

There’s usually a whole lot more going on behind the scenes beyond the control of the teachers and related service providers that parents don’t know about or understand. Many parents may look at teaching and professional staff, as well as school site administrators, as having a lot of say in how things go down, but the truth is that their effectiveness is also influenced by internal agency politics that start at the top of the agency’s administrative hierarchy and trickle down into the classroom through bureaucratic channels.

What teachers and related service providers are prevented from doing by the internal politics of the agencies they work for can also hurt a child, and most teachers and providers who find themselves in these kinds of circumstances are sickened by them. I’ve spoken to many people over the years who left the teaching profession because they were unsupported by their administrations, were denied the tools they needed to teach all of their students (particularly those with unique learning needs), and were told not to say anything to parents or make waves lest they find themselves unemployed. This is entirely unacceptable on a variety of levels, not to mention unlawful.

In many of the difficult instances I’ve seen, teachers and related service providers have not been properly trained on what to do and/or have had critical resources withheld from them by the powers that be.  When parents understand that teachers and service providers are usually jumping nervewracking hurdles within their agencies behind the scenes, a more constructive and collaborative way of working together can be developed and the professionals can come to regard the parents as resources rather than additional obstacles.

Teachers and related service providers, like parents, need to check their emotions at the door when it comes time for meetings with parents and co-workers. I once attended an IEP meeting for a little girl who was being raised by her single dad and the little girl’s teacher, as it turns out, had a mad crush on the dad. This same teacher was actually a pretty decent special education teacher in terms of her caring for her students and how effectively she communicated with them. But, the school district she worked for had trained its special education staff incorrectly on how to write IEP goals, resulting in IEPs filled with nonsensical gibberish. 

The exasperated father kept going back to her asking for clarification, which she was more than willing to oblige, and calling new IEP meetings to better describe the goals without really getting anywhere productive. As a professional person, he knew what kind of standards he was held to when it came to goal-setting and he just couldn’t fathom his daughter’s IEP goals. 

I wrote a letter to the district explaining why the goals were completely unacceptable and an IEP meeting was again called to address the goals. He and I went to the IEP meeting where this teacher, who had tried so hard to please this frustrated parent using the knowledge and information she had, bawled uncontrollably throughout the IEP meeting.

The teacher took the parent’s hiring of advocates to address the goals she had written as a personal attack, despite the fact that the real failing was in the way the district had trained her to write the goals and not something that we’d ever blamed her for specifically. Her sense of rejection was only further amplified by the fact that part of her motivation in working so hard with this parent was because she was attracted to him and, clearly, if he had hired a quasi-legal representative to respond to her efforts, her affections were not?being returned.  It was one of the most uncomfortable IEP meetings I’ve ever attended.

That certainly doesn’t happen to me every day. But, I’ve gone to a number of meetings where teachers or service providers were defensive, rude, condescending, and inappropriate because they were bad people doing bad things. I went to a meeting once where a mean and nasty speech-language pathologist had produced a very poor assessment report on behalf of the district that failed to include any subtest scores, making it impossible to see whether the child had demonstrated subtest scatter (subtest scores that are not close together, indicating relative strengths in some areas and deficits in others, as opposed to the subtest scores more or less being about the same regardless of the areas tested). When I asked for the subtest scores, she sneeringly advised that she couldn’t provide them because she had shredded the assessment protocols (the booklets in which the student’s actual answers and scores are recorded). Shredded them!!!

In California, unlike many other states, assessment protocols are considered part of a student’s records and, therefore, must be maintained as such (meaning that parents have the right to copies of them). Here, the assessor had destroyed a protected student record and for what She couldn’t prove that she had properly administered and scored the assessments in addition to the fact that she couldn’t really show how the child had performed on them. 

On behalf of the parents, I immediately disputed her results and asked for an independent educational evaluation (“IEE”), which is basically a second opinion by an outside assessor not employed by the education agency, at public expense.? The only way the district could have turned down the request would have been to take the family to hearing to assert the appropriateness of its assessments, which it couldn’t do because the speech-language pathologist had shredded the evidence.  The district sensibly agreed to the IEE.

The thing I hope you take from this posting is that teachers and service providers are people too. Parents and administrators need to understand this but nonetheless expect the utmost ethical conduct from teachers and providers as well as a legitimate interest in learning whatever they can to make sure their students receive meaningful educational benefit. 

Teachers and providers need to understand that protections are in place (see our first posting of November 11, 2008) to prevent them from being retaliated against by their employers for doing what they think is right by their students with disabilities.  Administrators need to be sensitive to the feelings of pressure they may be inadvertently placing on teachers and providers to say and do things that betray their moral judgment. This is the kind of thing that leads to teacher burn-out and prompts service providers to leave public education and go into private practice.

Teachers and providers need to have confidence in their own voices and insist that they be provided with the training and supports they need to do their jobs well. Disenfranchisement is the usurper of success and depriving our children of success is an unacceptable outcome for us all.

Emotions Part 1 – Parents

Parents come in every flavor and how each of them responds to the demands of advocating for a child with disabilities varies from one to the next.That said, there are some basic assumptions that can be generally made about parents of children with disabilities and they are, as follows:

  • Parenting children with disabilities can be harder than parenting children without disabilities or, if not harder, hard in ways that most people could never even imagine. This can be particularly true for parents juggling the needs of more than one child, aging parents, and/or demanding jobs.
  • Parents of children with special needs went through pregnancy or adoption having the same dreams of success and happiness for their children that all parents have. It can take some parents a while to adjust to the idea that their children are disabled and the path they will have to travel is different from what they expected it to be.
  • No child comes with instructions and becoming a parent, particularly a new parent, involves a lot of figuring it out as you go. The frustration and feelings of inadequacy that often come with being a parent in general can be magnified when you become the parent of a child with a disability. You can end up kicking yourself much harder for your mistakes because more is on the line (or you at least perceive it that way).
  • That said, many parents get through the initial stages of worrying themselves sick and settle into a reasonably comfortable mode of having a pretty decent handle on things for the most part, getting occasionally derailed by arbitrary medical, educational, or other service issues that arise involving agencies responsible for serving their children’s needs. When that happens, these parents can become angry.
  • Being the parent of a child with a disability makes a person emotionally vulnerable. You can be reduced to feelings of frustration, fear, and failure in a nanosecond. When people actually step up and help you out, you can be so eternally grateful that you are brought to tears of relief.
  • Asking for help is hard for some parents. When they finally bring themselves to do it and they’re met with resistance or game-playing, they can become incensed. When they ask for help and are received graciously with understanding and integrity, they will often become the best players on the team and defer where appropriate to the expertise of others.
  • Disabilities that involve serious behavior challenges can turn an entire family upside-down. Parents of children with these kinds of needs are often exhausted, exasperated, and overwhelmed.

If you are a professional working with parents of children with disabilities, it’s important to take their feelings into account and truly respect them. Some of the ugliest behavior I’ve seen as an advocate has been public agency personnel mocking a parent’s emotional response to a difficult situation or using the parent’s response to discredit anything the parent has to say.

If you are a parent, realize that many people are uncomfortable with emotional displays and will use any emotional response you have as a justification to take you less seriously. Getting angry and blowing up at people almost never serves you. Crying during IEP meetings can be perceived as instability and weakness on your part and can cost you credibility.

When developing an IEP for a special needs child, parents need to go in and stick to the facts, treating the process like a business transaction. Speak from the heart and with good faith intentions, but remember that the purpose of any IEP meeting is to create the content of your child’s IEP, not belabor how certain people or events make or have made you feel.

If you fear that you’re going to break down or blow up about something, save it for later when you can write a to-the-point letter describing your concerns. If it’s that upsetting, you’re probably better off making the record anyway. Plus, when you deal with upsetting situations in writing, you can take your time and choose your words more carefully (which is important because written communication can become evidence under certain circumstances and you always want to think about how what you’ve written could be perceived by a Judge or investigator).

Additionally, when you’re exchanging communications in writing, the folks who are responding to you are more likely to think about what they’re saying before they go flying off the handle, too. In any event, they aren’t sitting across the table from you saying things that push your buttons and set you off.

Respecting the feelings of everyone involved in any collaborative process, such as an IEP meeting, is just common courtesy. Parents are usually the most emotionally invested members of the IEP team. After that, teachers who truly care about their students are usually the next most emotionally invested members of the team. Disrespecting their emotional investments in the child at issue is a mistake on the part of any of the other IEP team members. The emotional investments of parents and teachers in children with special needs make them more likely to come up with creative, appropriate ways to get the job done.

What are your thoughts and experiences on this topic? Post your comments and let us know.

If you advocate for a child with special needs, consider purchasing a copy of Wrightslaw: From Emotions to Advocacy: The Special Education Survival Guide.

This Blog’s Purpose – Parents & Educators Working Together

Hi! My name is Anne Zachry and I am the Executive Director of KPS4Parents. KPS4Parents is a non-profit organization that has been providing lay special education advocacy, parent training, public agency consultation, and paralegal services to special education attorneys since 2003. (For those of you wondering, KPS4Parents stands for Knowledge Powers Solutions for Parents.)

I have been with KPS4Parents since we first opened our doors as lay advocates, having worked for 12 years prior as a freelance special education lay advocate.? In my 17+ years advocating for children with disabilities and their families and building positive working relationships where I’ve been able with public education officials and attorneys, I’ve seen and heard a lot of things. I have perspective from both the public agency and the parent sides of the issues and have found myself standing in the middle trying to take care of concerns on both sides so that, ultimately, the child gets served appropriately.

For the most beneficial outcomes to be achieved, both sides have to work together. Schools need to understand that having a child with a disability is a very, very emotional situation for any family and parents need to understand that public agencies are fraught with challenges, some of them seemingly impossible to overcome, that interfere with the delivery of appropriate services to children with special needs. Some of the answers are easy. Some of them escape identification for years. Even once they’re identified, making them actually happen presents a whole new set of obstacles to overcome.

This blog is intended to inform and inspire you. Whether you are a parent of a child with special needs, a general education teacher, a special education teacher, a public school administrator, or you work for another agency that serves the same population in conjunction with or in addition to the public schools, the information you’ll find here and the insights you can provide will help you help us build a better tomorrow.

We promise you that our ultimate goals is to facilitate collaboration among all the stakeholders, but we aren’t going to sugarcoat anything. There are some serious problems that we have to overcome and some of them are very ugly.  You’ll find below additional information about Section 504 of the Rehabilitation Act of 1973 and the protections that parents, advocates, and educators have against retaliation in response to their efforts to pursue appropriate outcomes for children with special needs.

The first step in overcoming the obstacles we each face is to fearlessly reach out to each other and unite. When teachers fear for their jobs and parents fear for what their children will face at school if they dare say anything about a bad situation, public education becomes increasingly anti-child. We simply cannot have that. We will incur further economic hardship as a nation and will lose our souls in the process. Please read our additional content provided in the Downloads?& Links below to learn more.

Please also subscribe to our feeds so that you can remain informed and stay involved. We’re looking forward to the directions this blog will take us and having you involved as a member of our community.

Kindest regards,

 

Anne M. Zachry

Executive Director

KPS4Parents 


Downloads & Links:

504-protections

Settlegoode Appeal Decision